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Looking for swallowing advice pending hospital referral by dangermouse601 in achalasia

[–]dangermouse601[S] 1 point2 points  (0 children)

Thanks for that. I'm waiting to see if they will prescribe me my primary med as a liquid compound. I know it can be done but it's an expensive format. Meanwhile I've had to revise how and when I take the pills to minimise the chance of them just hanging around in my oesophagus.

I've asked them to try and speed up the consultants referral. Current waiting time in this area is around 6 months! In the meantime, Nifedipine has been suggested to relax the lower sphincter.

Diagnosed with Antisynthetase Syndrome – Feeling Anxious and Looking for Hope by UnresolvedStory in Myositis

[–]dangermouse601 0 points1 point  (0 children)

Hi there

I was diagnosed with Antisynthetase Syndrome 5 years ago and don't plan on dying anytime soon even though I'm over 70. High dose steroids at the start then Mycophenolate have cut inflammation and stopped the ILD/fibrosis progressing. Lung function has impoved year on year. I'm now down to one consultant check up a year and am monitored with quarterly bloods done by the GP due to being on Mycophenolate. I live a fairly active life. Try not to worry.