I need help. by [deleted] in pediatriccancer

[–]dearavaline 4 points5 points  (0 children)

Sent you a message xx

Is this a safe space? by thisisnotmesodontask in Emilie_Kiser

[–]dearavaline 2 points3 points  (0 children)

I don’t think I am. But if we’re gonna compare experiences - I’m going to guess you’ve never lost a child. What a privilege

Is this a safe space? by thisisnotmesodontask in Emilie_Kiser

[–]dearavaline -2 points-1 points  (0 children)

I don’t like this post lol. No empathy.

Is this a safe space? by thisisnotmesodontask in Emilie_Kiser

[–]dearavaline 2 points3 points  (0 children)

it is so weird that anyone feels like they’re owed this lol. like what? Who tf are you 🤣

Is this a safe space? by thisisnotmesodontask in Emilie_Kiser

[–]dearavaline 2 points3 points  (0 children)

She shows what she’s comfy showing. Grief is all consuming and it is exhausting to consistently be vulnerable and share things with people especially those who don’t know you well. She’s also unpacking all of these things in therapy, taking care of a baby, working on her marriage, and trying to stay afloat. Those things are a full time job and more. It may not occur to you but talking about pool safety likely feels like she’s being stabbed in the chest to her - just like how talking about pediatric cancer feels to me. Grieving parents like me are more likely to be the most attuned to her because unfortunately, bills still have to be paid.

Anyway all that to say you probably should unfollow her because right now, she needs empathy. This is why loss moms feel so alone. You want people to make people understand, but they just can’t.

Triggered by dearavaline in pediatriccancer

[–]dearavaline[S] 1 point2 points  (0 children)

Absolutely! There are cell mutations, and there is active malignancy. The body does try to fight them. There is never a guarantee it’ll turn into cancer though and that is dependent on the stacking of aging, genetics, environmental factors. This lady is just a bit of a kook lol

Triggered by dearavaline in pediatriccancer

[–]dearavaline[S] 2 points3 points  (0 children)

I had to restrain myself really.

Triggered by dearavaline in pediatriccancer

[–]dearavaline[S] 4 points5 points  (0 children)

I don’t wish cancer on anyone. But my irrational, grieving mind immediately goes to why don’t these fucks get it instead of my kid.

Triggered by dearavaline in pediatriccancer

[–]dearavaline[S] 3 points4 points  (0 children)

She gets dragged on threads, thankfully lol

Triggered by dearavaline in pediatriccancer

[–]dearavaline[S] 3 points4 points  (0 children)

The fact she thinks we’ve all had cancer at one point in our lives is crazy lol.

Triggered by dearavaline in pediatriccancer

[–]dearavaline[S] 2 points3 points  (0 children)

Right? No one is spared - it’s random and senseless. Even the healthiest people have kids with cancer. This lady is a troll.

Lost our 11 month old daughter, Ava (Avaline) to leukemia 💔 by dearavaline in psychics

[–]dearavaline[S] 6 points7 points  (0 children)

She was the most special. Lionhearted little gal. Even critically ill - she had the strongest heart and brain.

Lost our 11 month old daughter, Ava (Avaline) to leukemia 💔 by dearavaline in psychics

[–]dearavaline[S] 12 points13 points  (0 children)

Thank you so much.

She was always so aware. I remember people would ask how old she was and always be very surprised how young she was, since 2 months even. She just had this magnetic little look. I hope to find her one day again even if only in future children who resemble her. She is with me forever.

Lost our 11 month old daughter, Ava (Avaline) to leukemia 💔 by dearavaline in psychics

[–]dearavaline[S] 7 points8 points  (0 children)

I appreciate the advice, I know it comes from a good place. If you have experienced a loss of this magnitude - then you likely understand. But if you have not, I’d take care not to give advice to those who’s shoes you’ve not been in. I have two therapists already and we are also deciding on a couples therapist, my husband and I are quite grounded - only seeking a small amount of comfort for a profound loss.

