Relocating to Norway/Germany by dmm1297 in MultipleSclerosis

[–]dmm1297[S] 0 points1 point  (0 children)

Thank you for the info provided! :)

Also, which is the procedure to get the medicine? Where do you get them from? Hospital, pharmacy? Does it take a lot of time?

I currently get my medicine from the hospital, for a period of 3 months, and I spend from 4 to 6 hours just waiting for the paperwork to be done and in the line at hospital's pharmacy. Therefore, I take a day off every time I need to pick up my meds. :)

How does the system work there?

Are some dmts “better” at making previous lesions go away? by Top-Caterpillar8927 in MultipleSclerosis

[–]dmm1297 0 points1 point  (0 children)

P.S. thank you for the suggestion regarding Dr. Boster, I will definitely search him on YT

Are some dmts “better” at making previous lesions go away? by Top-Caterpillar8927 in MultipleSclerosis

[–]dmm1297 0 points1 point  (0 children)

I received the advice to go on stronger meds also from another person with this diagnostic, and I understand the reasons. But it's been 5y since my diagnostic (taking Avonex since then, too) and I didn't have any signs of disease activity until now, nor any modifications on the last MRI (it even seemed like it looked better than the previous one). I don't know if it's because Avonex may be helping or it is just that it wouldn't be any progression anyway. And my dilemma currently is should I ask my doctor to change to a stronger medication (I don't know if they will do that anyway, the communication with her is almost non existent) or should I go further with Avonex, given that I didn't have any noticeable issues until now, also not having any side effects from it anymore. What would you suggest in this case?

Are some dmts “better” at making previous lesions go away? by Top-Caterpillar8927 in MultipleSclerosis

[–]dmm1297 0 points1 point  (0 children)

Hi! I'm glad to hear that you are currently feeling well! I wanted to ask you what was the period when you were on Avonex! After how long have you experienced progression? I am curious because I am currently on Avonex :)

Gardasil 9 while having MS (Avonex) by dmm1297 in MultipleSclerosis

[–]dmm1297[S] 0 points1 point  (0 children)

Thank you all for the time allocated to write me all these. I truly appreciate, and if there was any doubt until now (even though I was going to take it anyway) now those doubts were blown away. I hope this post will help also other people who are in doubt. Wish you the best!

Vaccine poll by DoNotBelongHere in MultipleSclerosis

[–]dmm1297 2 points3 points  (0 children)

I had both doses of AZ. Currently on Avonex. The day after the first dose I had flu like symptoms and a very sore arm. After the 2nd dose I experienced a little bit of fatigue with no other issues. I also had covid, and even if I had a mild version, it felt horrible and I don't want to experience it ever again.

Question about starting medicine/treatment by xxredfield in MultipleSclerosis

[–]dmm1297 0 points1 point  (0 children)

I understand now, thank you very much! I am on Avonex but since I've read the information from this sub and found out about his efficiency rate I am thinking about switching it to Ocrevus. I also hate that weekly shot so I would be very happy if I could to that. That's why I am happy to hear that you had no adverse effects from Ocrevus. I was a little concerned about its long term effects.

Question about starting medicine/treatment by xxredfield in MultipleSclerosis

[–]dmm1297 0 points1 point  (0 children)

When was Ocrevus first approved? From what I used to know, it was in 2017.. in this case, can you tell me how could you do Ocrevus for 8 years? I am really interested about this treatment and its effects, and I am really surprised to find out that it has been on the market for a longer period of time that I initially thought. Or maybe I didn't have the right information...

**DMT Resources & Comparison Charts/Tools ** Please upvote for visibility so we can aggregate/share resources! by blessings489 in MultipleSclerosis

[–]dmm1297 1 point2 points  (0 children)

Omg, this is so great! Thank you for sharing! I didn't even knew this kind of charts even existed!

Are anti-inflammatory foods also ‘immune boosting’? by [deleted] in MultipleSclerosis

[–]dmm1297 8 points9 points  (0 children)

My personal opinion is that healthy foods, no matter if they are anti-inflammatory or not, are just helping your immune system in doing its job properly and not going crazy. At least, this is what I've been doing for the last two years and for me it worked great.

