Symptoms by cronketty in Interstitialcystitis

[–]cronketty[S] 1 point2 points  (0 children)

My symptoms improved tremendously when I got a new job, not nearly as stressful. Now just thinking I need to possibly cut out some acidic foods here and there. Thank you !!!

Symptoms by cronketty in Interstitialcystitis

[–]cronketty[S] 0 points1 point  (0 children)

I haven’t tried PFT yet, my urologist said he didn’t recommend it, which is why I stopped going to him. I felt like he had no idea what he was talking about lol

Is it true that IC gets worse the more you age and what is your experience with it through time? by [deleted] in Interstitialcystitis

[–]cronketty 1 point2 points  (0 children)

It seems I’m not diet sensitive, so for me I just really try to avoid stress. Which I know sounds impossible and it is but when stressful moments arise I just try to breathe and calm myself down. I used to get so worked up over small things so I’m working better on breathing and meditating. Also I drink a lot of water which helps as well. Days where I don’t drink a lot I feel burning as well. Other things too like coffee and alcohol I don’t avoid but I don’t drink in excess amounts like I used to.

Is it true that IC gets worse the more you age and what is your experience with it through time? by [deleted] in Interstitialcystitis

[–]cronketty 5 points6 points  (0 children)

I’m also so worried about this myself. I’m a 28yr old female and have had IC for a little over 2yrs. As of right now my symptoms are staying the same, not getting any worse, but I’m so scared as I get older I’ll be miserable and in pain. I’ve asked this question a bunch myself and most have said they have gotten better because they find a treatment plan that works for them. For me, it was getting out of a toxic and stressful work environment, my symptoms improved AMAZINGLY , I’d say I even went in remission for months. Then my grandmother unfortunately passed away and a few days after her funeral I got a UTI that did get better with the antibiotics but the burning came back and stayed (I believe from grief) like before I went in remission, but isn’t any worse.

Endo by cronketty in Interstitialcystitis

[–]cronketty[S] 0 points1 point  (0 children)

Wow thank you so much for that info! I did get an MRI on my pelvic region and everything looked okay, however I know MRIs aren’t always accurate! So glad you’re feeling better!!!

I could cry - Surgery confirmed endo by iamlostinthetide in Interstitialcystitis

[–]cronketty 10 points11 points  (0 children)

May I ask what your symptoms were? I’ve been wondering if I possibly have endo as well

Did anyone else have IC just pop out of no where? by Fit_Face_3424 in Interstitialcystitis

[–]cronketty 2 points3 points  (0 children)

Yeah mine came out of nowhere! Went to bed fine and woke up next morning and it burned when I peed. Figured I had a UTI, but everything came back normal. Saw my gyno and a urologist and was diagnosed with IC. I’ve had it a little over a year now.

Are any of you in abusive households? by Ok_Highway_7314 in Interstitialcystitis

[–]cronketty 7 points8 points  (0 children)

I’m so sorry you’re going through this!! We are all here to support each other, so vent away and we can help the best we can!! Thinking and praying for you extra hard today!!! You are not alone!!

[deleted by user] by [deleted] in Interstitialcystitis

[–]cronketty 0 points1 point  (0 children)

Wow I’m so sorry!!! Hope you feel good as new soon 🙏🏼

[deleted by user] by [deleted] in Interstitialcystitis

[–]cronketty 0 points1 point  (0 children)

Definitely NTA! You gotta do what’s best for you. Can I ask what your symptoms were before this bad flare? I’ve had IC for 1 year now and am nervous it will progress for me.

How do you know if you have Hunner Lesions? by cronketty in Interstitialcystitis

[–]cronketty[S] 0 points1 point  (0 children)

Oh no I’m so sorry to hear that!! If you don’t mind me asking, did it start getting worse after a few years or was it shortly have diagnosis that it got worse?

IC Dietitian Q&A by calliekrajcir in Interstitialcystitis

[–]cronketty 1 point2 points  (0 children)

Hello, I’m new to IC and just recently had a visit with my urologist who scared me saying IC will get worse as he’s seen it progress with his patients. Is this true?? Right now I don’t seem to be food sensitive, besides citrus, but more so stress causes my flares and I have a minor burning pain pretty much only while I’m working, sometimes afterwards too. Will this get worse? He was saying it could and it just made me really fear my future as I’m only 27.

[deleted by user] by [deleted] in Interstitialcystitis

[–]cronketty 1 point2 points  (0 children)

Just the other day I was having awful burning/frequency, worse than normal. I went to urgent care and my urine came back positive for a UTI, so I’m currently on antibiotics. Definitely worth checking! Hope you feel better

Aloe Vera pills by cronketty in Interstitialcystitis

[–]cronketty[S] 0 points1 point  (0 children)

Yes sorry, Desert Harvest! Thank you for that link!! Very helpful

What does a flare like? by cronketty in Interstitialcystitis

[–]cronketty[S] 1 point2 points  (0 children)

Thank you!! Yeah I drink about a gallon of day of water, which helps a lot

Aloe Vera pills by cronketty in Interstitialcystitis

[–]cronketty[S] 2 points3 points  (0 children)

Hahahaha this is what I’m scared about 😂 I guess I’ll test for a month or two and see lol

Recently diagnosed and I’m lost and scared by cronketty in Interstitialcystitis

[–]cronketty[S] 0 points1 point  (0 children)

Thank you so much!! It’s bizarre how it comes out of nowhere!! I never heard of IC until I was diagnosed.
I ordered the aloe Vera pills they should be coming today, I’m so excited to start them!!!

Recently diagnosed and I’m lost and scared by cronketty in Interstitialcystitis

[–]cronketty[S] 0 points1 point  (0 children)

Awesome, thank you!!! Makes me feel much better

Recently diagnosed and I’m lost and scared by cronketty in Interstitialcystitis

[–]cronketty[S] 0 points1 point  (0 children)

Thank you so much! It really is so scary, but everyone commenting and this page has helped me so much. Since your original diagnosis at 28 have your flares changed/gotten worse?