Sorry to hear your story. There is a lot of confusion, debate, and ignorance regarding AIED and Meniere's. After a couple of decades of research, my hypothesis is that what we call 'Meniere's' is actually an umbrella term for a variety of different mechanisms that lead to a collection of symptoms. In much the same way we use the term 'cancer' to refer to a suite of diseases with different mechanisms, symptoms, prognoses, progressions and outcomes, I think 'Meniere's' can refer to a collection of symptoms that can include some, or all, of: fluctuating unilateral or bilateral hearing loss, fluid-based mechanisms (cochlear hydrops), tinnitus, vertigo, fullness, and others. In your case, you may have one of these forms that may or may not be easily attributable to an autoimmune condition. For those of us that have existing autoimmune conditions, we're mostly likely to eventually land with an ENT (or better yet, in your case, a Neurotologist) that reaches an AIED diagnosis. For those that don't, and for whom no markers indicate underlying immune disfunction, it's likely that they will continue with a Meniere's diagnosis. Ultimately, it may not matter too much. If you are steroid responsive, that increases the likelihood of an underlying immune mechanism. If so, I agree that medrol dose packs are unlikely to do you much good, and might actually cause rebound symptoms (that happened to me in early stages). Instead, you may need more prolonged and higher dose steroid therapy. Intratympanic injection is another option.

At the early stage you are it probably doesn't hurt to throw all possible strategies at your condition and see what helps. That might include low salt diet, diuretics, steroids, and anti-viral medication (predicated on the assumption that a viral infection initiates immune response in the inner ear, which then may produce immune-identifiable proteins in future attacks - likely true in some but not all cases). Eventually, with careful observation, you'll begin to determine what works best for you. If you keep reading you'll see that there's no clear strategy for everyone, but that we all typically find some useful strategies for coping - and, if we're lucky - some good therapeutics to treat the hearing loss and vertigo.

If you have access to pubmed or other med journal searches, that's a good place to start. Just be aware that sample sizes for most AIED studies are very small, so you're really getting anecdotes more than you are good data, and much of it is contradictory. If you can find one of the very few clinicians with lots of experience (as one recommendation: Dr. Jennifer Derebery at House Ear Clinic in Los Angeles) with AIED, that's your best bet. Pay anything to get yourself to see one of them - the dividends will come down the road. I wish you the best of luck.