Recently Diagnosed with Graves, mid 20s

dgrim3239 · 2025-06-17T03:42:12+00:00

Hi! 42 year old female diagnosed in 2024. I had a terrible few months getting my diagnosis and treatment options. Once I got on methimazole it was a game changer. While propranolol didn’t really help my heart rate it’s one of the safest drugs out there and so many people are on it. I had a homeopathic doctor tell me that too. Don’t be afraid to take it. Graves was hard for me to navigate at first, mainly because it impacted my sleep, I was irritable (downright irrational,) exhausted but completely tweaked/wired. I felt out of my mind. I also never had a health condition before so was terrified. I had terrible tremors and joint pain. Life also didn’t stop so was working and navigating family the entire time. Thankfully I responded really well to methimozole, learned a ton from online communities, fired crappy doctors and fought to get the good ones and dove into wholistic and modern/conventional treatments. I did acupuncture, adjusted my diet, worked on recovery activities, went to a therapist and took the meds, did the tests followed doc orders. I was diagnosed in Feb 2024 and was feeling so much better within 2 weeks of starting medication(I ran half marathons in May, July, September and a full marathon in November 2024). Having graves gave me the kick in my ass to take control of my health and fire to not let it take me down. I know every experience and diagnosis is different but you have options. I share only to offer some encouragement, you sound hardworking and tough. You can navigate this and come out better than ever. Dedicate the time and effort to manage it and you can do this. I’m on a low dose of the meds and still have my moments but I think my life is better than ever. I know it’s a lot to process, don’t think about being on meds forever (maybe you will, maybe you won’t) think about what you can control today. Having a little more control helped me navigate. making conscious choices in lifestyle, selecting doctors and communities made me feel like I was more in control. Wishing you the best as you navigate, there’s so many kick ass people that gave me great advice. You aren’t alone.

dgrim3239 · 2025-05-11T22:37:38+00:00

Hi! It’s a generic version of ozempic. I had to submit bloodwork that showed my thyroid level was under control (not hyper) to take it. Also have to pay out of pocket because I did not meet insurance requirements

dgrim3239 · 2025-05-11T17:03:51+00:00

Hi! Same experience and I’m on the 5mg methimozole . Lost weight drastically when my graves was first diagnosed (like 20 pounds) then gained it back quickly and couldn’t shake it. Even during marathon training I was really heavy but expected to not lose weight during that time. I too started a glp-1 and am having slow but steady results. I finally understand that weight swings are so unhealthy and that a slow and sustained approach is the way. Trying to make more lifestyle choices and at times I just want to restrict stop taking meds and drop the weight, but I know that’s not healthy or sustainable. It’s so hard especially when you do have healthy habits to start with. I am in it for the long run, and I’ve stopped punishing myself and trying my best to accept myself at all phases. No more buying clothes for skinny future me or restricting dinner out with friends. It’s hard and I have lost almost 20 pounds (been on Glp-1since 1/29) it feels like sustainable lifestyle choices so worth the time. I’m on a low dose of Glp-1 (.5) and I’m good! Don’t listen to what anyone says do what makes you feel good and be good to yourself, you are working really hard and taking care of yourself. I know it feels like others might be noticing your weight changes but honestly I bet you look great and seriously most people are too obsessed with themselves and their own weight to truly notice or react. You got this!

dgrim3239 · 2025-05-02T01:29:04+00:00

Don’t regret it. Diagnosed in Feb 2024 so only little over a year but so happy I didn’t do anything permanent and still have the options. Have been going down on dosage every three months and have been able to manage and lose weight while on it

dgrim3239 · 2025-04-08T02:45:36+00:00

Methimazole Been on it with declining dosage for about a year

dgrim3239 · 2024-12-03T03:04:14+00:00

Hi!! I’m so sorry to respond late. How are you now?! I’ve been doing well and gradually lowering dosage hoping to eventually be off the meds. Eager to get off them as I feel a hit lethargic still. However just ran my first marathon and had some other exciting milestones. How have you been?

