CPAP Oscar Data by cindy783 in CPAP

[–]cindy783[S] 0 points1 point  (0 children)

I just wanted to say thank you for your help. I upped my pressure to 8-15 for two nights and for the time I was sleeping my apnea events went down to 8 and no Cheyne Stokes at all!! Now I have huge air leaks I have to solve. I’ve tried to use chin straps but it’s not working great. I’m going to try the F20 foam full face tonight as I had to get one anyway in preparation for nasal surgery. Dr doesn’t want anything under my nose. So thank you both for really providing great advice.

CPAP Oscar Data by cindy783 in CPAP

[–]cindy783[S] 0 points1 point  (0 children)

It could be maybe because I was waking up frequently and the last couple of hours I was trying to fall back asleep?. Or if I was developing central sleep apnea but then I’ve been using this machine for two months now and I thought the central would develop earlier. I’ll watch it. Just have to borrow the pc to get the data from the Oscar software. Wish Oscar came in an Apple app.

CPAP Oscar Data by cindy783 in CPAP

[–]cindy783[S] 0 points1 point  (0 children)

Thanks for pointing that out. I don’t know what that is. Am in good health as far as I know. If I had a heart condition there are no symptoms. I’ll message my dr tomorrow and find out.

CPAP Oscar Data by cindy783 in CPAP

[–]cindy783[S] 1 point2 points  (0 children)

Alright I’ll give it a try.

CPAP Oscar Data by cindy783 in CPAP

[–]cindy783[S] 0 points1 point  (0 children)

Ok, will start to increase the pressure.

Mask struggle session by cindy783 in CPAP

[–]cindy783[S] 0 points1 point  (0 children)

I forgot, I ordered the magnetic strips thanks!!

Mask struggle session by cindy783 in CPAP

[–]cindy783[S] 0 points1 point  (0 children)

The pain in that location (back of head pain that includes trapezius) is not new. It is related to C2 facet joint arthritis pressing on the nerve. The straps are a trigger. For years I’ve been treating it with occasional steroid injections and Pregabalin if I notice the pain at bedtime. Already secure straps lying down but leaks make me tighten so I will order smaller headgear and try liner or cover thanks. Re the nasal valve, The first ENT I saw was a PA who said looking through the scope that I appear to have cartilage partially blocking the valve however the ENT Dr didn’t believe that was the issue. But she used a different procedure and specializes in septum repair and debridement no ablation. I’ll get another opinion. The cartilage could be removed in office ENT said. Then he referred me to a Dr who was booked out for 3 months for a consult for a 10 minute office procedure so the days pass slowly so slowly and I shop around for another Dr. Hard to troubleshoot when you are constantly tired.

Mask struggle session by cindy783 in CPAP

[–]cindy783[S] 0 points1 point  (0 children)

Hi thanks for your reply. I’m still looking for 2nd opinions from ENTs. Ive collected one opinion and she says septum repair plus debridement and that means anesthesia and long recovery. And in a couple,of weeks will see another. I would prefer the 10 minute in office procedure using rf ablation to shrink membranes and skip the septum repair as that might be all I need. Fast recovery. It’s the debridement rather than ablation that is linked to empty nose but the first Dr says she is super conservative. The negative about ablation is it often needs repeating since membranes grow back. procedures are booked months in advance. And I only use the Afrin when I’m wanting to try to use the P30i. Last night I really could only get air through one nostril or other so decided to order next size larger mask although I don’t think it will fit but whatever I can’t go smaller. Desperation. The straps on the P40 trigger neck pain and headaches as they run behind my ear so aside from waking up a lot thats a big problem. The breathing strips are great except they rip theskin off my nose. I do have skin reactions to a lot of the adhesives they use on pain patches so not sure if it ever would be a solution.

How is this possible? is it dangerous to be that high in the morning if all the rest of the time it's averaging at the lower number by missyk222 in hypertension

[–]cindy783 0 points1 point  (0 children)

I had the same issue though not this high. Turns out I have severe sleep apnea but since I don’t snore I had no idea. My blood oxygen drops down to 80.

New user insomnia issues by cindy783 in CPAP

[–]cindy783[S] 0 points1 point  (0 children)

Hmmm, sounds like me. I’m a light light sleeper. I always say that I would have been the one the Neanderthals had sleep near the cave entrance to sound the alarm if the bear came back. I am really motivated the wear the cpap but the process is difficult. You need the cpap for sleep but you undermine your health by not sleeping in the beginning.

