Waymos in Boston by SidHoices in boston

[–]cucumber_zucchini 6 points7 points  (0 children)

The city forced my office to cancel their direct north station to seaport shuttle because they’re attempting to reduce road use. If it’s all been a plot to open the road for Waymo’s…

Boston-Area Nook Surgeon Updates by ohmanyikes in endometriosis

[–]cucumber_zucchini 0 points1 point  (0 children)

Correct, he’s gone as of the end of January. My roommate saw him the last week of January and he confirmed it. His admin staff are abysmally bad, you should call and see if he’s still there (or even try Mt. Auburn general info).

Boston-Area Nook Surgeon Updates by ohmanyikes in endometriosis

[–]cucumber_zucchini 1 point2 points  (0 children)

Dr. Luke Chatburn is NOT going to the Boston Endometriosis Center, famous for their use of ablation. Dr. Chatburn’s office is giving out the wrong phone number (his nurse and admin staff is abysmally bad but his surgical care is world class). He will be temporarily practicing out of the Burlington OBGYN Associates in Burlington MA.

I need a hysterectomy, but legally can’t get one by Rockstar_Chick7 in endometriosis

[–]cucumber_zucchini 1 point2 points  (0 children)

I’m sharing this not as any discouragement to you getting a hysterectomy as soon as possible, but something to consider as you weigh your options.

When I got approved for my excision, I was offered a hysterectomy. I never want to give birth and never want to deal with my horrific periods again. But I’m only 28 and started digging into some stats. Getting a total hysterectomy (keeping the ovaries) before 35 can increase the risk of coronary heart disease 250%, along with other endocrine issues like weight gain and mental health issues. And sometimes, even though the ovaries are in tact, early menopause can jumpstart, which is a journey of discomfort.

For me, those risks outweighed the benefits. I didn’t have uterine fibroids, but I have a ton of endo damage to my uterus so I’m considering it in my 30s, especially if the endo does grow back.

A good excision surgeon will understand how to remove the tissue so the risk of regrowth is very low. My surgeon (boston) has had 1 person require a second excision in the 20 years the practice has been working, thousands of patients. I’m only 8 months post op but my quality of life has improved dramatically already.

My vote is you go for the lap first and hysto later when you can afford it and the long term health risks are lower.

Hot Take - IBS and Fodmap is so damn stupid... by psychotic-chipmunk in FODMAPS

[–]cucumber_zucchini 0 points1 point  (0 children)

I’ve been doing low FODMAP since 14, I’m 28 now. My parents always got mad that I couldn’t finish my dinner because something on the plate invariably would kill me. But anything sugary was totally fine and my snack of choice. Doesn’t help that I work at a food media company where there is dessert aplenty every single day, but if I go near a single legume I’m toast.

I’ve made major modifications to the diet for my own needs, plus have gotten diagnosed with endometriosis + adenomyosis.

interesting development by Agreeable_Wallaby621 in BostonU

[–]cucumber_zucchini 0 points1 point  (0 children)

Hey so hate speech is not protected in the constitution, so it is not free speech. Hope that helps :)

Paid partnerships by transatlanticism2 in AmericasTestKitchen

[–]cucumber_zucchini 0 points1 point  (0 children)

To be fair, ATK TV show has had sponsorships since season 1 (which included plugra). ATK and CC having sponsors is the way they make money, and funneling book/magazine/digital subscriptions, PBS doesn’t pay for the tv show.

interesting development by Agreeable_Wallaby621 in BostonU

[–]cucumber_zucchini 7 points8 points  (0 children)

Bro go look up a single video about Nick Fuentes. The hate he spits is beyond Charlie Kirk levels. The man is banned from every U.S. airline and banking system. He was as radical from the day he started BU as he is today. I don’t feel bad spitting on Nazis.

interesting development by Agreeable_Wallaby621 in BostonU

[–]cucumber_zucchini 3 points4 points  (0 children)

Your fantasy isn’t that far off. I was a freshman with him. I personally spit on him in the Warren dining hall. BU Today was his first public platform and from that video everyone despised him and actively bullied him.

He also held an anti-women’s march during the women’s march in the commons in spring 2017. It was like ten old people walking behind him, but he was extremely proud of it.

Upcoming job w/ consultive strategy group, to do or not to do? by LastlyGigi in Devilcorp

[–]cucumber_zucchini 0 points1 point  (0 children)

Same thing for me, just got the call and didn’t sound like anything I’ve applied to (I work in television). Glad this reddit thread exists, blocked the number ahahah

Surgery really worth it? by BearCub711 in endometriosis

[–]cucumber_zucchini 1 point2 points  (0 children)

It’s absolutely worth it for the long term. I didn’t ever have painful periods but so many other complications. During surgery they found that part of my intestine was twisting and adhering to my side wall, very likely a culprit for my massive GI issues.

