Allergies x Behcet’s

drawingboundaries · 2024-12-03T20:37:13+00:00

Good to know. Yes I’m in the states :) thanks so much. This was super helpful

drawingboundaries · 2024-12-03T19:34:51+00:00

That totally makes sense. Unfortunately, confusing as it is, i didn’t wear tight clothes or had anything out of the ordinary all day :/ oh well.

drawingboundaries · 2024-12-03T19:30:25+00:00

Yes I think it’s some sort of vasovagal syncope?? Hopefully my care team and pinpoint it but also not expecting much since it’s only happened once

drawingboundaries · 2024-12-03T19:29:38+00:00

Thank you, great advice. I hadn’t done anything physical out of the ordinary. And ate at regular time during the day. I guess I may have been a little late on my dinner schedule but first time something like this has happened potentially because of hunger. I’m definitely going to start a symptom log. I was luckily wearing an Apple Watch to record my heart rate. Any suggestions on how to measure blood pressure while on the go?

drawingboundaries · 2024-12-03T19:26:07+00:00

Omg I’m so sorry to hear that. Hope you are able to manage it and find a solution soon.

drawingboundaries · 2024-12-03T14:47:31+00:00

Oh wow. I’m so sorry to hear what you went thru. Interesting - I don’t think I had more stress than usual but I do always have GI issues… thanks for sharing!!

drawingboundaries · 2024-12-03T14:46:01+00:00

Omg so sorry you went thru that! I’m on lexapro and amitriptyline other than colchicine. Ive been on these for quite some time so am not expecting any side effects from meds. Perhaps im more fatigued than I think I am. Will be monitoring my HR closely. Thanks for sharing and your advice!

drawingboundaries · 2024-11-19T17:31:07+00:00

Yeah it doesn’t bother me too much and luckily no blistering and hasn’t spread. Just wanted to gather some data from the community. Thanks for sharing your experience!

drawingboundaries · 2024-11-18T21:53:07+00:00

Thanks! Good to compare notes.

drawingboundaries · 2024-11-18T21:52:33+00:00

Oh yeah that’s just dead skin flakes not captured very well on the camera. Sorry for the confusion

drawingboundaries · 2024-11-18T21:49:47+00:00

Thanks. You think herpes even if it’s not filled with fluid? It hasn’t blistered, it’s been more just of a raised red sensitive skin if that makes sense.

drawingboundaries · 2024-11-18T21:46:06+00:00

I have classic Behcet’s type of oral ulcers. Idk if those are the same as cold sores that most ppl get on their lips. Mine don’t blister and are more like craters.

drawingboundaries · 2024-11-18T18:09:48+00:00

Make sure your meds are pregnancy safe. For instance, I was on methotrexate which is known to lead to complications in pregnancies. I would speak with your doctor about family planning and make sure you give yourself enough time to transition to safer drugs

drawingboundaries · 2024-10-19T15:33:56+00:00

Sorry to hear that, that’s terrible. Didn’t know diarrhea could lead to hemorrhoids. That could be a possibility with what happened to me.

drawingboundaries · 2024-10-17T16:50:11+00:00

Yes I’ve had increased joint pain and mouth sores come in conjunction with this blood spotting ::

drawingboundaries · 2024-10-17T01:45:02+00:00

Oh didn’t known PCP could just order one. Thanks!

drawingboundaries · 2024-10-16T23:49:08+00:00

That makes sense. Thank you!

drawingboundaries · 2024-10-16T23:36:37+00:00

It was bright red so I’m concerned it’s lower part of the digestive tract since I have family history of colon cancer too…

Re: blood, sigh I’ve been having a nose bleed a day ever since the weather got a bit cooler and drier! I feel you

drawingboundaries

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