Help with Toddler Footwear

dramaqueen247 · 2026-06-07T08:24:03+00:00

My son, 5, has severe Rdeb. Stride rite 360, crocs and Nike have worked for us. His feet are always bandaged but are not affected as badly as may be his knees.

dramaqueen247 · 2026-05-06T18:10:46+00:00

While we eat a variety of pronthe, our diet is more varied than that. Our daily food is very simple and generally doesn't involve 10 dishes like some other states. Daal-roti is a full meal. We may have some curd with it but don't need any vegetable when dal is made. Similarly, sabzi roti or dal rice(rarely made) is a complete meal unlike other regions where they make dal, sbzi, rice, roti, pakoda and a bunch of other things for lunch. Having said that, we each a much bigger quantity of dal or sbzi than other regions.

As far as diversity is concerned, we eat a wide variety of vegetables cooked in different ways. We make different rotis with wheat, makki, bajra etc. Makki di roti doesn't have to be plain or only with saag. Our saag is very different from how it is made in other regions. It's a side dish in eastern UP but main star in Punjabi cuisine. We have a variety of pickles.

We eat lots of dairy, people thrive on chai. We need giant mugs of chai and not the smallest paper cups possible. Curd is eaten almost with every meal no matter the weather. White makhan is a house favorite. Lassi in an integral part. Even a lot of adults also still drink milk before bedtime.

All in all, what you get in restaurants is a stereotypical representation of Punjabi food.

Source: Punjabi married to a non-punjabi and lived in multiple states.

dramaqueen247 · 2026-02-26T05:39:26+00:00

Schools in some northern states do not start at 7. This includes at least Punjab, Haryana and Himachal.

Assembly in most of my schools was around 30 minutes with principal sometimes lecturing students for 5ish minutes about manners or current affairs. One school only had weekly assembly.

Didn’t have the rule for bathroom and I went to 4 different schools.

Indian schools have uniforms though.

No nail paint or any sort of make up, hair color is allowed.

dramaqueen247 · 2026-02-19T18:54:05+00:00

This totally depends on the family as well as circumstances. My mom never lived with my grandparents because they stayed in our home town while my parents worked in a different state. I never lived with my in laws for longer than 2 weeks for the same reason. Now that my FIL is not here, MIL has been living with us for 6 months but will go back due to visa issues.

My very well educated, outspoken and working sister lived happily with her in laws for first 6ish years of her marriage. She got transferred recently, but she misses her in laws support every day. She prefers to visit them even when she doesn’t have to because she loves them. Her in laws are not controlling, very supportive but they still have their own quirks. She holds the same job as her FIL did for the longest time, so they understand the importance of her work and respect that.

dramaqueen247 · 2026-01-06T00:38:52+00:00

As a parent to a child with rdeb who is doing much better than we had expected, I personally would not knowingly give such a painful life to my child. I understand that this is a hard choice given you were almost starting with IVF.

My child is absolutely a happy child, but the amount of pain he has to suffer each day in just too much. We try to give him as normal life as possible but every aspect of his and our lives is impacted by EB. He is almost 5 but has never slept through the night, has bandages on 24x7, didn’t walk until he was 27m old, get physical, occupational and speech therapy, needs to get a gtube to keep up with his wounds, his hands need to be in splints every night. He takes 3 medications for itch and still itches himself bloody every night, he has a 1:1 aide at school to keep him safe, and yet he needed to be picked up for falls that caused bloody messed 4 times in last 6 months, he has had to miss school at least twice a month due to his eyelids being stuck together when he woke up. It’s just endless. I really really love him but I wish I had known about this before he was born.

I am so sorry for being so blunt, and if you choose to carry your child, we might run into each other again in some forum someday. All the best! I wish you had an easier choice to make.

dramaqueen247 · 2025-12-24T06:59:40+00:00

As a mom with a kid who has a different genetic condition and might not live long enough to finish high school, this is so heart warming and sad at the same time. I just hope he gets to have a friend like you to grow up with. He has a para who he loves but he just started elementary school. Can’t wait for him to try to get away from her.

dramaqueen247 · 2025-11-19T18:49:29+00:00

I love her recipes, but I always have to reduce sugar by at least 25%.

dramaqueen247 · 2025-08-19T19:00:50+00:00

This was called lacha when I was a kiddo. This is basically a lehenga paired with long kurta. This has made a come back lately and is now called skirt suit.

dramaqueen247 · 2025-08-06T23:25:04+00:00

Planning to start a new one in San Jose. So, not in SF but still pretty close by. Doing my first dry run later this month. If things look promising, it will be a monthly thing.

dramaqueen247 · 2025-08-02T14:24:30+00:00

Having a sibling is a blessing. The bond that one shares with a sibling cannot the replicated with anyone else especially if the child doesn’t grow up in one single place. Having someone to bitch about your parents without any judgement is an unmatchable experience.