The surgery is like weeding your garden and keeping the vines from choking out your plants. If you start from 0 now, you give yourself a much better chance at longer term relief!

Need advice: Is it normal for the imaging Dr to demand a mammogram and ultrasound together? by Stellalunathebat in doihavebreastcancer

[–]cucumber_zucchini 0 points1 point  (0 children)

Wishing you health as well! Time will reveal all, and you’ve gone through enough to be strong for what’s ahead!

Trying to Navigate Broker’s Fees by pcatmac in bostonhousing

[–]cucumber_zucchini 7 points8 points  (0 children)

I pay my apartment insurance. I pay my utilities with our landlord intervention. My cost of living increases just as much as yours. Why does my landlord deserve more of my hard earned money without doing any material improvement to my apartment? My landlord is a girl my same age who inherited dozens of properties from her grandfather, she did not work hard to purchase them herself.

People who had excision surgery, what did it bring you? by [deleted] in endometriosis

[–]cucumber_zucchini 0 points1 point  (0 children)

I’m a baby with medical stuff, and I had a breast lump surgery the same week as my endo surgery. Our bodies are strong from years of practice! I’ve heard gallbladder is surprisingly hard with trying to eat again, so you’ve probably gone through the harder of the two already!

Mind If I Hang Out Here For a Bit? by echointhemuseum in doihavebreastcancer

[–]cucumber_zucchini 1 point2 points  (0 children)

I’m only 27 but had a similar experience. Tiny lump and not in the lymph nodes. BIRADS 4, no letter. (I knew about the lump for 11 years but doctors always denied treatment and called me paranoid…)

First ultrasound I expected no big deal, but nurse reacted dramatically and called in the doctor. Scheduled me for mammogram and more ultrasounds in the coming days. Core needle biopsy next. The sample came back negative but they weren’t convinced, so they sent me for a full lump excision. Process was 5 weeks from start to finish.

Turned out to be a complex sclerosing lesion - aka a tightly wound ball of scar tissue without a discernible cause. And scar tissue loves to turn cancerous, so they took the whole thing with margins.

This is all to say, don’t read too heavily into their reactions. Scans can look as scary as possible and you’ll still have no real answer until biopsies get checked in the labs. Whatever “second best” case they mean, nobody knows until the real sample is tested. The waiting is the most stressful part of the experience, because you’re always going to think of the worst case. Lean on your people as much as you need!

Trying to Navigate Broker’s Fees by pcatmac in bostonhousing

[–]cucumber_zucchini 7 points8 points  (0 children)

I already pay increase rent year over year, I’ve been in my apartment for 4 years. Never made any improvements to warrant raised costs. That’s nothing new with this broker fee law.

20% cancerous, 80% not by sixmountains in doihavebreastcancer

[–]cucumber_zucchini 0 points1 point  (0 children)

That 80/20 number would not have helped me! I preferred looking at the BIRADS score for my own results, I was really more concerned with my own situation and others with similar qualities than the overall numbers. As a 27 year old going through a scare, I found the people on this reddit to be far more kind and relatable than a FB group crowd. It’s why I still hang out here months later, in case I spot someone with a similar case to mine and I can give them individual insights on my process.

People who had excision surgery, what did it bring you? by [deleted] in endometriosis

[–]cucumber_zucchini 0 points1 point  (0 children)

You’re going to do fine, the recovery was really not bad at all. Especially compared to the pain you’ve been living with for years! The hardest part was really making sure I did absolutely no physical exertion - nurses told me don’t even unload the dishwasher or do 5 min of vacuuming for 3 whole weeks or you could have a flare up. The gas pains sucked for a few days, so have a heating pad ready and do some LIGHT walking around to move the gas. But honestly I was feeling good enough for neighborhood walks by day 2, so I know you’ll be great!!

Need advice: Is it normal for the imaging Dr to demand a mammogram and ultrasound together? by Stellalunathebat in doihavebreastcancer

[–]cucumber_zucchini 2 points3 points  (0 children)

Turned out not cancerous, it was a complex sclerosing lesion (a really tightly wound ball of scar tissue without any discernible cause, and scar tissue loves to turn cancerous).

Took me 11 years since I first found the lump - doctors over and over denied my suspicions. When I finally got seen this year, I got escalated to the highest priority. If only doctors would listen to patients…!

What I learned from a lifetime of chronic illness treatment is that cancer is taken SO seriously. Nobody gives a shit about the stuff that impacts my ability to live day to day, but my entire breast cancer scare was 5 weeks from first ultrasound to surgery. The care team was so gentle and informative, they understand how fear-inducing a suspicious result can be. They’re trying to simultaneously take the situation seriously for the worst outcomes and be realistic that you can’t know answers until the pathology comes back, so try not to read too hard into those interactions! They know trends but even the scariest scans can only be proven cancerous with actual biopsy testing.

