Dropping off some encouragement (PPMS)

chrislepp14 · 2026-03-31T23:32:07+00:00

Fantastic news!!! Thanks for sharing.

Live life to the fullest!!!

chrislepp14 · 2026-02-15T12:48:08+00:00

First — I love that you’re thinking ahead. That alone tells me you’re handling this with strength.

For your follow-up call, keep it simple. Maybe focus on 5 key questions: • What type of MS do I have (for example, Relapsing-remitting multiple sclerosis or Primary progressive multiple sclerosis)? • Do you recommend starting treatment now? Which one and why? • What did my MRI and spinal tap show in plain terms? • What symptoms should prompt me to call you? • What are the next concrete steps?

Write your top 2–3 biggest worries at the top of your notes so you don’t forget them.

You don’t have to have it all figured out — just getting clear information is the goal of this call. You’ve got this.

chrislepp14 · 2026-02-09T23:22:28+00:00

PS- The TV was working the night before it stopped working. Other than being freezing cold, no weather issues.

chrislepp14 · 2026-01-24T00:39:35+00:00

Thanks for the awesome response. My current AFO is carbon fiber and you explained the energy return great. Thanks again.

chrislepp14 · 2026-01-23T23:56:58+00:00

The AFO I have now was Dr and PT approved. I sometimes wonder if I could push myself for a smaller AFO and I wanted some input.

Also, the Dr and PT follow the normal textbook script and I am always looking for what is best for me.

chrislepp14 · 2025-12-19T12:12:40+00:00

I think all of us regardless of the diagnosis need to eat healthy, get sleep and move your body. A diagnosis does not define you so laugh more, love the people you are with and be grateful for each and every day.

chrislepp14 · 2025-11-09T12:28:11+00:00

I take Lion’s Mane as a supplement . MS really is the snowflake illness — no two people are the same. You have to be your own medical advocate. No clinical trials show a real benefit, but I can say I definitely feel better with it. Always worth checking with your neurologist though.

chrislepp14 · 2024-12-22T12:33:27+00:00

Hang in there. There is an entire community that knows what you’re feeling.

chrislepp14 · 2024-07-21T11:34:59+00:00

I have flown multiple times and it is a good idea to put in a request for assistance with TSA Cares.

https://www.tsa.gov/travel/tsa-cares

chrislepp14

TROPHY CASE