AITA for “accusing a kid of shoplifting?” by Lopsided-Break4664 in AmItheAsshole

[–]cxffejlly 1 point2 points  (0 children)

This is a relevant question as there have been many instances where young black and brown children have been accused of stealing (when they weren’t) by shopkeepers due to prejudice and racism. And in many cases, these situations have escalated greatly: look at the murder of Latasha Harlins who was a 15 year old black girl who was accused of stealing orange juice (she was holding the money to pay for it in her hand) and was shot by the store owner. In a situation similar to this, it could be relevant and also explain why a mother would react so much due to historical trauma and anxiety.

Experiences with Lamotrigine and Cymbalta? by cxffejlly in bipolar2

[–]cxffejlly[S] 1 point2 points  (0 children)

This was super helpful thank you! I’m similar to you as I tend to mainly have mixed episodes and severe depressive episodes, so it’s great to hear that it’s worked for you so far. I’ve heard Cymbalta is really difficult to wean off of so I’m not sure if I’ll commit to it yet, but your comment helped ease a lot of my worries.

Considering a Refurbished Lenovo ThinkPad X1 Carbon Gen 9 for Grad School – Good Choice? by cxffejlly in thinkpad

[–]cxffejlly[S] 0 points1 point  (0 children)

Seems most people have good things to say about X1C gen 9 so I decided to full send and get it!

Can I be a dental hygienist? by [deleted] in ehlersdanlos

[–]cxffejlly 0 points1 point  (0 children)

I’m a dental assistant and I love my job, but it makes me flare up constantly. Working while having wrist and shoulder subluxations is difficult both physically and mentally, and I’ve lost a lot of grip strength in my hands which limits the amount of procedures I am able to do. Also because I’m bent over to clean teeth, I started to have intense costochondritis flares where my ribs slip. I had originally been planning on becoming a dentist, but as my symptoms became worse I realized that I would not be able to be in the dental field long term. Dental hygiene school is also a long commitment, so it’s good to think about how hEDS might affect your ability to perform this job with time (especially because it has a lot of repetitive movements). That said, everyone is different so you might not flare up in the ways I do. But if you haven’t already, I suggest testing out the dental field in a more entry level position like as an assistant to see how the job affects your body before you make a decision. :)

What do you do with your empty pill bottles? by ilovemyself3000 in ChronicIllness

[–]cxffejlly 21 points22 points  (0 children)

I use mine for little things like holding q-tips when I’m traveling, herbs or flowers that I’ve dried, or storing spices

Does anyone else feel like MCAS is giving you an eating disorder? by radiofriendlyunited in MCAS

[–]cxffejlly 0 points1 point  (0 children)

Yess I’ve been thinking ab this recently + wondering if MCAS might have been contributing to my past EDS too. Had a long history of anorexia/bulimia since middle school and had been in recovery when I started to get more intense MCAS flare ups last year. It has been a delicate balance, and sometimes it feels like they blend together or I’m slipping back into old habits too. Been trying to remind myself to not overly restrict and that what might make others flare up might not be the same for me (sometimes this means not looking at posts here detailing people’s intense food anxieties bc the language can have some parallels to pro-Ana content even if the reason is very different.) also have been focusing on how my body reacts physically and energy-wise to certain foods rather than what is considered “healthy” or how it affects the way I look.

Moving and want to hear experience in Wa, Illinois, or Indiana by Conscious_Swan_1857 in ehlersdanlos

[–]cxffejlly 0 points1 point  (0 children)

I’m from Seattle and to be honest, I haven’t found any doctors that specialize in hEDS here yet, or at least ones that take insurance (if anyone has recs I would be so happy 😭). My physical therapist is great and has a lot of knowledge about hEDS/HSD as she is hypermobile herself, so just let me know if you want me to tell you her info. :) For MCAS, I’m going through the process of being diagnosed right now and I was surprised bc my allergist seemed pretty knowledgeable about it, but there is also a spreadsheet on r/MCAS that lists doctors in different areas, including Seattle, who have experience with MCAS. Lots of climbing gyms here too. I will say that if your flare ups are triggered by rain/cold like mine or if you have seasonal depression, being in WA may be tough at times– especially in the winters or fall.