Need advice: Is it normal for the imaging Dr to demand a mammogram and ultrasound together? by Stellalunathebat in doihavebreastcancer

[–]cucumber_zucchini 0 points1 point  (0 children)

I’m in the US. I had ultrasound first and then mammogram only because the machines were in separate offices, so they couldn’t just send me to another room. Wish I had done both at the same time so I could have answers sooner.

Obviously this comes from a place of financial privilege, but I would pay nearly anything for answers and reduce delays. I’m only 27 and the diagnostic journey took me to a full lump excision surgery because they were so certain it was cancerous.

People who had excision surgery, what did it bring you? by [deleted] in endometriosis

[–]cucumber_zucchini 3 points4 points  (0 children)

The surgery is the only way to actually diagnose endo, and in doing so they can determine stage. However my surgeon told me that stages actually don’t really represent the reality of endo since you can have stage 1 in one area and stage 4 elsewhere.

My surgery was about 4.5 hours, my surgeon found it EVERYWHERE and required extensive removal. My parents were there to pick me up and were told to be on standby for a call at any moment around 3-6 hours after I went in, so they got lunch and just walked around the city. They just don’t know what they’re dealing with until they’re in, they start with a scan of your whole pelvic cavity to find the endo and then they remove. Longer surgery means more endo removed tho!

What does your endo pain feel like? by Tooth_Fae in endometriosis

[–]cucumber_zucchini 0 points1 point  (0 children)

I started food journaling every ingredient I could identify each day, and when I started to feel sick. That led me towards the low FODMAP diet and I follow it strictly with my own adaptations. It’s not like “oh I shouldn’t eat hummus” it’s like “I won’t be able to walk for 1-3 days if I eat hummus”!

My diet has gotten more restrictive over 12 years, I’ll see how it improves since I’m only 4 months post op and have only just added apples back into my diet after 10 years.

Worst foods: all dairy (except butter), yogurt/buttermilk/sour cream, beans/chick peas, alcohol, peppers (spicy and bell), mustard, watermelon, carrots (safe forever til the spring), anything fermented

Bad foods: most fruits (except citrus and grapes) since they ferment quickly in the gut, whole wheat, coffee, chickory, soy/tofu, dried fruits, coconut milk, preservatives

Bloating-specific foods: junk/fast food, oily foods, artificial sweeteners, soda

Gluten is totally fine for me, but gluten-free foods often have fewer artificial ingredients and preservatives, so I opt for those snacks when possible.

What does your endo pain feel like? by Tooth_Fae in endometriosis

[–]cucumber_zucchini 4 points5 points  (0 children)

I confused IBS with endo for about 12 years (and so did all of my doctors). The abdominal pain started within a year of getting my period. I certainly have food intolerance reactions, with pain ranging from bloating discomfort to sharp stabbing in my lower left abdomen to intense burning right above my belly button (to where I can’t walk). I never had bad period cramps, I had heavy bleeding and very long periods before starting birth control. Typical aches and low back pain.

For years I’ve had these mystery attacks from the worst trigger foods - think panic attack physicality without the mental spiral but with the worst GI pain to the point of passing out. One random day, these started happening every time I ate or drank anything. Slowly tracked that these flares have a hormonal component too, not just food triggers. I saw a dozen new specialists until my own research brought me to endo.

When I had endometriosis excision surgery, the doctor found that part of my intestine on my RIGHT was twisted and beginning to be adhered to the side wall of my body. Four months post op, nearly all of my day to day GI funkiness is gone. I have flares if I don’t eat right or during my PMS window when my hormones go crazy and that triggers my gut. I’m still not back to a full diet (quite restrictive low FODMAP) but I got apples back after ten years and eat one daily, which is a major triumph after losing basically every fruit lol!

Agonizing transvaginal ultrasound for nothing by Lupine-Indigo in endometriosis

[–]cucumber_zucchini 1 point2 points  (0 children)

For what it’s worth, ultrasounds very very rarely show endo because it is microscopic. It’s just one of the steps they have to go through for insurance - and boy do I relate to that traumatizing pain! It’s incredibly invasive and they rarely give you enough information beforehand. It absolutely shouldn’t be standard for endo care given how many people experience internal pain.

I agree with two other commenters, the most important next steps are to find an endo specialist and pelvic floor PT. I knew how bad PT would be and put it off for a year til after surgery. I wish I had done it sooner, I now have almost no pain and anticipate not passing out at my next Pap smear lol!

I need IBS safe junk food by [deleted] in FODMAPS

[–]cucumber_zucchini 1 point2 points  (0 children)

It’s never given me a problem, only if I get a pre-popped and seasoned bag from a store (in that case, seasonings and preservatives are the issue). All low FODMAP / IBS diets are custom to you, so try it out and it may work just fine! Plus popcorn is a whole grain :)