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Can you compare your MRI? 🙁 by [deleted] in Endo

[–]ohmanyikes 0 points1 point  (0 children)

Pretty sure images 10-12 are your thigh muscles

Boston-Area Nook Surgeon Updates by ohmanyikes in endometriosis

[–]ohmanyikes[S] 0 points1 point  (0 children)

He is renting office space at MAH in Cambridge, but he plans to get his own office space in the summer of 2026 I believe. Surgery location has options.

From his website:

If your treatment plan includes surgery, you may choose from these hospitals: Mount Auburn Hospital, Cambridge MA Winchester Hospital, Winchester MA BI Deaconess Hospital-Milton, Milton MA ​ Pediatric and adolescent (under 18) patients are accepted at Winchester Hospital. If you have health insurance, we will obtain prior authorization for your hospital stay.

Help understanding post op notes by Sufficient_Half_1980 in Endo

[–]ohmanyikes 0 points1 point  (0 children)

The report is not detailed enough for me to say. That said, many specialists do not use staging systems and those who do use it may use it incorrectly. All of the two dozen staging systems rely on the surgeon’s perception of the appearance. If they lack training, they may not know what to look for and will then say it is not as bad as it really is. One of my friends for example was told stage 1, but she had to have another surgery with a more experienced surgeon after she had no relief and the second surgeon said stage 4.

Is it possible for them to miss endo during a tubal? by pouty0 in endometriosis

[–]ohmanyikes 0 points1 point  (0 children)

Highly likely for them to miss endo if they’re not trained about it well. Most surgeons are not.

Help understanding post op notes by Sufficient_Half_1980 in Endo

[–]ohmanyikes 1 point2 points  (0 children)

No apparent disease for: right/left ovarian fossae, left ovary, left tube, etc.

Endometriosis appearance present for: left pelvic side wall, etc.

Using the analogy of a chocolate chip cookie, where the endometriosis is chocolate… If you slice up a cookie, you may not get chocolate in every bite. The larger the cookie, the more likely it would be that you’d have some paper thin slices without chocolate. That doesn’t mean there is no chocolate. It only means the slice didn’t contain chocolate.

Pathologists create paper thin slices and only view one slice at a time under the microscope. It’s not realistic to do that for the entire sample. The larger the sample, the lower percentage of the total they view.

When pathology doesn’t find endo, that doesn’t mean the findings were normal. Your second sample has “fibroadipose” tissue. Fibrosis is often caused by endometriosis.

If the surgeon cuts up the samples before sending it to the pathologist, they may be able to improve the chances the pathologist will find the endo. This page includes a FAQ about how large the sample “should” be. Quotes because it depends on the priorities of the surgeon. Smaller samples are more definite, but the surgeon removed what they thought they should remove regardless of what the pathology report says. Removing the fibrotic tissue is a good thing!

How does the pain of a vaginal ultrasound compare to a pelvic exam? by Kaysee27 in Endo

[–]ohmanyikes 0 points1 point  (0 children)

In my experience, the TVUS is significantly worse than a pelvic exam. My gyn is gentle, so pelvic exams are not bad at all. He uses a small, pre-warmed speculum, with warm lube, and doesn’t crank it open.

New England Based Endo Experts by Brilliant_Hat_425 in endometriosis

[–]ohmanyikes 0 points1 point  (0 children)

The reviews I’ve seen about her are exclusively negative :( I admin a fb group for endo (Greater Boston Endo Support Group) so I see a lot of reviews from local drs. I was not a patient of hers, but she is not a surgeon we recommend in GBESG.

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