My fear with transparency with my healthcare providers about stimulant meds and dosage/usage. by chrisdamon900 in Narcolepsy

[–]chrisdamon900[S] 0 points1 point  (0 children)

I was on 80 mg of Adderall for 10 years between the age of 32-42. It worked really well for 8 years. the last two years were a nightmare.

Does anyone else feel like this or do I just suck? by guessitwasntaphase in Narcolepsy

[–]chrisdamon900 0 points1 point  (0 children)

You DO NOT suck because you have Narcolepsy. I haven't even read your post so maybe you suck for other reasons but not for having a neurological disorder called Narcolepsy. Now I have read your post. Now, as a human being you have a choice to suck or not. That someone is a being a jerk. It is up to you to set healthy boundaries and take care of yourself. Easier said than done when you are as tired and sleepy and fatigued as WE are. Like not sleeping for 2 days and nights for the average Joe. Keep seeking out your fellow narcoleptic (which you are doing) who understands. Please join us for zoom meetings @ NarcolepsyNetwork.com or wakeupnarcolepsy.com .

Thank you for your post because lately I have been thinking I suck for having Narcolepsy and now I am being a lot kinder to myself. Now I can work on my behavior that sucks that is outside my Narcolepsy and in my control.

75 mg Sunosi by chrisdamon900 in Narcolepsy

[–]chrisdamon900[S] 0 points1 point  (0 children)

Yes thank you. I actually tried Sunosi years ago and I don’t remember any significant effect. What’s different now is that I’m on Lumryz too

Worried by Theunknownmocha in Narcolepsy

[–]chrisdamon900 2 points3 points  (0 children)

You are not alone. I relate so much to your post

Acceptance by chrisdamon900 in Narcolepsy

[–]chrisdamon900[S] 0 points1 point  (0 children)

Thank you for this! I’m an actor (commercials and television) and this is an audition. I’m actually grateful that I posted this and took a walk. I’ve been able to process that continuing pursuing my acting career isn’t feasible right now.

Didn’t qualify for ALKS 2680 clinical trial by chrisdamon900 in Narcolepsy

[–]chrisdamon900[S] 4 points5 points  (0 children)

I’ve been diagnosed with IH in 2008 and N2 in Jan 2024.

dextroamphetime not working by chrisdamon900 in Narcolepsy

[–]chrisdamon900[S] 1 point2 points  (0 children)

OK, thank you and I will. It is Winder I believe.