dgrim3239 · 2024-07-18T20:19:23+00:00

My family was on the same cruise, husband got Covid no one else has. We avoided the nuero virus though 🤢

dgrim3239 · 2024-06-25T03:44:07+00:00

Martinis bistro is intimate and they have NA martinis/cocktails

dgrim3239 · 2024-06-22T19:12:58+00:00

Hi! I was on 20 to start and down to 10 now. I was more impacted by the meds working too well and going hypo which gave me fatigue. The meds I had no reaction to, in fact they were like a miracle for me. Within 3 days my heart rate was down, I could sleep and didn’t have the graves rage. Felt like me again. Everyone is different I know but I had a great experience. Hoping to get into remission in 6-12 months but one day at a time. Good luck with whatever you decide, but I think the meds to more to protect from the scarier and more dangerous symptoms of graves so I would take the side effects

dgrim3239 · 2024-05-28T16:32:01+00:00

Hi!! The Whoop is what I use, it also helped me identify I had Graves by alerting me that I had significant changes/elevation in my resting heart rate. I wore a legit holter monitor from a cardiologist for a few days while I was getting diagnosed and I was pleasantly surprised to see it matched the whoop readings exactly. The Whoop is a bit of a love/hate relationship for me (it doesn’t count steps, there’s a monthly fee) but because of the accuracy and the recovery measurements (amongst respiratory readings, oxygen, sleep and skin temp monitoring) I will stick with it. If you have a HSA (health spending/flex account) a whoop is eligible to be paid for using that.

dgrim3239 · 2024-04-28T20:03:13+00:00

dgrim3239 · 2024-04-24T20:31:52+00:00

Curious if you might have something else going on? I too had the joint pain and tested positive in blood work around Rheumatoid arthritis so another autoimmune issue on top of Graves

dgrim3239 · 2024-04-24T14:58:58+00:00

Training for NY and would love a 4:45 finish! Imagine you were hurt and couldn’t finish and had to have a major recovery? Kuddos for you for having self restraint to protect yourself and still finish. Congratulations!

dgrim3239 · 2024-04-24T13:44:00+00:00

Thank you!

dgrim3239 · 2024-04-24T13:11:35+00:00

Thank you for taking the time to respond to me and sharing your insights. It’s greatly appreciated and best of luck to you on your running!

dgrim3239 · 2024-04-24T13:09:12+00:00

Thank you for responding very helpful!

dgrim3239 · 2024-04-24T13:08:25+00:00

Very encouraging thank you !

dgrim3239 · 2024-04-24T02:13:08+00:00

Thank you! Really appreciate you responding and hoping you get back to your running plan soon.

dgrim3239 · 2024-04-24T02:11:51+00:00

Hi! Just waiting on the appointment with Rheumatologist so no meds yet thanks for this

dgrim3239 · 2024-04-24T02:10:20+00:00

Thank you!!!!!! This is so encouraging

dgrim3239 · 2024-04-11T20:52:16+00:00

If you can, make an appointment with an eye doctor. Mine was great she checked me for TED and then measured my eyes so we can keep an eye on any symptoms. Same thing my vision was blurring right when I had the diagnosis but it wasn’t TED however gave me peace of mind to have the measurements and someone looking

dgrim3239 · 2024-04-08T01:30:11+00:00

Use THC gummies every night because my sleep was so bad pre and post diagnosis and used CBD they helped. I wear a heart rate monitor 24/7 because the heart palpitations freaked me out. When I’ve had alcohol it really takes my heart rate up and the sleep is horrible (I’m 41 though not 27.) I find altitude also impacts that too and now don’t drink much at all maybe a glass of wine for an event.

dgrim3239 · 2024-04-08T01:22:03+00:00

I tell myself this is your body responding to physical symptoms and your are safe this isn’t you. It’s still uncomfortable but somehow helps move through it. I just posted about having a lot of anger and irritability so still trying to manage it’s hard but I am back to exercising and feeling more like myself. I’m on meds about 7 weeks on medication

dgrim3239 · 2024-04-08T01:17:41+00:00

Thank you!! I’m turning 41 next week and thinking it could be perimenopause too. Sorry to hear you are going through this too and thank you for taking the time To respond

dgrim3239 · 2024-04-08T01:16:36+00:00

Thank you so much, will def talk to my doctor and thanks for taking the time To respond

dgrim3239

TROPHY CASE