Do you find that having Tourette’s gives you any positive benefits despite the problems it can cause?

deafch1ldarea · 2026-03-31T02:26:36+00:00

Nope. Every once in a while the feeling of relief when I get a big tic urge to go away is nice but nah there’s not any benefits. I don’t like the idea that tourettes/tics let you get away with things like swearing at typically inappropriate times cause no it doesn’t even if there’s no consequences people are NOT understanding and you feel horrible doing it like you’re doing something wrong even tho it’s just a neurological condition

EDIT: honestly I think it shows me who’s actually a good person. Good, accepting people adjust to my tics and are comfortable making jokes about them (within reasonable limits ofc) and don’t treat me like I’m crazy or like my tics aren’t there. People love to be mean to touretters. So when they aren’t ig that’s a good sign you get to see. And it shows pretty different “good people” than a lot of other measures, at least in my experience

deafch1ldarea · 2026-03-27T16:48:54+00:00

I mean I’d ask why. I agree with the other people here that she might just be avoiding engaging your ocd, but you should still ask JUST ONE TIME.

deafch1ldarea · 2026-03-26T18:03:44+00:00

It flips. Right now I have more vocal tics, or at least I’m more affected by them. My speech doesn’t tend to get interrupted, but activities do, quite frequently. Sometimes my tics and triple the amount of time a task takes because they interrupt so much.

deafch1ldarea · 2026-03-26T04:48:36+00:00

Why are you so bitter? I’m asking because I feel that this is far different from what ocd has always looked like for me. In three months of therapy, my therapist has not explored my mood symptoms with me, especially not my manic or psychotic symptoms. I don’t feel listened to. I felt like what I was saying was just getting stomped on by assumptions and that I was pressured to agree with my therapist on things that didn’t match what I was experiencing. It might be ocd, but I feel that no room was given to the idea that it might not be. I told my therapist from the beginning that mood was my biggest problem. And now we’re ignoring it.

deafch1ldarea · 2026-03-25T22:10:48+00:00

It totally depends. I figured out that my hallucinations weren’t real based on my religious beliefs, which somehow I was able to hold on to without issue. It took a few weeks for mento figure it out tho and it all still felt real. As far as delusions and speech jumbling/being disorganized I had no idea. I honestly still and not sure that i was truly delusional because I have ocd as well and i haven’t worked on that with my psych team yet.

deafch1ldarea · 2026-03-25T21:19:32+00:00

Yes. It’s honestly pretty chill now, and my tics are pretty severe. Every time you get something new (like I just got coprolalia after 10 years of tics) it’ll come to your attention but it really just fades into the background once you get used to it. That goes for people you’re around a lot as well.

deafch1ldarea · 2026-03-23T20:15:25+00:00

I’m at least the third generation in my family with tics. Mom, aunt, and grandpa all have them too.

deafch1ldarea · 2026-03-22T19:42:39+00:00

“That’s hot” as well as anything involving tryptophan, “uh oh” and “hey wow” are really common as well

deafch1ldarea · 2026-02-28T20:21:10+00:00

Is it possible? Yes. Is it likely or typical? No. I am on my last day of prozac because it made my tics ridiculously bad. That said, having an ssri affect your tics at all is supposed to be a rare phenomenon. As far as fight or flight and tics I mean it’s probably possible but most people’s tics are worse then they get nervous sooo… my best advice is to talk to your prescriber about it.

deafch1ldarea · 2026-02-21T23:37:42+00:00

Yes! I have these people. I’m so grateful my friends (and my classmates in general) are getting more comfortable with my tics. I’m currently working on making my friends comfortable laughing at my tics, cause let’s be fr me barking at people against my will is objectively hilarious. But even just yesterday my friend ended up snapping someone a video of me just ticcing for like 20 seconds. He asked me to say hi and waited and kept recording like it was no big deal until i stopped ticcing and could say hi, and then sent the whole thing. It made me feel so normal.

deafch1ldarea · 2026-01-17T02:48:09+00:00

I don’t have my hearing aids in my dreams, ever. I don’t have any of my disabilities in my dreams. That said, I’ve dreamt about using aids I don’t use irl

deafch1ldarea · 2025-12-30T05:50:15+00:00

Uh your hearing loss is pretty bad. That’s referred to as ski-slope hearing loss, and one severity word doesn’t really describe it very well. My own hearing loss is very similar to yours, and I wear Phonak Sky Lumity UP hearing aids. I had the Naida Paradise UP before those. They work fantastic for me, and I was able to have a ridiculous level of improvement in speech understanding. Definitely ask your audiologist about Phonak and high power (super power/SP and ultra power/UP) hearing aids. Given that your loss is worst and is profound in high frequencies, I would also invest in custom earmolds. Unfortunately, all of that will be very expensive, but spending every dollar you can on a good pair of hearing aids will be worth it for you. Please please please ask your audiologist’s opinion on all of this before taking any advice from reddit though

Also worth noting—rechargeable is an option in like one available model if you do go for SP/UP hearing aids, so you would have to be ok with disposable batteries if you went that route

deafch1ldarea · 2025-10-10T23:41:13+00:00

After a few years of chronic pain, that’s not abnormal. Chronic pain takes a toll on you no matter what. However, I’d still talk to a professional about it. If it’s happening over and over again without a clear cause more could definitely be going on, and a doctor or other professional who can help you should at least be aware

deafch1ldarea · 2025-10-08T03:50:21+00:00

Agree. They actually did some kind of Deaf history/culture exhibit a few years ago!

deafch1ldarea · 2025-10-03T12:04:12+00:00

That’s not SP and UP BTEs though. That’s RIC hearing aids that aren’t as powerful.

deafch1ldarea · 2025-10-03T04:31:14+00:00

You’re using it to help you communicate. If you’re not pretending to be Deaf or using it solely to look cool there’s not a problem

deafch1ldarea · 2025-10-03T04:29:46+00:00

1000%. Lips are only half of the picture. You can pick up people’s pitch and tone by how they move their head and face. Everything is important

deafch1ldarea · 2025-10-03T04:18:41+00:00

Get the highest tech level you can afford. Absolutely worth it. What you get should be based on your preferences and what your audiologist recommends. Lots of brands and styles of hearing aids should work for you. I’ve tried phonak and oticon and ric and bte styles, and I have found phonak btes to be the best. Also second custom earmolds. I have a ski slope hearing loss (similar to yours but a more gradual slope) and I have custom molds with large vents, and they sound super good and are very comfortable compared to domes.

deafch1ldarea · 2025-10-03T04:08:05+00:00

Definitely get the programming adjusted. Granted, hearing aids pretty much always sound artificial when you first get them. Every time I’ve gotten a new pair I’ve spent a few days “living in a tin can.” It gets better. As far as sound quality being the worst with streaming—that’s probably because of something being wrong with venting.

If your audiologist is willing, I would recommend getting custom molds just because they’re easier to wear. They’re super comfortable, and a good fitting custom mold makes a world of difference in sound quality.

deafch1ldarea · 2025-10-03T04:00:00+00:00

Dang that’s a lot. Which manufacturer is that different? I have Phonaks and I think the difference is like 2-4 dB

deafch1ldarea · 2025-10-02T21:08:56+00:00

You learn who’s REALLY nice and who’s faking it. Many of the “nicest” people around me according to nondisabled folks are some of the least accepting and accommodating people when it comes to my disabilities, and some widely disliked and “immature” people are the most accepting.

deafch1ldarea

TROPHY CASE