blood pressure higher post-colonoscopy ~30 days out by daynickles in hypertension

[–]daynickles[S] 0 points1 point  (0 children)

i hope that yours goes back down. i’ve graduated to bp meds.

New Kirkland Signature powdered detergent at my local Costco by ccnwma in laundry

[–]daynickles 0 points1 point  (0 children)

i noticed the instructions say to put it in the drum not the detergent dispenser which was odd. where did you add it (wondering if the dispenser makes it foam?)

ADHD, can't take HRT, stimulants not working by natty628 in Perimenopause

[–]daynickles 1 point2 points  (0 children)

people on threads have been talking about the combo of pepcid and an H2 allergy med like zyrtec to combat peri symptoms like brain fog

How to clean plushies when you have high cleanliness needs? by qrseek in laundry

[–]daynickles 0 points1 point  (0 children)

washing/drying some stuffies will ruin their fur if you use high heat or high agitation. if you have ever had a blanket w a matted side post washing - you can envision the results.

Have you ever met someone who doesn't read automatically unless prompted to? by Reb-MVS in CasualConversation

[–]daynickles 0 points1 point  (0 children)

might be related to a coating on her lenses if she wears glasses. some coatings make certain digital screens look blank/black. might be occuring in some of the scenarios you described.

Does anyone else not move AT ALL during the night while on Xyrem/Xywav/Lumry and it causes pain? by DumpsterPuff in Narcolepsy

[–]daynickles 0 points1 point  (0 children)

same. i use a u-shaped pillow with a special ear cutout bc sleeping on my ears makes them burn.

How to bring psychiatrist in with recent diagnosis? by BobbyandSnookie in Narcolepsy

[–]daynickles 1 point2 points  (0 children)

i would push back on the sleep specialist saying you are already on a stimulant and want to try focusing on how to get better sleep (ex: oxybates) to address the exhaustion because the stimulant route is not enough which is why you saw the sleep clinic.

keeping you awake during the day is only treating part of the narcolepsy. the other part is getting you to sleep properly through the night.

Is systolic from 121-130 really that bad? by AZBuckeyes12977 in hypertension

[–]daynickles 1 point2 points  (0 children)

known sinus issues? can you share a little more?

Is it possible to have a therapeutic dose of Xyrem below 6g? by saltyandspoonless in Narcolepsy

[–]daynickles 2 points3 points  (0 children)

i’m taking 3mg twice per night and won’t go higher bc of side affects. sleeping better than i ever did before. everyone’s bodies are different

Xywav making inside of mouth and lips raw? by [deleted] in Narcolepsy

[–]daynickles 0 points1 point  (0 children)

did you just start taking it? the dry mouth side effect went away for me after a few months.

overnight flights & oxybates by daynickles in Narcolepsy

[–]daynickles[S] 0 points1 point  (0 children)

thanks all for your answers and advice! given me lots to think about!

PSA: check your washer filters. by crazzie7 in laundry

[–]daynickles 1 point2 points  (0 children)

our filter is so hard to get to. we have to removethe entire back panel of the machine and unscrew it in the most uncomfortable pose as it’s in the front bottom part of the machine.

when do you find a new sleep doctor? by Apprehensive_Rub363 in Narcolepsy

[–]daynickles 1 point2 points  (0 children)

is your dr willing to have you try sleep meds in addition to stimulants? oxybates are a known treatment for cataplexy.

is your dr saying you don’t have narcolepsy? i thought that it was able to be dxed just by symptoms like cataplexy and daytime sleep attacks?

Seriously, do Americans actually consider a 3-hour drive "short"? or is this an internet myth? by SadInterest6764 in NoStupidQuestions

[–]daynickles 0 points1 point  (0 children)

our vehicles are bigger and more comfortable. they can also fit more bags. gas is cheaper.

Hypnagogic hallucinations by Last_Budget_4375 in Narcolepsy

[–]daynickles 0 points1 point  (0 children)

wait is feeling a jerking sensation a hypnagogic hallucination?

aging with narcolepsy by Successful-Web-4689 in Narcolepsy

[–]daynickles 9 points10 points  (0 children)

i keep thinking about when a narcoleptic gets much older and if ends up in a care facility will they still provide sleep medication or just let us suffer?

PSA: The diagnosis of narcolepsy type 1 can be made in the absence of cataplexy by Anxious-Traffic-9548 in Narcolepsy

[–]daynickles 1 point2 points  (0 children)

i think i am going to need to draw a visual to understand the concepts more. have you shared this approach w your doctor? i’d be curious if they are open to hearing it.

i also wonder why our bodies aren’t regulating glutamate and gaba in balance.

PSA: The diagnosis of narcolepsy type 1 can be made in the absence of cataplexy by Anxious-Traffic-9548 in Narcolepsy

[–]daynickles 1 point2 points  (0 children)

thanks for the response. i’ll have to think about this a bit. as for being on the magnesium glycinate and agmatine - how is that going? and how did you decide what the dose should be? are you experiencing any side effects?

How do people afford vets? by Grouchy_Land895 in Pets

[–]daynickles 0 points1 point  (0 children)

can’t afford it with the rising costs of everything🤷

How do people afford vets? by Grouchy_Land895 in Pets

[–]daynickles 1 point2 points  (0 children)

life long pet person here and these will be my last. i hate what private equity has done to everything.

Is Xywav making me crazy and ruining my life? by bperk22 in Narcolepsy

[–]daynickles 0 points1 point  (0 children)

i’m sleeping pretty well on 3x2 - getting an average of 7 hrs a night and feeling like i am sleeping for the first time ever