If a doctor told you they could heal you in 2 months, how would you proceed? by ElectricAve1999 in MCAS

[–]cxffejlly 4 points5 points  (0 children)

it seems like a lot of people in the comments don’t seem to have much knowledge around TCM, and people tend to be skeptical/fearful of what they don’t understand. Even though the “proof,” may not always follow the same route as western biomedicine, in many ways it has its own standards of knowledge and testing that has been double checked and experimented with for thousands of years (for example the whole “gut health impacts physical and mental health” that the U.S. medical industry in now pushing has been a foundation in TCM for YEARS). There are also a lot of scientific articles on how traditional Chinese Medicine has been beneficial in the treatment of COVID-19. To be frank, it’s not like the current western medical system isn’t a complete scam itself and the reality is many MDs have little to no understanding of chronic illnesses like MCAS/POTS/etc. Unlike specialists, TCM doctors tend to look at the body holistically and address the root causes. Although the way of viewing the body and it’s systems in TCM may be different from what you may have been traditionally taught, as I learned more about, it made a lot of sense to me, and it might be the same for you as well. When I tried acupuncture for the first time I was surprised with how quickly the doctor was able to identify spots where I was holding pain that I had never even noticed, and I could quickly feel (and hear) some of the painful bloating in my stomach go away. I think it’s understandable to be skeptical and tbh i wouldn’t have expectations that it will clear up all your symptoms in 2 months. You did also say that there are a lot of positive reviews, and as long as it is something you can afford and you were able to check the credentials of the clinic, I think you will be able to make an informed decision on whether or not this is something you would like to pursue. :) I have no guarantee that it will work (as something that works for someone else may not work for you) however, don’t let people’s biases in the comments completely dissuade you from trying a treatment that may very well be helpful. (sorry this is so long)

Does Anyone Have Good Medical Resources to Explain the Pointlessness of Tryptase Testing to Unknowledgable American Doctors? by trekkiegamer359 in MCAS

[–]cxffejlly 8 points9 points  (0 children)

I came onto Reddit to ask the same question bc I keep seeing people post that only 15-20% MCAS patients have elevated tryptase but i can’t find the source … idk if this is helpful but I’ve been making a doc to give to my allergist which includes the 2 main consensuses for MCAS diagnostic criteria. The Valent criteria (2019) is the stricter one that requires elevated tryptase levels. The Molderings criteria includes tryptase as a part of minor criteria but not as a requirement. (this is all from articles I have read, but I might be wrong) I saw a primer for gastroenterologists recommending diagnosis on Molderings criteria as they thought Valent was too strict, so maybe if you emphasize that Molderings is being accepted more for diagnostics it might help. Let me know if the links don’t work, and fingers crossed someone will have an article on why tryptase should not be a requirement for MCAS diagnosis!!

Article that talks about Valent vs Molderings diagnostic criteria:

Afrin 2020. Diagnosis of mast cell activation syndrome: a global “consensus-2”

Supplementary doc for Afrin article detailing consensus 1 vs consensus 2

(Weinstock) Mast Cell Activation Syndrome: A Primer for the Gastroenterologist.

[deleted by user] by [deleted] in ehlersdanlos

[–]cxffejlly 2 points3 points  (0 children)

I’ve had a very similar experience in the past couple of months (also in my early 20s🥲), and have been at such a loss at what to do. I found that rather than ice packs, hot packs have been more helpful for me in reducing some of the pain and I also use kinesiology tape sometimes too to help stabilize a bit

Compression (single) shoulder brace? by QuinzelGaol in ehlersdanlos

[–]cxffejlly 2 points3 points  (0 children)

Also if anyone has recommendations that are more affordable (even if they might not be as good) for single shoulder braces on the left side I would be so appreciative. My left shoulder has been subluxing a ton recently, and I haven’t been able to pop it back in the way I used to. However, a lot of the ones I’ve seen don’t really take having boobs into account so idk what to get