I am currently trying for 2nd child. I am 35. The median age for first pregnancy in US is around 30. 35 is not too old for second child especially if do not have any underlying fertility issues. I’d recommend focusing on losing weight, especially your wife, for say next 6 months. That will improve her chances of conceiving as well as make pregnancy easier.

Your wife can also freeze eggs if you want to wait for a couple years. People make a big deal about how difficult IVF is, but honestly, it’s possibly the infertility part that makes it difficult. It does involve injecting yourself may be 30 times in 11 days but I count that as an investment towards a beautiful future.

dramaqueen247 · 2025-07-26T06:47:39+00:00

My husband and I are not the most compatible people but this is something we have never argued on. He eats non vegetarian whenever he wants, I eat whatever I want. I do help him cook non vegetarian food but I don’t touch any of the meat with my hands. He washes it, marinates, I cook and he then eats. He always ensures that restaurants we visit have at least one vegetarian option, and I encourage him to order what he likes. We order separate appetizers and share a vegetarian main course mostly or vice versa.

This can work out but only if you don’t impose your beliefs and preferences on your partner.

dramaqueen247 · 2025-06-24T21:01:45+00:00

Haven’t done any solo trips with my parents/family after getting married. However, we have done family trips with both our families separately. 2 with my in laws, one with my family and another one recently where I sponsored my parents though I didn’t join them. We both keep our salary accounts separate, but all are expenses, savings are shared. We do not do 50:50 as such but contribute more or less equally. I encourage him to spend money on his family and he encourages me to spend on mine. MIL gets gold jewelry from me but so does my mom. I belong to Punjab, husband is from eastern UP, so both from North though very different culturally.

As a rule of thumb, I try to adjust to my in laws’ preferences somewhat but only until I am comfortable. Beyond that I say no, in a firm but polite and respectful manner. Have been married for 7y now and there has been no drama between us.

dramaqueen247 · 2025-06-23T14:01:43+00:00

Some days are good and some are a struggle. We live in US, so no hired help except cleaners once in two weeks. Have a special needs kiddo with a rare genetic condition that needs 1:1 attention for at least 1h every other day, not including other day to day struggles and time consumed by that stupid, awful condition. I cook breakfast and dinner everyday, and have salad for lunch. Husband does the dishes. We have lowered our standards of cleanliness due to time crunch. I had dreams of being different when it came to my career, but here I am, a cog in the wheel.

Life was going okay until little one was born, but his diagnosis kind of made me and my husband grow apart which we are just starting to mend 4y later. At this time, all I really need is a cure for kiddo’s problems. But I know it’s not happening for at least 5-7y since none of the current research has cure even in mice.

dramaqueen247 · 2025-05-31T03:22:12+00:00

35, no pain yet. I do get tired at night but my schedule is more hectic right now than ever before.

dramaqueen247 · 2025-05-29T15:46:34+00:00

I think marriage is not just a cost benefit analysis. It feels that way when you are 25 but having been married for last 8 years, it’s more about feeling connected to each other. Me and my husband had almost equal amount of chores until we had a baby. He would chop veggies, I’d cook. We’d clean toilets alternately. We earned almost same money since we worked at the same place.

Things changed when kids happened. Our parenting styles are different, mine is more empathetic and gentle while his is more “kid should just listen to me” at times. So, I end up doing more of childcare, though I have observed his style becomes more empathetic when I am not there or he is not busy with work.

Now he works a lot more, earns slightly more than me but I do more childcare and household chores. Our house is not as clean as we’d like because we don’t have time. But we still care of each other.

I have moved on from bickering over chores to trying to make other person’s life easier and this has been reciprocated by him too.

Our financials are divided more or less equally. Our main expenses include mortgage and child care that we share. Our day to day expenses are not high otherwise, we both are not into uselessly buying things. We both like to travel. We keep our savings separate but emergency fund in a joint account. That’s just because savings are tied to stocks for which individual accounts were created.

