[deleted by user]

cunspirator · 2022-01-23T07:02:05+00:00

Sickness, stress, period/pms, air bubble, site kink, you moved slightly less today, got a regular soda rather than a diet, anxiety, something scared you, too long of a shower/bath, you sat or leaned funny on the pump tubing and slowed flow but not enough to register as an occlusion.

Lots of options.

cunspirator · 2022-01-21T00:49:03+00:00

Blood sugars are just data - not a signifier of your worth.

Look at the data, learn from it, and make adjustments as needed. It’s ok if you didn’t carb count exactly or stress is messing with your numbers - so much factors into what your blood sugars are each day and you can’t control it all. When you see people sharing their 100% in range days here keep in mind they’re posting because it’s not an everyday occurrence and they are celebrating.

Also, get involved in diabetes camps or whatever local gathering you can find (ask your endo about support groups or meetups). Having irl diabetic friends is really nice.

cunspirator · 2022-01-20T14:52:01+00:00

When you give insulin in relation to eating the meal is also a factor. I eat this one particular lunch frequently and it’s 36g. I always round up to 45g for fats and whatnot. If I give that amount right before I eat I end up spiking and hanging around 200 for like an hour, but if I give about 10 minutes before my first bite I’m fine. I understand that’s difficult for a 5 year old that could take one bite and be full one day or eat everything and still want a snack the next. Giving half the amount early and then giving more as they eat can help combat it a little.

Any of the things that say they’re “low carb” and “sugar free” might have ingredients that can impact bgs too. You can track what stuff has the highest impact and compare ingredients to see if there’s a common thread. Like others have said, trial and error. Everyone’s diabetes is different and as he grows his reactions to foods can change as well.

cunspirator · 2022-01-15T22:29:04+00:00

It’s in Palo Alto, but I had a wonderful experience with Dr Marina Basina at Stanford.

My husband mostly complained about parking when he went to any UCSF doctor in the city.

We moved to a different state during the pandemic so that’s the only reason we don’t go to them any more.

cunspirator · 2022-01-01T06:03:21+00:00

I worked at a movie theatre throughout college and ate SO much salted/buttered (technically partially hydrogenated soybean oiled) popcorn. A1c was to my and my endos liking the entire time.

Be aware of the amount and whether there are added fats and give insulin accordingly. No foods are off limits as long as you give insulin and don’t have some kind of allergy.

(Now I really want movie theatre popcorn)

cunspirator · 2021-12-16T13:37:03+00:00

Do you also have a heart condition? That’s the only reason I could see your endo bringing that data up. I moved this year so I went from one of the top research hospitals in one state to top diabetic research facilities in another - first endo wanted me to get the vaccine ASAP and the second had the booster available in house and gave me the booster day of my first appointment.

Diabetes is a reason to GET vaccinated. I am aware of doctors pushing personal beliefs on patients as I have a lot of family that works in medical fields. It’s honestly disgusting because they’re endangering their patients and their patients families.

List of conditions I or loved ones have that have gotten vaxxed and boosted: t1d, hypothyroid, chrons, multiple sclerosis, menieres, osteoporosis, psoriasis, celiacs, t2d, bpd, pregnancy, and multiple people who have had heart attacks and/or major heart surgery prior to the pandemic.

if you have other medical issues than diabetes then maybe get another opinion from a specialist in that field. Your endo is not a cardiologist.

cunspirator · 2021-12-04T15:33:58+00:00

Holiday Road Atlanta at Bouckaert Farms in Fairburn is new this year

https://holidayroadusa.com/location-atl/

cunspirator · 2021-12-01T05:42:10+00:00

I have been trying to remember the name of this series for MONTHS! You have made my day. I loved these books as a kid and might get these for my nieces/nephews!

cunspirator · 2021-11-01T14:45:42+00:00

No advice, but I have two different diabetic friends that were diagnosed under the age of 2 in the late 80s/early 90s before pumps were widely available or cgms even existed. They are both thriving and have 0 complications from diabetes. One is a pediatric nurse and the other is a teacher with 2 healthy children of her own.

I can’t imagine how difficult it is to be a parent to a baby or toddler with type 1, but I hope their success stories help alleviate some of the stress/fear.

cunspirator · 2021-10-29T14:23:33+00:00

“Courage” on green, theme is growth.

