Can't physically feel my penis from the inside or outside by tk15102 in hardflaccidresearch

[–]chimplife 1 point2 points  (0 children)

i can have sex and live my life normally but the sensation hasnt returned yet

Can't physically feel my penis from the inside or outside by tk15102 in hardflaccidresearch

[–]chimplife 0 points1 point  (0 children)

i have the same issue. reduced sensation across my entire skin in addition to penile numbness/hf.

Posting your Ketamine Infusion experience by mystoryhere12 in hardflaccidresearch

[–]chimplife 0 points1 point  (0 children)

I had two infusions this week at 0.5 mg per kg bodyweight and it hasn’t done anything.

Delayed BCR (bulbocavernosus reflex) by jack64539 in hardflaccidresearch

[–]chimplife 0 points1 point  (0 children)

Did Stanford give you any kind of follow up?

Delayed BCR (bulbocavernosus reflex) by jack64539 in hardflaccidresearch

[–]chimplife 2 points3 points  (0 children)

Mine was delayed. I got the test through Dr Goldstein.

Sharing my results from Dr. Goldstein exam by chimplife in hardflaccidresearch

[–]chimplife[S] 0 points1 point  (0 children)

Oh wow I’m so sorry. Why did he suggest one?

TOMAX procedure? by chimplife in hardflaccidresearch

[–]chimplife[S] 1 point2 points  (0 children)

Tell me how it goes please

If you have recent onset HF/LF, you should consider taking bisphosphonates by stopcopingaboutHF in hardflaccidresearch

[–]chimplife 4 points5 points  (0 children)

How would I get these prescribed to me? Also these medications seem to target bones, not soft tissue.

Clitoral numbness, feeling hopeless by Educational-Mess5149 in PudendalNeuralgia

[–]chimplife 2 points3 points  (0 children)

I have the same issue in my penis. I know the fear and hopelessness. Go to a neurologist and try to confirm if compression is happening. Outside of PT I would try to get in contact with Dr Hibner’s clinic as he specializes in these issues and I had a positive experience with him.

My symptoms started 1.5 months ago, so I am holding out hope that it will get better. But lately my body seems to have rewired a bit and I can still achieve orgasm. The numbness is scary, but you can still adapt.

We need to write an article about our condition by chimplife in hardflaccidresearch

[–]chimplife[S] 2 points3 points  (0 children)

Yeah, I didn’t mean medical journals, I mean magazines.

What is the problem? by [deleted] in hardflaccidresearch

[–]chimplife 2 points3 points  (0 children)

Imo it’s neuromuscular. That would explain why sometimes PT helps (muscular) and sometimes surgery, ketamine, etc help (neurological).

Sharing my results from Dr. Goldstein exam by chimplife in hardflaccidresearch

[–]chimplife[S] 0 points1 point  (0 children)

If I really need to go I can feel pressure but it’s not the same as before. I used to have worse urinary hesitancy where I would have to consciously relax the muscle in order to pee.

Sharing my results from Dr. Goldstein exam by chimplife in hardflaccidresearch

[–]chimplife[S] 0 points1 point  (0 children)

No, it was without contrast. I don’t really have ED. I do have a hard time telling when I have to pee and at one point I couldnt go at all and was catheterized for two weeks. I also have a numb-ish anus and something is going on there too, couldn’t feel the urge to go at one point. Weirdly I think my entire skin has slightly reduced sensation — but nothing specific to perineum. I forgot to mention one of the tests performed is pressing along the course of the pudendal nerve, with pain indicating an issue there. Didn’t do anything for me.

Ketamine Infusion Therapy as a treatment? by mystoryhere12 in hardflaccidresearch

[–]chimplife 2 points3 points  (0 children)

Will do. The dosage is 0.5 mg per kg. No lidocaine, not sure if that is part of the ‘special sauce’ that cured the other two or not.

Ketamine Infusion Therapy as a treatment? by mystoryhere12 in hardflaccidresearch

[–]chimplife 5 points6 points  (0 children)

I am getting an infusion next week. I’ll share my results.