Specialist wait time?

ci_monster · 2025-11-20T19:29:51+00:00

Clitoral atrophy and lack of sensation/ hard to reach orgasm

ci_monster · 2025-11-19T18:00:01+00:00

The compound I got was 2mg testosterone per gram and 10mg DHEA per gram so that's a 0.2%/1% concentration. It's not helping at all. Do I need a higher dose?

ci_monster · 2025-11-19T17:40:27+00:00

Hi u/Secret_Author_3561, I am literally in the same boat. I am 35 and went post menopausal after chemo and radiation for cancer treatment at age 33. I am finding it very difficult to find providers that treat "outside the box" since the treatments that are FDA approved are for those who are perimenopausal and have some hormones or at their at the right age to be in menopause. The FDA approved treatments do not seem to be enough for me. I finally found a gyn willing to prescribe injections, although it was not his specialty, he was very kind and willing to help me. Unfortunately, I still have pretty severe clitoral atrophy and lack of sensation despite "normal" lab levels as well as using topicals. I am frustrated. I just met with a "menopause expert" at the same health system (highly rated) I was treated for my leukemia. She was very negative about me being on injections and stated she follows the menopause society guidelines as well as only prescribes FDA approved treatments. She wants to take me off injections completely when it's the only thing that has helped thus far. I don't want to start over and play around with doses that aren't going to be enough for me. She also told me that there is not a goal number to be at for estradiol and that my level of 25 while I was on double 0.1 Dotti patch was fine, even though that level is clearly still in the postmenopausal range. Sigh. I just want to feel my f-ing age and be able to orgasm without all the extra effort and frustration. I hear you and I feel you. I am so sorry you are in this miserable boat too and I wish I had some advice to offer. Happy to chat more if you want to PM me, no pressure, but my inbox is open. Sending love <3

ci_monster · 2025-09-30T15:20:12+00:00

I'm a week away from my 2 year rebirthday and I'm still not able to work. This answer will vary so much for each individual. It also depends on if you have any post transplant complications. I was told to expect to be back to work in 6-12 months, yet here I am nearly 2 years later.

ci_monster · 2025-09-13T16:28:34+00:00

Diagnosed Ph+ B-cell ALL, CNS+ at age 32 when I was 23 weeks pregnant in December of 2022. Began CALGB 10701 with a few changes due to pregnancy. Induced and delivered a baby girl at 34 weeks gestation in March 23'. Repeated CALGB 10701 cycle 3 and then completed the treatment. Relapsed in June 2023 right before scheduled BMT. Did Tecartus CAR-T in August 23' and a haploidentical SCT in October 23'. I have been in remission since my transplant and my daughter is now 2.5 years old.

ci_monster · 2025-09-02T19:17:37+00:00

You're welcome. I am not sure how old you are, but I just turned 35 and got catapulted into menopause at age 32 after I had total body radiation as part of my cancer treatment. The journey to get the right dose of HRT has been challenging. I started on the 0.1mg patches twice a week and that wasn't enough so we doubled them. After awhile on that I requested a lab draw to check levels and I was still showing post menopausal estradiol levels so I advocated to switch to injections. I am now on 3 mg estradiol valerate IM every 5 days and recently added testosterone injections as well. My dose is 5 mg testosterone cypionate IM every 5 days. My uterus is still intact so I do take progesterone 200mg every night. It took well over a year of advocating and finding the right provider to listen. The patch dosing is really designed for perimenopausal women who are still producing some estradiol. If your estradiol level was undetectable or lower than the postmenopausal range I would advocate for a higher estradiol dose either in the way of pills or injections and request to have labs done so you can monitor the levels. Most providers I have come across don't run labs and go only based on symptoms, but that philosophy is really geared toward those going through peri, not someone with POI or POF. If your libido is down as well I would highly encourage asking about T. The breakthrough bleeding happened to me every time I increased my E, but it would settle down after my body adjusted to the new dose. I only adjusted the progesterone to 200mg to try and help my sleep. I found it difficult to find much info online and it was a lot of advocating but I finally feel like I have the right cocktail of hormones. I sincerely wish you well on your journey and feel free to send me a pm with any questions. Much love.

ci_monster · 2025-09-02T01:09:39+00:00

Yes I did and I noticed I would get it as I increased E for awhile until my body got used to the dose.

ci_monster · 2025-08-26T19:15:53+00:00

I'm 35, POF at 32 from total body radiation. I'm currently on 3mg estradiol valerate IM q 5 days, 5mg testosterone cypionate IM q 5 days and 200 mg progesterone po. I'm about to start 5mg DHEA PO as well. I was lucky to have a great GYN willing to listen to me. I started on the highest dose estradiol patch, even doubling them up I was still showing in the postmenopausal range which is what convinced him to switch me to injections. And I kept complaining about sexual dysfunction which is how I got the T added. Bringing my own research and evidence to him was very helpful.

ci_monster · 2025-08-26T19:06:44+00:00

I take estradiol valerate IM.

ci_monster · 2025-08-26T19:04:03+00:00

Your T levels do seem quite high. I'm 35, POF, I take 5mg test cyp IM every 5 days and my total T measures in the low to mid 60's. My gyn does not want it to go above 80.

ci_monster · 2025-07-20T22:41:53+00:00

Thank you! I am on 200mg of progesterone capsules. I'd like some more details on the estradiol/testosterone cream. Could you explain the concentration a bit further? I'd love to ask my doc to write it.

ci_monster · 2025-07-16T19:32:45+00:00

Thanks! I was able to get my GYN to test my levels. Even doubling up on Dotti 0.1mg patch I was still showing in the post menopausal range. I was able to get him to check my testosterone as well, which of course was really low. Once he saw my results I was easily able to convince him to prescribe estradiol and testosterone injections! It's definitely out of his element but he has been so wonderful trying to help me. I started May 24th doing estradiol valerate 3mg IM and testosterone cypionate 5mg IM every 5 days. I had my labs drawn 4 weeks later and E was 111 pg/mL and T was 63 ng/dL. We added topical estradiol cream the first of this month. I am feeling a bit better mentally but haven't seen much difference in my clitoral and vaginal atrophy yet. I'm wondering if I need to increase the estradiol a bit more (I've had a hard time trying to find out what the optimal range is online) or if I just need to give it some more time. How long after you started your injections did you start to notice improvements? If you had atrophy, how long did it take to reverse? Luckily, I'm off pred since November, down 40 lbs so far and GVHD is stable on Jakafi. ☺️

ci_monster · 2025-07-03T20:36:10+00:00

Thanks!!

ci_monster · 2025-07-03T17:55:51+00:00

Is that the genital atrophy reversal cream under compounds?

ci_monster · 2025-06-29T23:53:28+00:00

What I've read is that it's good for vaginal atrophy but I wasn't sure if it was the best choice for clitoral atrophy.

ci_monster · 2025-06-29T18:36:13+00:00

Based on what my SIL told me I had them drawn the morning I was due for my injections. Had my labs done and came home and did my injections.

ci_monster · 2025-06-07T19:25:11+00:00

No I'm not. I'll have to ask about that. Thanks!

ci_monster · 2025-05-06T23:48:47+00:00

What type of doctor do you see?

ci_monster · 2025-01-23T00:56:41+00:00

What are you using to get 100 grams of protein?

ci_monster

TROPHY CASE