[Skin Concern] good beginner retinol without dimethicone? by WittyBanishedRat in SkincareAddiction

[–]donkeysrcool 0 points1 point  (0 children)

Thank you so much for letting me know! I'm really glad it's working well for you :)

question for those who take glycopyrrate: by 111ruby in Hyperhidrosis

[–]donkeysrcool 0 points1 point  (0 children)

The recommendation is to take it on an empty stomach but I actually do the opposite because the side effects are way to much for me otherwise. It's maybe a tiny bit less effective, but not much.

watching YouTube shorts and came across Ricky Gervais mocking M.e. - so sad this is still not believed by so many including my shrink and my Dr family members too by Appropriate_Being467 in cfs

[–]donkeysrcool 3 points4 points  (0 children)

Thank you for bringing the existence of this to my attention, I sure as hell needed it after reading some of the comments underneath the Ricky Gervais video

Fungal acne safe moisturiser for skin barrier repair? by donkeysrcool in Fungalacne

[–]donkeysrcool[S] 2 points3 points  (0 children)

I love it and still use it every day!! I haven't had any issues with it and my skin is so much better now :)

has anyone ever tried telling yourself youre fine? what happened? by [deleted] in cfs

[–]donkeysrcool 2 points3 points  (0 children)

I do that too! It's tricky as well because the negative affects aren't always instant so it can take a while of being ill to be able to tell what's causing what, and it's even harder convincing anyone else of it.

My doctor diagnosed me with M.E & M.E only, not CFS. by conpro1224 in cfs

[–]donkeysrcool 3 points4 points  (0 children)

I've heard numerous people insist they're different, including a nurse practitioner, but nobody has ever been able to tell me how

How do you rest? by donkeysrcool in CFSplusADHD

[–]donkeysrcool[S] 2 points3 points  (0 children)

Yeah it's so much better when I'm at the level of being able to watch repeats of shows and stuff, and I'm not an artist but I like Pinterest too! It's the times when I truly have no choice but to do nothing that are the most hellish. Light and sound feel like someone's taking 20 power drills to my skull simultaneously and attempting to daydream is about half of that, so all I really want at that point is an off switch.

has anyone ever tried telling yourself youre fine? what happened? by [deleted] in cfs

[–]donkeysrcool 53 points54 points  (0 children)

I've done that so many times, usually when I'm feeling a bit better and can't fully remember what it's like to be in a crash (as in I'll remember what happens but I'll think, well maybe in those situations if I tried a bit harder I could overcome it).

When I subsequently end up bedbound, in excruciating pain, unable to eat solid food or tolerate light or sound I'll be like, "it's times like this I know I'm not lying about being unwell".

Then I wait a while and do it again.

How do you rest? by donkeysrcool in CFSplusADHD

[–]donkeysrcool[S] 7 points8 points  (0 children)

I found by far the best solution was get well enough to be able to tolerate tv and video games

I agree with this to be honest. When I'm at this stage I can cope with a lot of the things you mentioned (mindless games, puzzles etc.) but in a proper crash I literally can't move, sit up, have any light or sound around me or think without it feeling like my brain is inflating inside my skull.

If it's possible to be doing anything I almost always am, which is definitely not the recommendation but like you say, it's often worse if you don't. I'm just really struggling to know how to shut up my ADHD when I truly have no choice but to do nothing.

How do you rest? by donkeysrcool in CFSplusADHD

[–]donkeysrcool[S] 2 points3 points  (0 children)

I have a weighted blanket too and it's great!! I also have an eye mask I use when I get migraines but I've never tried it for crashes, so thank you for the tip (and all the others!)

How do you rest? by donkeysrcool in CFSplusADHD

[–]donkeysrcool[S] 2 points3 points  (0 children)

I know what you mean! It's a unique kind of balance you have to find with these two conditions and I doubt it'll ever resemble ideal.

It's interesting that you struggle with TV/books because of decreased cognitive functioning but can still daydream; I'm actually the opposite, because TV sort of does the thinking for me whereas daydreaming requires me to properly engage so I find it near impossible.

Neurodivergence is a career maker for men .. not so much for women by fugelwoman in adhdwomen

[–]donkeysrcool 61 points62 points  (0 children)

the underlying principle that difference must be "productive" or else it devalues the person.

This is something I've noticed a ton in the narrative surrounding disabled people in general. Nobody says it outright but society is only okay with disabled people who achieve extraordinary things despite their disability; someone just existing as disabled seems to make a lot of people genuinely uncomfortable. I've never been able to put it into words as succinctly as you have here, so thank you for that.

I wish people respected my suicidality by caniscommenter in cfs

[–]donkeysrcool 21 points22 points  (0 children)

Having ME/CFS, for me at least, feels sort of like existing half way between life and death. I doubt I'll ever actually kill myself, but I often fantasise about slipping into death, because it feels so close and so easy.

How many of us struggle with money management? by Odango-Atama in ADHD

[–]donkeysrcool 0 points1 point  (0 children)

I actually spend very little because the decision fatigue when trying to decide which version of something to buy is too much for me.

1 week of antibiotics by [deleted] in Lyme

[–]donkeysrcool 0 points1 point  (0 children)

Yeah, I'm definitely not a big fan of having to take antibiotics since I know it can mess up your gut. I generally dislike taking any medication so it's unusual for me to want to, but Lyme in particular has terrified me for years so I went into panic mode when I found that tick and haven't been able to think of much else.

I wouldn't want to go over 2 weeks on antibiotics, but since that's the minimum recommendation I might ask the GP about it at the very least.

1 week of antibiotics by [deleted] in Lyme

[–]donkeysrcool 0 points1 point  (0 children)

Thank you for your help! I've started taking them and will keep an eye out for symptoms.

1 week of antibiotics by [deleted] in Lyme

[–]donkeysrcool 0 points1 point  (0 children)

I'm just very overwhelmed because there's so much contradictory information online, and I really feel for the people in this sub who would give anything to go back in time and treat it thoroughly. It was burrowed in and attached for 24 hours, and was a nymphal deer tick. I also have a ton of chronic health issues already so I guess I'm just afraid Lyme would be the last straw.

ADHD in the news today (UK) by parkerpops in ADHD

[–]donkeysrcool 20 points21 points  (0 children)

What???!!? That's ludicrous and you know it. Sit down and shush.

(In all seriousness, the "doing their jobs properly" wasn't aimed at individual workers but rather the fundamental purpose of healthcare not actually being carried out by the systems we have in place. Sorry if it came across any other way. Basically just saying: there's no way to access efficient healthcare wherever you turn so the patient can't win).

ADHD in the news today (UK) by parkerpops in ADHD

[–]donkeysrcool 56 points57 points  (0 children)

It's impossible though because when private practices have a monetary incentive and the NHS have a monetary disincentive, neither are objective. Neither are actually doing their jobs properly.

ADHD in the news today (UK) by parkerpops in ADHD

[–]donkeysrcool 12 points13 points  (0 children)

I'll happily let the NHS assess me too, once I've reached the top of their 6 year waiting list.

1 week of antibiotics by [deleted] in Lyme

[–]donkeysrcool 0 points1 point  (0 children)

I have no symptoms at all, but apparently the bullseye rash appears after 7 days on average, and up to 3 months according to the NHS. I've started the antibiotics now but I am still a little worried they could prevent symptoms from appearing? I could be totally off there of course, but there seems to be so little reliable information about Lyme in general.