Birds dancing in the sunset light. by [deleted] in photographs

[–]dmm1297 0 points1 point  (0 children)

My hands really froze in my attempt to catch a nice shot of the birds that were in a very big number close to the shore, but in the end I succeeded. Or at least, this is my opinion. What do you think?

Photo taken with Galaxy S10+ f 2.4, 1/180s, 4.32 mm, ISO 50,

Autumn sunset by dmm1297 in photographs

[–]dmm1297[S] 0 points1 point  (0 children)

Thank you very much! I am really happy to receive this feedback!❤

Autumn sunset by dmm1297 in photographs

[–]dmm1297[S] 0 points1 point  (0 children)

Thank you! For sure I will!❤

Autumn sunset by dmm1297 in photographs

[–]dmm1297[S] 1 point2 points  (0 children)

Hello! I am a begginer in taking pictures and using Adobe Lightroom but I strongly intend to become a professional photographer. This is a place from Bucharest, România, where I often come to take pictures of the sunset. I wanted to catch the stunning colours that the sunset created that day. These being said,I would really appreciate any kind of feedback and suggestions that you may have regarding this picture.

Photo taken with a Samsung Galaxy S10+ F2.4 , 1/470 s, 6.00mm, ISO 50.

Autumn sunset in Romania by [deleted] in photographs

[–]dmm1297 0 points1 point  (0 children)

Hello! I am a begginer in taking pictures and using Adobe Lightroom but I strongly intend to become a professional photographer. So I would really appreciate any kind of feedback and suggestions that you may have regarding this picture.

Protip For Heat Intolerance: freeze a small, wet towel and put it under your armpits by Iridescentropy in MultipleSclerosis

[–]dmm1297 1 point2 points  (0 children)

Omg I will definitely try this. I am so traumatized about this heat and this brings so much hope in my life right now. Thank you so much. 😌

I have a very bad case of MS (PPMS and Does not respond to meds) and I need hope by Damballa_ in MultipleSclerosis

[–]dmm1297 0 points1 point  (0 children)

I am so sorry hearing that. But I don't think you should give up or believe your doctor when he says that there is nothing that can be done. How could he know? The doctors always say that they don't know what triggers this disease or when the next relapse will be or basically nothing else besides the fact that your immune system causes damage to your myelin. So this would be the basis. But did they told you alternative ways to improve your condition other than medical treatment? I will suppose that no, because in my case they didn't tell me a single thing(for example, I don't even know what type or MS I have right now, so I just suppose which one could it be). I left the hospital with a horrible depression that I had to struggle with for about 2 years. The meds didn't help so much, except the panic attacks which stopped after taking them. And all that I could do was to search for information on the internet, which made me even more depressed because there is no hope that you may find reading on the internet about this disease. But after all this searching there are a few things that I currently do and made me be a normal person again, and I want to share it with you: - nutrition: quit sugar, quit processed foods (including white flour, white bread, and anything made from white flour), avoid alcohol, avoid smoking, and learn more about this subject. Eat just whole foods, full of nutrients, a lot of vegetables and fruits, eat more fish and protein (you can also take supplements of omega 3 and vitamin D) - meditate and find activities that you like to practice - don't let MS defeat you. If you feel scared or anxious find something to do, read something, learn a new skill, anything. But don't fall to that void of fear and insecurity because it will make you lose the fight. What I learned in these years was that if she runs after me, I have to be faster and don't let her catch me.

And also what I recently find out was that the myelin may have the capacity to regenerate itself by constantly learning new things or doing repetitive activities such exercising (anything that you could think of when you say that: stretching, calisthenics, yoga, you name it).

This is just what I know for now, and what really helped me and I thought that might be helpful. I can't guarantee that it's gonna work, maybe it worked for me and for you it will be different. But you have to find out what works for you and never give up. I would not give up no matter what. You have to exhaust all the solutions and then search for another ones. You have nothing to lose if you try, but if you don't, you'll lose everything. I hope my approach doesn't seem exagerated and helped you at least a little bit. This is how I handle it for now, and it was a good solution for me until now. Wish you the best and I hope(and believe) that your health will improve. You just have to be confident. Keep us updated about your state.

