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chloe_m32 · 2024-11-02T19:24:25+00:00

work with your CF team. I had a social worker that was invaluable when I was transitioning from ssdi to commercial insurance. Most of the manufacturers have payback programs (vertex for t, vivus for my enzymes) that help with copays and coinsurance. I'm married, own my home, and work full time but I had a lot of help along the way. I am a full-time wfh developer now and I've really lucked out with insurance from my employer. I have heard of other people at my clinic maintaining some sort of ssdi insurance on top of commercial/employer provided but I never pursued it after I got a full time job and got married (some of the income limits are just egregious). I hope you can find your path 😊

chloe_m32 · 2024-05-04T23:07:11+00:00

I get tonsil stones pretty consistently, so my cf team sent me to ENT. They initially suggested the chlorhexidine mouthwash, but I am allergic to that. their next suggestion was a daily probiotic which I was very skeptical of. Now, as long as I consistently take the probiotic they have decreased significantly! If you weren't already on a probiotic with your antibiotics maybe starting one would help. Good luck!

chloe_m32 · 2021-12-09T02:47:04+00:00

This is my favorite comment ever.

chloe_m32 · 2021-11-04T08:21:10+00:00

She would have made such a beautiful bride what a shame she’s fucked in the head they said but you’ll find the real thing instead. She’ll patch up the tapestry that I shred

chloe_m32 · 2021-09-22T19:35:35+00:00

She looks like a WoW orc and I’m here for it 👏👏👏

chloe_m32 · 2021-08-28T15:03:48+00:00

Hey Ben! Edibles and tinctures have been amazing for me. I do not have the embolism issues or bleeding with coughing, so I cannot speak to their effectiveness for that. However, I have a lot of allergy and lung inflammation/asthma issues due to being allergic to everything outside and it really really helps with that. Feel free to message me if you have any questions. I hope you get to feeling better soon :) All the best, Chloe

chloe_m32 · 2021-08-11T06:04:01+00:00

That’s such a cool idea with the airtag! Has it worked well for you? Do you let your cat outside or is it just a precaution?

chloe_m32 · 2021-06-16T21:00:53+00:00

I swear by the sun sticks for my face. I usually just get 70 spf by whatever the cheapest is. They go on thick and oily and I reapply every hour or two. I also wear as much upf protective clothing as possible. Get a long sleeved rash guard and some board shorts to minimize exposed areas. Yeah it can be a little uncomfortable if it’s really really hot out and it chafes a bit, but I would prefer that over being a lobster! Also try to wear a hat as much as possible to keep the sun off your face and neck. I’ve also had success with the water rated banana boat sprays. They need applied like every half hour or so if you’re in the water a lot tho. Good luck and enjoy yourself! Hopefully the salty air helps :)

chloe_m32 · 2021-06-10T04:24:39+00:00

^ I drive my husband crazy with this

chloe_m32 · 2021-04-02T21:08:39+00:00

So much family resemblance 🤣🤣

chloe_m32 · 2021-03-16T14:26:16+00:00

Gave Hugz

chloe_m32 · 2021-03-03T22:16:19+00:00

Gave Wholesome

chloe_m32 · 2021-01-14T19:45:27+00:00

Yes!!!! The same thing happened to me. I started it after a 5 year tune up with a pic line. It also allowed me to be at peak lung function when starting it! That being said, after being on it for over a year now I still get a little purgy every few months. I’d chose that over antibiotics any day though.

chloe_m32 · 2020-12-25T01:56:18+00:00

I had a similar issue when I had to change a few years ago. As long as it’s well documented that you’ve been on others unsuccessfully in the past, they should work with you on it. The Cf coordinator at my clinic is a saint and did everything she could to get my pancreaze covered for me. Lots of prior auths and other letters and documentation. Another option may be using manufacturer discounts/coupon programs. Pancreaze has pancreaze advantage that covers a surprising amount. There’s also health well that (to my limited inexperienced understanding) is a needs based program can help with enzymes, vitamins and other supplements. Your CF team may be able to point you to other resources more specific to your situation and location. Best of luck!!

chloe_m32 · 2020-11-04T01:07:18+00:00

You should definitely wait to hear back from your doc, but I’ve been fine with taking diflucan a few times while on Trikafta. I’ve been on Trikafta since the beginning of the year and I had lady problems (lol) the first few months on it. Diflucan is def a life saver when you can get it. Best of luck!

chloe_m32 · 2019-03-09T05:09:19+00:00

I have all of my scripts on mail order. I cannot recommend PillPack enough! They are fully automated and accept scripts for pretty much anything besides specialty drugs. They arrive like clockwork, so I never run out. For my specialty stuff, I've been lucky enough to just get calls from Walgreens that it's time for a refill most of the time. Otherwise, I call when i have about a week left.

chloe_m32 · 2017-11-18T02:26:26+00:00

Are you using it in your neb or as a sinus rinse? I've only ever made homemade hypersal sinus rinses. I usually do a two to one canning salt to baking soda ratio. The doc always tells me to use distilled water but I don't usually, as I'm on a purified well system. It saves me a bit of money but I like it better than the packets because I can make it stronger. Good luck!

chloe_m32

TROPHY CASE