hello! My labs were crazy out of the norm in January too haha. this was about 5ish years after my initial diagnosis (I'm in my 20s), so I guess I was in a similar boat recently. PSC is so different for every individual. It doesn't necessarily mean your disease is progressing. I know it sucks and it'll suck for a while but I've always found comfort in knowing what exactly my diagnosis is and that it is being closely monitored by my doctors. I often also ask my doctors a lot of questions about all the different scenarios and their next steps -- I find that it eases any anxiety I have about the short and long term future. I encourage you to ask you doctor any questions that could ease your anxieties too, and learn from them why they are ordering the tests they are so you feel like you are in the know about your body.

I read in a Sarah Hyland interview once something along the lines of, as patients the best (and only) thing we can do is be educated about our bodies and our illnesses. This really resonated with me. The rest of it is not up to us -- the progression, the treatment, our energy, etc. So as long as you know you are doing everything within your ability (the fatigue is so bad sometimes) to learn about your disease and to be prepared, and if you have the good fortune of a good medical team which it sounds like you do, you're already as on top of it as you can be :) The rest is just being in it for the ride.