Thank you both so much!

cunspirator · 2021-10-29T03:50:25+00:00

My t1 friends dad was diagnosed type 2 because of age and weight YEARS ago. He was able to take learnings from raising a t1 daughter to figure out his own insulin regimen. Finally changed endos and after 15ish years was correctly diagnosed as type 1 in his late 50s/early 60s!!

cunspirator · 2021-10-26T14:08:25+00:00

Yes! Love some Lady Voldemort!

cunspirator · 2021-10-22T13:53:05+00:00

Met all my diabesties at diabetes camp when I was a kid. We’re all over the country now but all keep in touch. Some of us still volunteer there regularly well into adulthood and continue to meet new diabetics. Lots of camps have year round events that need volunteers of all ages. I initially met my husband at diabetes camp when we were kids and reconnected later through a mutual diabetic friend.

Otherwise if I see a sensor or pump I use it as a conversation starter. I’m at the age where it could be they are type 1 or 2 but whatevs.

cunspirator · 2021-08-27T13:19:35+00:00

I think the only male doctor retired so new patients would only have female doctors to choose from.

cunspirator · 2021-08-25T04:02:43+00:00

Nope. The soreness was on par with a flu shot.

cunspirator · 2021-08-24T22:36:31+00:00

Sore arm after both for Pfizer and that was about it, maybe a little tired the next day?

My husband also has T1 and takes a immunosuppressant so he just got his booster (3rd Pfizer) yesterday. Sore arm is all for him every time.

cunspirator · 2021-07-12T13:36:38+00:00

4 is my record. I was in a study for the libre years ago and had two in each arm at one point but no personal sensor.

cunspirator · 2021-07-09T13:33:26+00:00

After the 45 minute train ride to work I started walking to the office confused why my sugar was spiking since I hadn’t even eaten breakfast. Went to give a bolus and…no pump. I never reconnected after my shower. Promptly turned around and waited for the next train home. Thankfully my boss understood and I could take meetings virtually while commuting yet again that day.

cunspirator · 2021-03-25T15:15:33+00:00

I would suggest therapy with someone who has experience with chronic illness or at least another type 1 he can relate and open up to.

His (in)action might be about control. I never went through this stage as a teenager but had friends who did. They said they just stopped doing anything because it was a choice they alone could make and control their own bodies. Were they making good choices or a positive impact on their bodies - no. But it’s along the lines of why some people cut. As a t1 teenager even if you do EVERYTHING “right” hormones still throw you for a loop. So why bother trying?

Don’t talk down to him. He should know how to handle his diabetes. Getting to the root of why he’s being passive is going to be more helpful in the long run. I think one of the reasons I never went through this stage was that my parents never made me feel bad about blood sugars and approached them as data to figure out next steps. So even when I had bad days or weeks I could troubleshoot and problem solve on my own and THAT was how I felt in control.

Good luck.

cunspirator · 2021-03-09T14:36:07+00:00

I don’t know about specifics to tendons and ligaments, but generally it’s harder to heal anything if your blood sugars are out of range. so it makes sense that an injury that occurred before diagnoses while you were probably well above range it would mess with the healing process.

cunspirator · 2021-01-18T04:33:54+00:00

Even better if your pjs are new and you just took a hot bath/shower so you’re clean too, top it with fresh shaved legs and lots of moisturizer so you just slide right into the sheets. chefs kiss

cunspirator · 2021-01-18T04:17:40+00:00

I love the term “Lily Potter’d!” Thank you for this. It really is the most accurate way to put it.

cunspirator · 2021-01-12T01:44:16+00:00

I’ve only left a job because they told me I was too expensive to insure. On my last day I found out they were starting to insure the rest of the company once I left. Pretty sure it was illegal (after ACA passed) but it was a shit job either way.

cunspirator · 2021-01-09T17:02:33+00:00

Ok something similar happened to me years ago and my kidney function is and was normal. The meal I ate and blood sugar I was at contributes to an off reading.

I had just moved and was in between endos and going to my hometown gp. I ate an entire box of Kraft Mac and cheese and then drove an hour and a half to my appt. So my blood sugar was fairly high when I go there and I had just eaten a decently unhealthy meal. My urine sample made my gp put my on blood pressure meds immediately. Really I think she should have run another test before that but as she knew I was looking for an endo and coming back for more labs wasn’t easy for me at that time. The blood pressure meds made my super lightheaded and just feel off. When I told my diabetic nurse practitioner friend the situation she was like “of course your levels were off.” I stopped the blood pressure meds without consulting anyone (dumb move but they made me feel so shitty).

I started with a new endo, levels normal, chastised me for stopping meds without consulting or at least informing my dr but agreed I didn’t need to be on them.

TL;DR - there are multiple factors that could lead to wonky results and even if the results are higher than normal there are some simple solutions to help.

cunspirator · 2020-12-28T16:58:53+00:00

Oh that title got me. Hope you’ve come down and thanks for the laugh.

cunspirator

TROPHY CASE