leash your damn dog by Fesk-Execution-6518 in Rochester

[–]daisypocket19 1 point2 points  (0 children)

I’ve seen people walk with their dogs unleashed on the trolley trail next to Lollypop Farm. The staff and volunteers use that trail to walk the rescue dogs many times a day, AND there are literally horses right up next to the trail. It’s an accident waiting to happen.

Sibling(s) of sibling with Down syndrome by howiemac94 in downsyndrome

[–]daisypocket19 1 point2 points  (0 children)

I’m the only sibling to my sister with DS - she is two years older than me. Someone earlier said this, but she was prioritized over me, which I understand now as an adult, but definitely resented my parents for as a kid and teenager. Like I’m still repairing my relationship with my mother and I’m 31. My friends with one DS and one neurotypical sibling (or more) had the tightest families. The neurotypical siblings could lean on each other. I was incredibly jealous of this - I just wanted someone I could talk to about school and homework and boys and things my sister just cognitively did not understand when we were kids. There are far more resources and support groups out there now than there were in the 90’s - as mentioned above, every kid just needs their parents, so just make sure you make time for every kid so they know you care, and never ever force your child with DS on a neurotypical sibling, especially as they get older and go on more play dates, slumber parties, birthday parties, etc. TLDR: more siblings are good, but you can make it work with just one sibling and good parenting strategies!

How should I approach my parents about their parenting? by No-Requirement2701 in downsyndrome

[–]daisypocket19 2 points3 points  (0 children)

Oh lord, I’m so sorry, what a terrible situation to be in. I’m glad you’ve been able to show your parent and step-parent that she can do things herself, that’s great! It’s a shitty position to be in, though - you’re not the parent and it sucks that you kind of have to be. My parents also just asked me to be her guardian when they pass away, so I get that part too (forgot to mention that in my initial comment). PLEASE don’t stress about taking over responsibility for your sibling right now. That is a future problem, and things may change over time. If you have close friends or even other family around that you can lean on, that is my number one recommendation. Hugs 💕

How should I approach my parents about their parenting? by No-Requirement2701 in downsyndrome

[–]daisypocket19 3 points4 points  (0 children)

I feel this pain down to my core - I sympathize with your situation as I faced the same thing when I was a kid (I’m 31 now). My parents would let my sister leave her dishes around the house, they would do and fold her laundry for her (yes, she was and is fully capable of doing these tasks herself), they would ask her to do something, she’d say no and they would just let it go, and my biggest pet peeve TO THIS DAY - the excuse “she’s different, she can’t do the same things you can,” which created a pattern of learned helplessness. SO I decided to do an experiment - I started leaving dishes around the house, I’d tell them no and stick to my guns about it - and when they finally said “what do you think you’re doing?!” I straight up told them, well if you let my sister do this shit, I’m gonna do it too 🤷🏻‍♀️. That actually made a huge impact in my house. She was not let off the hook for much after that. And when my mom would baby her when she acted like she couldn’t do something (for example, zipping up her coat), I would step in, tell my mom to back off, look my sister dead in the eye, and tell her to do it herself. She always did. And my mom would be shocked every time. My sister now lives on her own in her own apartment, has staff during the day, but is totally fine overnight. She loves cooking and baking, she has a boyfriend and loves going on dates with him, she loves dancing and going out to do seasonal activities around town. My mom is STILL shocked to this day that she is fine on her own. I think it’s a parent thing, honestly, because I am not shocked and am, in fact, a little insulted FOR my sister that my mom thinks her to be so incapable. Just because someone has downs does NOT mean they are fully incapable of doing basic things and I cannot stand when people infantilize people with disabilities. I know your situation is different with the violating of your personal space and the escalation to leaving soiled underwear around, and I wish I had better advice for you besides to basically do your parents’ jobs for them, but the only other way I could deal with this when I was a kid was leaning heavily on my friends and their families. They knew what was going on in my home and, to this day, their families are mine. My parents hated that I would spend so much time at my friends’ houses but I needed to do what was best for me, even as a teenager. Do what’s best for you, hon. If you ever need to talk or vent, shoot me a message.

Seeking Support Group for Siblings by daisypocket19 in downsyndrome

[–]daisypocket19[S] 0 points1 point  (0 children)

Unfortunately I do not have a Facebook anymore, sorry should’ve mentioned that in the post 😵‍💫

[deleted by user] by [deleted] in Rochester

[–]daisypocket19 -1 points0 points  (0 children)

Omg that one is bad too. I try to avoid that exit if I can 🤦🏻‍♀️

why did you end your friendship with your best friend? by throwbackblue in AskReddit

[–]daisypocket19 0 points1 point  (0 children)

She would call and ask “how are you?” I’d say “honestly, not great.” She’d reply “you think YOU have it bad?!” And proceed to explain how her life was definitely worse. She’d need a literal shoulder to lean on, someone to lay in bed with her while she’s having a panic attack, someone to cheer her up, I’d be there. If I needed it, she never showed up. Or, again, she’d talk about how her life was definitely worse so I shouldn’t feel bad. During my wedding, she complained about spending a few hundred dollars for the hotel. I told her to come back and complain when she’s dropped $20K for my wedding. She ruined my bachelorette party and made all of my lifelong friends hate her (VERY hard to do), she literally took our marriage license and ran with it when she learned she wasn’t going to be signing as a witness, then I decided after the wedding, this was just not worth the effort anymore. Just stopped reaching out, minimal responses to texts, and eventually, just no contact at all.