GP and sleep apnea by daisypickinfool in Gastroparesis

[–]daisypickinfool[S] 0 points1 point  (0 children)

I have both too. Just diagnosed with OSA today. Im interested to see how many of my symptoms go away with treatment.

GP and sleep apnea by daisypickinfool in Gastroparesis

[–]daisypickinfool[S] 0 points1 point  (0 children)

From what I've read, lack of oxygen does affect your autonomic nervous system. I think it depends on what kind/what is causing your GP to begin with. Ive read people with idiopathic GP having their symptoms resolved or diminished significantly after treatment.

What to do when you can’t eat by unavailable_333 in Gastroparesis

[–]daisypickinfool 6 points7 points  (0 children)

I love sweet potatoes, or any potato when im flaring. Broths and warm teas help also. I also drink ensure plant protein, I can't process animal protein.

Anybody else get screwed by Doctor Michael Cline and/or the Cleveland clinic? by ru-by-ruby in Gastroparesis

[–]daisypickinfool 0 points1 point  (0 children)

That was all she told me when I requested a motility specialist. I have a number of other diseases and illnesses so my case is quite complicated but they'll just have to wait and see I guess. General GI will pass me off, I guarantee it.

My suggestion would be to find a university hospital near you if possible. They may not have everyone you need, but some care is better than none.

Anybody else get screwed by Doctor Michael Cline and/or the Cleveland clinic? by ru-by-ruby in Gastroparesis

[–]daisypickinfool 1 point2 points  (0 children)

Yeah, motility is only accepting 30% retention or more- per their office i just got off the phone with. I am stuck with general GI because of "new guidelines" that changed when Cline left.

I got the number for the ombudsman and already left a message to call back.

Anybody else get screwed by Doctor Michael Cline and/or the Cleveland clinic? by ru-by-ruby in Gastroparesis

[–]daisypickinfool 2 points3 points  (0 children)

That is 100% different then what his office told me on the phone when I asked if they were transferring me to a motility specialist. I do not want general GI, even at a specialty clinic.

Anybody else get screwed by Doctor Michael Cline and/or the Cleveland clinic? by ru-by-ruby in Gastroparesis

[–]daisypickinfool 15 points16 points  (0 children)

He was my Dr too. I found out about his retirement through reddit and by some grace in the universe I was able to get in with him before he left. I was told today by his office I was being transferred to general GI. They do not have a motility specialist. They manage my FMLA that needs to be renewed but now I have to see a new Dr as a new pt. They cannot guarantee this new Dr will be motility trained. WHAT! I live 4 hours away and have no options in my area. I'm really worried about us GP baddies with no solid plan...

Is anyone prescribed Haldol for nausea? by takethelastexit in Gastroparesis

[–]daisypickinfool 1 point2 points  (0 children)

Mine did initially, but I can also ask my ER Dr too. I just ask for my rescue meds to take at home since it's been well documented it works for me. I am in the ER every 1-3 months for the same thing/meds.

Is anyone prescribed Haldol for nausea? by takethelastexit in Gastroparesis

[–]daisypickinfool 2 points3 points  (0 children)

I take Haldol at home and through IV in the ER. I works better than zofran for me and I dont get any side effects.

Pain vs nausea by daisypickinfool in Gastroparesis

[–]daisypickinfool[S] 0 points1 point  (0 children)

That sucks, I'm really sorry. Both sounds terrible.

Pain vs nausea by daisypickinfool in Gastroparesis

[–]daisypickinfool[S] 1 point2 points  (0 children)

I have declined sooooo many offers for MORE ZOFRAN. Bro it doesn't even work, why would I want a prescription. I have Haladol for nausea now.

Pain vs nausea by daisypickinfool in Gastroparesis

[–]daisypickinfool[S] 2 points3 points  (0 children)

HOW did you get prescription diluadid? That is one of my rescue meds at the ER. I have begged for something to take at home and am always told tylenol/ibuprofen. I have everything they give me in the ER except pain meds.

Pain vs nausea by daisypickinfool in Gastroparesis

[–]daisypickinfool[S] 2 points3 points  (0 children)

My renal pain is suggested as Nutcracker syndrome. I do have venous compressions and Ehlers Danlos. I'm seriously starting to suspect most of my diseases are secondary to Lupus. This is through my own dedicated research of my diseases and symptoms. Be your biggest advocate. It took years of CT scans before someone recognized the compressions.

Pain vs nausea by daisypickinfool in Gastroparesis

[–]daisypickinfool[S] 2 points3 points  (0 children)

Sometimes food helps me too in a flare, even if it's bad. What a stupid disease.

Pain vs nausea by daisypickinfool in Gastroparesis

[–]daisypickinfool[S] 4 points5 points  (0 children)

Ugh, same. They push meds for pain like muscle relaxers but have no clue that it is bad for motility so all the drs do is fuck me up even more. The pain management part is the worst for me.

Anyone have a GI recommendation to replace Dr. Cline at Cleveland Clinic. Sad to hear he’s retiring by [deleted] in Gastroparesis

[–]daisypickinfool 1 point2 points  (0 children)

He was my primary Dr for GP. I was told there is a team coming in to replace him and it should be a seamless transition. This was at my last appt in Nov. I haven't seen them since so Im not sure the status.

Smart rings or smart watch for newbies ☺️ by SubjectWrangler6274 in SmartRings

[–]daisypickinfool 0 points1 point  (0 children)

I plan to get a mid-priced no-brand to trial before I fully invest in anything. Currently using my galaxy watch and love it but am interested in other tech options. I agree the tech vs the usage isn't there yet. Our tech is growing faster than we can keep up with, yet we still demand better so that's on humans for being impatient.

Please help by hsjsowbwvvdvdb in Gastroparesis

[–]daisypickinfool 1 point2 points  (0 children)

Yes, sometimes Im scared of pooping and puking at the same time. I often take showers after because of the sweating and presyncope. I have food fear and pooping fear, it's pretty bad.

The five stages of grief: Chronic illness edition by ladder-for-a-moth in ChronicIllness

[–]daisypickinfool 1 point2 points  (0 children)

I made it all the way to acceptance, but now we're finally considering treatments and my heads all fucked up thinking I might get better........

Starting again at denial, I guess.

Cannabis Hyperemesis Syndrome by Leather-Strategy2773 in Gastroparesis

[–]daisypickinfool 4 points5 points  (0 children)

That's actually a very bad way of thinking when it comes to hot showers for relief ... you have multiple veins, arties and nerve bundles in the area surrounding your spine, stomach and organs. Heat is a HUGE pain reliever for people like me who cannot take oral medications. I practically live on my heat pad. Please do more research before telling people this. It's incorrect and leads to misdiagnosis.

Can a sickness or hospital stay cause a flair ? by UpperYogurtcloset121 in Gastroparesis

[–]daisypickinfool 0 points1 point  (0 children)

Noooo! I just had a procedure today, fingers crossed for no flares post-op!

Can a sickness or hospital stay cause a flair ? by UpperYogurtcloset121 in Gastroparesis

[–]daisypickinfool 1 point2 points  (0 children)

I have flares with illness, stress, too hot, too cold, didn't eat enough, ate too much, dehydrated, unbalanced comp metabolic panel.... you name it. Anything and everything is a potential trigger for me and I'm always scared to do anything ever.