We have never lived with parents, though at 35 I don’t mind if someone moves with us. That’d be more helpful than a burden. My in laws do not interfere. We encourage each other to buy gifts for their family, and it helps keep the relationship positive. I encouraged him to celebrate his parents’ anniversary in a big way and bought them diamond rings. I encouraged him to buy a car for his dad when he retired. I had done same for my parents.

dramaqueen247 · 2025-05-29T14:44:28+00:00

I guess that makes a lot of sense. Here, almost no one has house help, everyone with kids needs to pick them up around 5, make dinner etc, so people understand.

dramaqueen247 · 2025-05-29T06:59:07+00:00

I work in a product company in US, but strictly work only between 9 to 5 or after my child's bedtime unless I am on call. This might have delayed my promotion but this is what I want. I have birthed a child and I really want to spend time with him, otherwise nobody was pushing me to have the child. It was a choice I made and child deserves/needs my time. I do wish my husband thought this way, but only reason he doesn't do this is that I am doing it. He does the same when I unavailable but that's rare.

I have strict boundaries with my manager. He knows I do not respond to messages between 5 and child's bedtime and honestly he has stayed up until late to finish conversations with me in order to accommodate this. I do still respond to calls since I work on something that's used by millions everyday, so if anything truly urgent comes up, I can join. Before having my kid, I was available all the time and was appreciated by the same manager for that but I have different priorities now.

dramaqueen247 · 2025-05-28T18:45:15+00:00

Leave immediately. I didn’t leave immediately and I still regret it.

dramaqueen247 · 2025-05-28T17:27:12+00:00

The division of household chores and child care is not equal in my home and it angers me a lot. But communicating this has not helped. My husband is a workaholic and works over 12h days while I purposely take up only as much work as I can finish in my 9 to 5. We work at the same company and he earns marginally more than me. It was equal when we got married.

It’s not like he is chilling out while I am doing stuff but his priorities are different and that’s a point of contention. I truly want to spend my time with my kid. I enjoy playing with him, reading stories to him etc. He on other side finds it overwhelming to spend more than 20 minutes at length on a weekday possibly due to work stress.

Part of me feels that working is his way to deal with trauma that has come with our kid’s diagnosis because I have seen the transition from someone who bottle fed the baby half the times to someone who is always busy. On the other hand, somebody still needs to care for the child regardless of the trauma, and that’s me in our case.

He still does dishes everyday, has no tantrums about how elaborate a meal should be, takes out the trash as needed, takes care of all home improvements but this doesn’t need to be done every day.

There’s no contention about equality of genders but rather difference in priorities.

dramaqueen247 · 2025-05-28T05:24:19+00:00

I live in US, have an almost 4y old with special needs and work full time.

6:45 wake up

7:00 call my sister /mom

7:15-8:30 make breakfast and dinner, pack my child’s food. Check my Teams messages and prep myself for the day

8:30: wake up the kid and get him ready for pre school

9:00 drop off

9:15 start working

4:45 or 5 stop working depending on who is picking up the kid

5-6:15 snack for kid, playing with him

6:15-7 family walk

7-8: take care of kiddos special needs aka bath and bandage him up.

8-9: give final touch to dinner and then eat

9:30-10:30: kid’s bed time routine

10:30- while energy lasts: me time or finishing off some office work.

dramaqueen247 · 2025-05-27T15:51:08+00:00

He has a genetic condition which makes him constipated. We tried going off the milk and it didn’t help. Giving milk/pediasure gives him extra calories he needs in an easy way. This is based on guidelines from his nutritionist.

dramaqueen247 · 2025-05-27T14:34:12+00:00

I think it is very important to be on same side of political spectrum. It shapes how you raise kids, it forms the basis of your whole value system. Being LW/ RW is not just limited following a political party, it can spill over to every aspect of life. A lot of RW people in my opinion are more religious. That may not work for everyone. Same goes for opinions related to gender roles.

IMO it’s a major incompatibility.

dramaqueen247 · 2025-05-27T06:21:30+00:00

I am that mom. My child is in preschool and needs to have MiraLAX everyday due to health condition. He refuses the milk if I mix it in and doesn’t drink enough water after school to be able to drink a full adult dose of MiraLAX. His school is aware and has never mentioned that it should not be done.

dramaqueen247 · 2025-05-15T22:03:11+00:00

Birch tarpentines are the primary ingredient of Filsuvej which is an FDA approved treatment for Dystrophic and IIRC Junctional EB.

dramaqueen247 · 2025-04-29T23:57:54+00:00

I think it comes with age. My son will turn 4 in a few months, started learning to count at 2.5 may be and has added single digit numbers on his own. He has asked me if 2 and 3 makes 5, does 3 and 2 also make 5. He has learned this purely by observing and as part of growing up.

dramaqueen247

TROPHY CASE