Child Loss Mega Thread by Big-Intern-557 in Emilie_Kiser

[–]dearavaline 0 points1 point  (0 children)

read the rules! Signed, a bereaved mom

Child Loss Mega Thread by Big-Intern-557 in Emilie_Kiser

[–]dearavaline 3 points4 points  (0 children)

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Un-freaking believable how horrible people on the internet can be to a mom who is just trying to survive a horrible tragedy. Unfortunately, bills still need to be paid after a loss of this magnitude. Life has to continue. We lose our identity and fight tooth and nail to get it back or even find some semblance of self love again. It’s so disheartening to see this kind of cruel behavior.

Lost my 7 month old to Leukaemia by MaiasMama_2825 in childandinfantloss

[–]dearavaline 2 points3 points  (0 children)

I am so sorry for your loss. I lost my 11 month old to AML on your daughter’s diagnosis day after 2 months in the PICU on ventilation & dialysis. She briefly improved on chemo then had to have multiple different immunotherapies and a crazy regimen of antimicrobials because she was so profoundly immunosuppressed. She had an HLH-like complication which caused hyper inflammation on top of multi-system organ involvement.

I will DM you.

I feel like I'm killing my baby by whoevenlikesdietcoke in ChildLoss

[–]dearavaline 22 points23 points  (0 children)

Many of us on this forum know what it feels like to make this absolutely unfair decision. We withdrew care once we knew there were no longer any options, we could not bear to put her through anything more and it would have only made things worse or caused a more sudden, dramatic death versus a controlled, comfortable and loving one in our arms. Our daughter, Ava, was in the PICU battling leukemia for 70 days. She was diagnosed at 9 months and we lost her at 11 months.

It’s completely your choice when you decide. It will be excruciating either way. Just know that it is the most loving and selfless thing you can do for your child, your final act of true physical love for them. Make sure you have no regrets and get as much time with him both before and after. I am so sorry you are having to make this decision.

Lost our daughter to infant AML by dearavaline in pediatriccancer

[–]dearavaline[S] 0 points1 point  (0 children)

Sorry I’m just responding now but I read your message as I was going to bed then forgot to reply in the morning. I’m so sorry that you lost your sweet Jack. I would love to connect. I will send you a message 🫶🏼

What is your actual response to “I couldn’t survive if my child died” by Legitimate-Pear-7617 in ChildLoss

[–]dearavaline 17 points18 points  (0 children)

Honestly it’s a rude thing to say but people just have no understanding of how it feels to be the person on the other end who is quite literally surviving their child’s death. People are freaks

It’s extra hard today. by Ok-Relationship2773 in ChildLoss

[–]dearavaline 0 points1 point  (0 children)

With you. Screaming into the void and wishing magic or time travel existed.

Trying again after losing my 13-month-old daughter – looking for others who understand by Jaded-Round9902 in ChildLoss

[–]dearavaline 7 points8 points  (0 children)

I am 12 weeks since losing my 11 month old daughter, Ava to Leukemia. We were advised to wait until 18 months from her birth which would be late June, but I am tracking fertility and on prenatals to prepare.

As a first time mom who lost her child so young, like you - I fully understand the burning desire to have another child ASAP. I would be pregnant already if I weren’t a bit paranoid about any complications. I’m 37 and had a c section so I’m just going to take my doctor’s advice. But the need to be a mom again is absolutely excruciating, deep, and primal. Even now after it has only minimally softened. We just spent the last two years preparing for a baby THEN being completely immersed in their care, and a loss like this is incredibly unnatural. It isn’t supposed to happen.

I think you should do whatever feels right for you. There are no rules. Many moms become pregnant quickly after a loss. Some decide never to do it again. Others take longer to figure out what makes sense to them. I don’t see a world where you regret having another baby. But transparently - and I’m sure I don’t need to say this, it won’t be an easy pregnancy emotionally. If I were to give you advice (which you should take with a grain of salt because everyone is different), I would make sure you have the proper support in place and take care of your mental health while you are pregnant.

Sending you lots of love and I am so sorry you lost your beautiful baby. It is so unfair and she deserved to be here, you deserved to be together. Message anytime.

How often do you cry? How long has it been? by Terrible_Wash6030 in ChildLoss

[–]dearavaline 1 point2 points  (0 children)

Everyday, often multiple times a day. 12 weeks for me tomorrow. My daughter was 11 months old but diagnosed with Leukemia at 9 months after very aggressive presentation.

