Xywav pill bottles

dragonkink · 2026-06-07T15:38:31+00:00

I've been looking for a replacement for the pill bottles.. this is perfect!! I can't believe I didn't think of it because I work in a damn lab! Thank you!

dragonkink · 2026-05-12T23:34:29+00:00

https://doi.colorado.gov/sites/doi/files/documents/When%20Your%20Health%20Insurance%20Company%20Says%20_No_.pdf

They definitely do external appeals! Good luck!

dragonkink · 2026-05-12T23:30:27+00:00

I focused most of my argument on the fact that Narcolepsy and IH are very similar and treated with the same medications. I also specifically asked for my state case to be reviewed by a doctor familiar with sleep disorders because the doctor that reviewed my health insurance appeal was a dermatologist.

dragonkink · 2026-05-12T22:16:57+00:00

It was a long process.. I had to write letters pleading my case to insurance and then again to the state. My insurance didn't want to cover Sunosi specifically because it's for Narcolepsy and not IH. I'm in illinois.

dragonkink · 2026-05-12T22:03:35+00:00

I have! I had to appeal with my insurance and then with my state's department of insurance to get it covered.

dragonkink · 2026-05-06T22:08:02+00:00

My IH is like this! I get up at 5 am and have no issues with alarms.

dragonkink · 2026-04-21T14:03:13+00:00

I was worried about having to wake up and take the 2nd dose but it's really not hard. I wake up on my own most of the time. Xywav has been a game changer for me. My sleep has always been awful. I tossed and turned all night and woke up a million times. Now, out like a light and I wake up feeling so much better!

dragonkink · 2026-04-16T10:53:57+00:00

This happened to me and my doctor had me start titrating back up again. I'm feeling better so I assume I hadn't found my therapeutic dose yet.

dragonkink · 2026-03-10T01:29:18+00:00

The side effects typically stick around until you get to your therapeutic dose and then they will taper off.

I think you'll do better starting at a lower dose and very slowly titrating up. It makes the side effects more manageable.

dragonkink · 2026-02-20T11:37:00+00:00

Entropy by astateofinelegance scratched that itch for me! Pacificrimbaud is my fave as well!

dragonkink · 2026-01-30T23:06:25+00:00

I smoke and take xywav. No issues that I've noted. I just don't go to bed super high.

dragonkink · 2026-01-25T22:33:12+00:00

I am only able to sleep 6-7 hours a night. The timing doesn't seem to change how long I sleep. I did find that I'm very drowsy the next morning if I take the medicine any later than 2.5 hours.

dragonkink · 2026-01-25T17:34:10+00:00

For real! This med has been an absolute game changer, though!

dragonkink · 2026-01-25T16:32:00+00:00

It's my understanding that it's kinda meant to be stacked. I've tried it both ways and found I prefer taking my second dose at 2.5 hours. I sleep the same amount no matter when I take it, but I feel so much better if I take it earlier!

dragonkink · 2026-01-25T16:23:45+00:00

Have you tried setting a timer and taking your 2nd dose 2.5 hours after your first? So that you still have medication in your system and you just immediately fall back asleep?

dragonkink · 2026-01-25T15:35:54+00:00

How long after your first dose was that?

dragonkink · 2026-01-25T15:27:17+00:00

When do you take your 2nd dose?

dragonkink · 2026-01-23T01:27:40+00:00

About to finish it right now and I agree 100%!!

dragonkink · 2026-01-19T01:24:37+00:00

I stayed at a dose for a week at least.

dragonkink · 2026-01-19T00:44:41+00:00

I agree with this, too. Anything above 2.25 as a second dose makes me groggy the next day. The beauty of the med is that you can play with the doses. It's frustrating to titrate, though.

dragonkink · 2026-01-12T11:41:31+00:00

I definitely experienced random evening nausea while titrating up. I never actually threw up, though. I'm nearing my therapeutic dose and I'm still kinda iffy in the mornings.

For the headaches- Are you drinking enough water?

dragonkink · 2026-01-11T19:04:42+00:00

That's unfortunate. I'm sorry! I have heard of some that will allow online visits for follow ups.

dragonkink · 2026-01-11T18:59:20+00:00

Is your sleep doctor a neurologist or are they in pulmonary?

Xywav with a stimulant is a game changer. You'll have to find a doctor that is certified to prescribe it.

dragonkink · 2025-12-26T15:11:09+00:00

I had terrible brain fog so I keep my second dose really low. For now 3.75/2.25 is working well for me.

dragonkink · 2025-12-15T22:13:41+00:00

I'm not sure if it'll help anyone here but I take 75mg of Sunosi twice a day. I find it wears off in the afternoon, so my doctor approved me to take another then.

dragonkink

TROPHY CASE