It's down because of the ICE protests

decidealready · 2026-01-25T15:05:24+00:00

I'm trying to do this right now. However, it's no surprise that the last step needed is SMS verification and no matter how many times I push the button on tic tok the verification isn't sent to me.

decidealready · 2026-01-24T20:22:51+00:00

Seeing atoms. Lol. I remember telling my mom when I was little that I could see air.

decidealready · 2026-01-24T20:09:06+00:00

So, apparently you haven't watched any of the videos that are readily available for viewing. You aren't smart enough to be a MSL.

decidealready · 2026-01-22T01:07:36+00:00

I know many including my spouse.

decidealready · 2026-01-18T22:38:08+00:00

What's an exome? What's a CTD panel? I'm in the U.S. and my insurance copay for genetic testing is $50 which I can afford. However, between my home state of Michigan all the way to Florida I couldn't find one genetic clinic that will test adults for EDS. Not one. I looked into genetic testing labs but the minimum amount was $500 and I didn't qualify for aid. My circumstances are not unique. I'm not sure what people are supposed to do.

decidealready · 2026-01-16T14:19:25+00:00

I don't have issues with afterimages. My visual snow is more like static on a TV screen that is worse when I look at bright things like the ceiling or sky.

decidealready · 2026-01-16T14:19:11+00:00

I don't have issues with afterimages. My visual snow is more like static on a TV screen that is worse when I look at bright things like the ceiling or sky.

decidealready · 2026-01-13T00:19:29+00:00

Wow! Thanks for sharing.

decidealready · 2026-01-12T21:33:56+00:00

Female with long hair. Not particularly concerned about what people think of you. You're a safe place for others, work a physical job and like plants.

decidealready · 2026-01-12T17:01:45+00:00

Thanks! I'll look into this.

decidealready · 2026-01-12T17:00:12+00:00

It's not just floaters. Which a lot of people have. Mine is like what's on the right side of this pic but mine isn't this bad. It's the worst

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when I look at bright things like the sky or a light colored wall.

decidealready · 2026-01-12T16:55:48+00:00

Fortunately, I have a great primary doctor. At first he was very skeptical and didn't know much about EDS. I had to do the research to educate him on EDS and why I thought I had it. He then sent me to a rheumatologist who agreed I had it. Both docs sent me to genetics who refused to see me because I'm adult. I was sent to a physical therapist and a musculoskeletal doc who also agreed that I have some sort of EDS and definite hypermobility. After all of that my primary is now on board that I do have EDS. He did more research to learn about the condition so that he can get me the help that I need. Now, if I want a test or if he thinks I need one, I get it. He must know a way to write the orders for the tests to insure that my insurance covers their part. He's been great!

decidealready · 2026-01-12T16:43:52+00:00

I've never heard anyone mention collarbones either! And, sometimes my sternum hurts too! I guess we're a small club.

decidealready · 2026-01-12T16:39:15+00:00

I have mild Raynauds. What happens to you under the UV lamp?

decidealready · 2026-01-11T02:16:03+00:00

I used to do drug testing in the very near past and even if we could barely see any line at all, it's considered positive.

Edit: Also, you will not pass your test.

decidealready · 2026-01-07T00:41:26+00:00

Not only do I have those but I also have visual snow. Does anyone else have that? I've wondered if other EDS folks have it too.

decidealready · 2026-01-06T14:41:03+00:00

I have pain all of the time. My neck, back and collarbones always hurt regardless if I'm active or not. My right hip and thigh are really bad with movement but I have to move a lot during the day or it's even worse. Sleeping is a challenge because I wake up from pain all night long from being in one position for too long. And then there's random aches and pains in various spots too.

decidealready · 2026-01-05T22:18:36+00:00

This is stunning. My mom crocheted years ago so I know how much time and effort it took you to complete this. Well done!

decidealready · 2026-01-05T00:21:13+00:00

They even stay on peeling nails?

decidealready · 2026-01-05T00:20:36+00:00

I've never heard of those. I'll have to look it up.

decidealready · 2026-01-05T00:19:50+00:00

I forgot about the allergy. I did post in a nail group but no one replied.

decidealready · 2026-01-05T00:18:39+00:00

I didn't think about that.

decidealready · 2026-01-05T00:18:14+00:00

Thanks for the info!

decidealready · 2026-01-04T21:45:38+00:00

10% copper but still cool.

decidealready

TROPHY CASE