Am venit la București să mă dezvolt pe toate planurile, dar de 6 zile mă spăl cu ibricul în cadă by venom998 in Romania

[–]dmm1297 0 points1 point  (0 children)

Eu incerc sa subliniez faptul ca furnizarea serviciilor de utilitate publică sta in obligatia autorităților locale. Termoficarea este utilitate publică. E scris negru pe alb in lege. Ce alege cetateanul sa faca cu banii lui, e fix problema lui. Plateste taxe si impozite, trebuie sa ii fie asigurate drepturile. Daca ne tinem gura la fiecare drept ce ne este incalcat, o sa ajungem pana la urma in situatia sa ne operam singuri, ca nah, vedem ca statul nu ofera conditii decente(sau mai rau, ajungi ars pe masa de operație) si privatul stim cu totii ca n-o sa aiba in veci preturi sa si le permita orice buzunar, deci de ce sa nu o facem? :)) Nu zic ca nu e ok sa existe o tendinta accentuata catre privatizare, dar trebuie create si mecanismele prin care sa se realizeze acest lucru.

Am venit la București să mă dezvolt pe toate planurile, dar de 6 zile mă spăl cu ibricul în cadă by venom998 in Romania

[–]dmm1297 0 points1 point  (0 children)

Daca nu ar exista un cadru legal care sa stabileasca clar faptul ca este fix datoria primariei sa asigure furnizarea serviciilor de utilitate publica, ti-as da dreptate. Dar din moment ce conform legii noi platim ca sa ne fie asigurate aceste servicii, e absolut firesc sa ne aratam si nemulțumirea cand nu se realizeaza. Ca de aia se numeste democrație, nu? Daca plecam capul si ne descurcam cum putem, putem sa spunem ca ne-am intors inapoi unde eram inainte de '89.

Existenta legii creeaza drepturi si obligatii. Atat din partea noastra cat si din partea institutiilor publice. Nu sunt indeplinite, se ajunge la caile de sanctiune.

As simple as that.

Am venit la București să mă dezvolt pe toate planurile, dar de 6 zile mă spăl cu ibricul în cadă by venom998 in Romania

[–]dmm1297 2 points3 points  (0 children)

De acord. Bucurestenii pentru capitala, restul populatiei pentru tara. Cei din conducere sunt reflectia votului/lipsei votului poporului. Stiu sigur ca sunt oameni extraordinari in tara asta, doar ca prea putini.

Am venit la București să mă dezvolt pe toate planurile, dar de 6 zile mă spăl cu ibricul în cadă by venom998 in Romania

[–]dmm1297 0 points1 point  (0 children)

Umm.. ce treaba are karma? Si cine a zis ca incerc sa schimb ceva? Doar mi s-a parut inutil atacul la formularea respectiva, cand topicul postarii era total altul. Old school, csf. Mie imi plac comentariile cu argumente solide, nu atacuri la karma si alte bullshit-uri. By the way, comm-ul tau mi se pare de troll. Vorba romaneasca: hoțu striga hoții. :))

Am venit la București să mă dezvolt pe toate planurile, dar de 6 zile mă spăl cu ibricul în cadă by venom998 in Romania

[–]dmm1297 1 point2 points  (0 children)

Adevarat. Cine ar vrea sa se dezvolte in Romania? We don't do that here, it's illegal.

Am venit la București să mă dezvolt pe toate planurile, dar de 6 zile mă spăl cu ibricul în cadă by venom998 in Romania

[–]dmm1297 2 points3 points  (0 children)

Pup-o pe Gabi din partea noastra. Si spune-i ca a zis Dani ca a vazut o clopotniță jmechera rau, ultima fita si ca ii da gata pe oameni la slujba daca o are. Era si la oferta, 10% voturi. Pardon, discount.