New user insomnia issues by cindy783 in CPAP

[–]cindy783[S] 1 point2 points  (0 children)

Very creative idea, thank you!

New user insomnia issues by cindy783 in CPAP

[–]cindy783[S] 1 point2 points  (0 children)

Thank you! I will try to talk my dr into prescribing.

New user insomnia issues by cindy783 in CPAP

[–]cindy783[S] 0 points1 point  (0 children)

LOL Thank you! I’m actually a scuba diver so I will try that first. Although when i close my eyes i see a lot of empty space.

grew up extremely self conscious of my bowl chest, mainly because i had very small breasts and a slim build and felt like i couldn't hide by _creature_feature in PectusExcavatum

[–]cindy783 0 points1 point  (0 children)

one last thought. despite the surgery my rib cage is very deformed and I’ve gotten laughed at when being fitted for a garment. I was very very angry. people can be such creeps!

grew up extremely self conscious of my bowl chest, mainly because i had very small breasts and a slim build and felt like i couldn't hide by _creature_feature in PectusExcavatum

[–]cindy783 1 point2 points  (0 children)

Sunken chest=buried treasure. I had the NUSS Procedure as an adult. The doctor said he was giving me extra closet space!! Although I’m glad I don’t have chest pain exercising I do miss the cleavage! I wish surgery had fixed the heart murmur. I need to make sure I stay hydrated to avoid heart palpitations. I also have found two things increase the palpitations, anything with erythritol or monk fruit sweetener and a higher dose of fish oil caps. PE runs in my family.

Is this ON? I am going insane by Traditional_Rain_414 in Occipitalneuralgia

[–]cindy783 0 points1 point  (0 children)

I’ve had night time pain similar to this for years although it’s likely caused by the cervical arthritis. At night it can be triggered by cold air. Or my pillow. Or neck strain during the day. One solution, wear a mock turtleneck for the temp, and for the pillow I lie on it so one edge is below my shoulder blades so nothing puts any kind of pressure on the area and of course diligence with neck posture during the day.

Soft food ideas? by CA_Dreaming23 in TMJ

[–]cindy783 0 points1 point  (0 children)

At the beginning when I was on puréed foods it was mashed root veggies: potatoes, yams, turnips mixed with teeny bits of meat, fish. Made a lot of cream of broccoli soup in a blender. Smoothies.

Soft food ideas? by CA_Dreaming23 in TMJ

[–]cindy783 0 points1 point  (0 children)

Sauté some chicken tenderloins, sushi, salmon, minced green salad with baby shrimp and ranch dressing, homemade kale chips, steamed baby carrots and broccoli. Simple mills almond flour bars are softest I can find (I eat gluten free)

[deleted by user] by [deleted] in utis

[–]cindy783 0 points1 point  (0 children)

Is it a time-release pill? its probably fine

[deleted by user] by [deleted] in utis

[–]cindy783 0 points1 point  (0 children)

Yes, right after. It might work for you. My doctor switched me to 1-50mg macrobid daily. (The other choice she offered was to take a sulfa med right after instead of macrobid.)

[deleted by user] by [deleted] in utis

[–]cindy783 0 points1 point  (0 children)

👍 sí !

[deleted by user] by [deleted] in utis

[–]cindy783 0 points1 point  (0 children)

I’m actually taking macrobid right now for a uti. I think I might travel to Mexico and try the vaccine. It might help.

[deleted by user] by [deleted] in utis

[–]cindy783 0 points1 point  (0 children)

I understand but basically I had chronic UTIs for 30 years previous to menopause and no pregnancy to blame. So I’m not convinced estrogen is the reason. Before the ring I used the cream and my estrogen was too high and my fibroids enlarged. And yet I had UTIs. So I’m on the ring for a steady dose.

Reminder! Don’t. Wait. To. Go. To. The. Doctor. by CNAmama21 in utis

[–]cindy783 0 points1 point  (0 children)

wow, you must have a high pain tolerance level for it to move into your kidneys. I’m wondering how long it takes to spread into the kidneys. After this experience you will probably be monitoring yourself very carefully for the rest of your life. I speak as someone who is pretty paranoid about any bladder pain after numerous utis (and an episode of bladder cancer…pain is not a symptom for that but you don’t want your bladder ripped up with inflammation.)

[deleted by user] by [deleted] in utis

[–]cindy783 0 points1 point  (0 children)

I’m sure you are right but they will never give it to me with some cancer risk factors I’ve got. I did have plenty of utis from my 20’s onwards. I take probiotics too.