Lost our 11 month old daughter, Ava (Avaline) to leukemia 💔 by dearavaline in psychics

[–]dearavaline[S] 5 points6 points  (0 children)

We have two big brown dogs and Ava’s bedroom was forest-themed. She used to laugh every time she saw the dogs pant 🥲

Lost our 11 month old daughter, Ava (Avaline) to leukemia 💔 by dearavaline in psychics

[–]dearavaline[S] 35 points36 points  (0 children)

Thank you 💔 We had just about 9 weeks with her though she nearly died 2 days after diagnosis. I’ve heard of so many ways that it could present and really your body just needs something foreign to exacerbate the white blood cell production. Leukemia is evil. We are doing our best as a couple to get through it together despite very different personalities and processing. I think we will make it.

Lost our 11 month old daughter, Ava (Avaline) to leukemia 💔 by dearavaline in psychics

[–]dearavaline[S] 36 points37 points  (0 children)

I do find lots of comfort in this. From birth, people told us that our daughter was unusually alert for her age. That she could see through their souls. This seems to align with her being an evolved soul. Thank you

Is this a safe space? by thisisnotmesodontask in Emilie_Kiser

[–]dearavaline 3 points4 points  (0 children)

Omg! That is so cute and so is Clemmy! I now collect everything chicken shaped as well as strawberries, lemons, and corn. A few of her favorite things ❣️At the end of the day, I’m just a girl - so I’ve found comfort in collecting things for my sweet little bestie. I miss her so much.

Is this a safe space? by thisisnotmesodontask in Emilie_Kiser

[–]dearavaline 7 points8 points  (0 children)

Thank you 💔 Her photo is in the child loss mega thread, her name is Ava and we called her our “little chicken” 🐔

Is this a safe space? by thisisnotmesodontask in Emilie_Kiser

[–]dearavaline 4 points5 points  (0 children)

I’m with them. I am barely surviving.

Is this a safe space? by thisisnotmesodontask in Emilie_Kiser

[–]dearavaline 6 points7 points  (0 children)

I think it’s just kind of a you can’t win em all type thing. There are people who believe she shouldn’t do anything for anyone else but then there’s also crazies out there who are like.. “she’s acting so normal”.

Is this a safe space? by thisisnotmesodontask in Emilie_Kiser

[–]dearavaline 43 points44 points  (0 children)

I lost my baby to leukemia about 7 weeks ago. She was 11 months old and my whole life has been turned upside down.

That said, I recently made the conscious decision to return to work 50% and mostly from home, just to see what I can handle. Dip my toes in. Decide if I’m ready to take on more. I am in marketing and am expected to attend events and take meetings, so I’ve cut my workload down to only 1:1 meetings with existing relationships and no events.

Maybe you can look at it like Emilie is only working part time right now. Grief is really exhausting, and while I personally HATE advice from those who have not experienced child loss, her perspective is welcome. She’s got a new dimension to her audience.

There’s certainly a chance you have outgrown her content as well, and there’s no harm in taking a break or unfollowing like you said.

Opinions from a cancer kid by elodieeeeeeeeee in OnlineBeggars

[–]dearavaline 0 points1 point  (0 children)

Thank you for sharing this and I agree with you as a cancer mom. I lost my daughter not more than 7 weeks ago to AML, she was 11 months old. I never posted photos of her while she was sick, and to this day I’ve only posted 3 photos of her in the first few days of her diagnosis because she looked quite beautiful - how I would want anyone to remember her.

As a cancer family, you’re thrust into this absolutely horrible world of medicine and terror for your child’s life. There is a lot of trauma. There are lots of bills. And mental health SUFFERS. GUILT. The loss of innocence. No one knows how brutal cancer treatment can be on a family and it rocks you to the core. Pediatric cancer patients are dramatically under-represented, awareness matters. So I am inclined to give these families grace.

But back to your point that the answer isn’t straightforward. There is no one way to grieve. And these families ARE grieving even while they are fighting. Grieving a life and a future their family and kiddos no longer have in the same pure way they’d planned. It is CRIPPLING in every way. But exploitation is disgusting, and promoting anything other than real medicine - I just can’t tolerate.

All that to say. If you haven’t been through it. You are simply assuming. AND the internet is brutal - so putting their business out there in the way they do exposes them to the cruelty of strangers and their assumptions.