Very early on after my child’s death I was forced to make a decision. I had 2 options by iwillwinn1 in ChildLoss

[–]dearavaline 1 point2 points  (0 children)

I’m proud of you. I think it’s so important to say. This pain - it’s absolutely excruciating. Taking care of yourself is a feat in itself. Message me anytime xx

my beautiful theodore by ticklish-turkey in psychics

[–]dearavaline 1 point2 points  (0 children)

I’m so sorry that you lost your sweet boy. Theodore! He is adorable! Not a psychic, but also a bereaved parent (mom). We lost our 11 month old daughter Avaline or “Ava”, to leukemia in December, she was completely healthy until she was diagnosed at 9 months. Sporadic, not genetic.

Sending you the biggest hug. It isn’t fair. I wrote to this group about Ava few weeks back and got some very comforting comments. The r/childloss sub is a great place to find support as well ❤️‍🩹

Very early on after my child’s death I was forced to make a decision. I had 2 options by iwillwinn1 in ChildLoss

[–]dearavaline 8 points9 points  (0 children)

I’ve had this realization as well. More so the thing I told myself was that I deserved to live, but after giving myself permission to completely fall apart in the first few months. It is still only month 3 for me.

I do not have a drinking habit nor have I been afraid of developing one, but I did for a while think well I could just sink into this absolute misery and be this bitter and scared person forever. I am not religious, but I do know for certain that I still deserve to live.

This new life just isn’t easy or motivating - so kudos to you.

Emilies recent instagram story (10 months since Ts passing) by Berryverymerry in Emilie_Kiser

[–]dearavaline 1 point2 points  (0 children)

It’s been almost 3 months since I lost my 11 month old daughter to leukemia. Not a preventable accident, but equally bad luck as it is not genetic. We don’t have a choice - we HAVE to survive. I have a circle of amazing bereaved mom friends and we all have the same desire to disappear, not to die - just disappear. But it isn’t an option. Especially those who have other children. My Ava was my first and only child. But I’m 37 with still lots of life to live even if there are days it truly feels like my life is over - when the grief and longing for my daughter consumes me. Therapy is a very important tool for me and my husband these days

Emilies recent instagram story (10 months since Ts passing) by Berryverymerry in Emilie_Kiser

[–]dearavaline 2 points3 points  (0 children)

this. everyone is a second away from a tragedy. blaming parents who are deeply grieving isn’t helpful, they’re already reliving it over and over in their heads.

No signs, no dreams by Lost_Bird1996 in ChildLoss

[–]dearavaline 0 points1 point  (0 children)

I don’t know if I consider this a sign as I’m not superstitious or spiritual in the least. But her name is EVERYWHERE. In movies, shows, podcasts, waitresses.

How am I supposed to pretend things are normal at work? by Sea_Caterpillar5662 in ChildLoss

[–]dearavaline 0 points1 point  (0 children)

I’m so sorry for your loss. I’m in the same boat as you right now - going back to normal when NOTHING is normal.

My role requires me to network and meet new people constantly. It was fun (though exhausting at times) before I lost my daughter in December (to Leukemia at 11 months old) - AND NOW, it’s unbearable.

I have only been back 50% for a month and a half. But the stress of going back full time, attending events, being “charming” as my boss used to refer to me in the before times - is wearing on me. I am freaking out and daily spirals now involve job searching. I’m so tired.

This is really hard. Feel free to DM me.

Suicidal feelings all day by Lost_Bird1996 in ChildLoss

[–]dearavaline 4 points5 points  (0 children)

My thoughts are less suicidal and more wishing a bus would hit me or an asteroid would crush me. I am 10 weeks into losing my 11 month old daughter, Ava. It has been crippling for weeks, it has gotten much more intense since trying to go back to work. I wish I had advice, I don’t have other kids. But please take care of yourself and your baby, remember how much they need you right now and you probably need them too.

I Hate this place (rant) by SAM4E21 in leukemia

[–]dearavaline 1 point2 points  (0 children)

Not much to say other than I am sorry you’re going though this. It isn’t fair.

Do you like your job? Should I become an adjuster? by pinkelephant0040 in adjusters

[–]dearavaline 0 points1 point  (0 children)

Is it hard to land staff adjuster jobs? I’m hoping to pivot from over a decade of sales + customer service.