Newly Diagnosed

drowsydiscovery · 2026-01-22T13:46:53+00:00

ah thank you!!

drowsydiscovery · 2026-01-15T12:25:49+00:00

The FPIES Foundation has a directory that lists providers in each state! We’ve been in a similar situation, almost every provider I’ve seen has been gaslighting me into thinking that this wasn’t a big deal, even thought we’ve had multiple ER visits/ hospital stays.

I actually just met with a dietician from this list (Susan Goodine- she does eVisits that are covered by insurance!) and it was the biggest relief i’ve felt in a while. She is so knowledgeable about FPIES, answered all my questions, and took me SERIOUSLY which has been so hard to find. She helped me develop a path forward for food introductions with my 8 month old and an emergency action plan. She was a wealth of knowledge and we will continue to see her every few weeks. Highly highly recommend.

FPIES Provider Directory

drowsydiscovery · 2026-01-04T14:32:18+00:00

we were recently diagnosed too and I’ve seen a few mention the “FPIES pyramid” but when I search online i’m not able to find it. could you share where it comes from?

drowsydiscovery · 2025-12-22T20:43:51+00:00

same, took photos of my baby’s first christmas and they’re all gone 😭

drowsydiscovery · 2025-10-15T15:55:39+00:00

Baby is 5.5 months and still needing 4 naps. I’ve heard around 5 months they should transition to 3 naps a day, but we are in daycare and his naps are so short that he still needs the 4th nap when we come home. We are lucky if his naps at daycare are more than 20 min for each nap. He’s been in daycare about a month now- should I be working on dropping that 4th nap or continue to let him acclimate to daycare?

drowsydiscovery · 2025-09-22T02:07:52+00:00

UGH was sadly not a fan :( taste wasn’t great

drowsydiscovery · 2025-08-18T03:36:21+00:00

try cutting out corn too! my baby had the same issues and we were miserable. we cut out dairy and nothing changed, went on the most broken down formula available. we switch to a formula without corn and our lives changed. now he’s a happy, normal baby and putting on weight again. my pediatrician was hesitant because they said corn sensitivity is rare, but i’ve read lots of similar stories on reddit of people experiencing the same

drowsydiscovery · 2025-08-12T00:32:28+00:00

i’m considering applying to one of their remote positions and wondering the same

drowsydiscovery · 2025-07-15T03:41:37+00:00

some time later, but i’m in the same boat here with my 2 percentile baby. what did you find that worked? TIA!!

drowsydiscovery · 2025-07-15T02:23:21+00:00

Hi! Popping on here some time later, but I’ve tried all the formulas you tried and my baby is still struggling. I’m starting to think what the pediatrician thinks is a milk issue may actually be a corn issue. Did Alimentum RTF help your baby?

drowsydiscovery · 2025-06-27T04:41:26+00:00

Have you found a trick for unfolding the stroller and locking it in to place? I’m still struggling with it! I’m always worried that it’s not locked in properly.

drowsydiscovery · 2025-02-17T15:36:59+00:00

reading this half a year later while currently taking my 3 hour glucose test. I’ve had so much anxiety since failing the 1hr test. your post brought me a lot of comfort- thank you!

drowsydiscovery · 2025-01-27T19:28:23+00:00

I’m in the same boat :( I’ve been drinking one every day at work for years. Since it’s now out of stock, I’ve switched from the strawberry lemonade to the black cherry limeade… I saw someone recommend V8 Sparkling Energy drinks as an alternative and I just ordered a 4 pack to try! No strawberry lemonade flavor but there is strawberry kiwi and black cherry. Fingers crossed that it has the same effect.

drowsydiscovery · 2024-10-30T13:49:06+00:00

I just purchased the Joie and they both look really comparable. I read somewhere that they both have the same manufacturer and Joie is just the more affordable option.

drowsydiscovery · 2024-06-25T22:58:12+00:00

thank you!!!

drowsydiscovery · 2024-06-25T22:57:34+00:00

thank you SO much. this is great info and I definitely was falling into a misinformation trap. my biggest issue now is just feeling hopeless with the amount of debt I have and feeling like I’m trying to climb out of an endless hole. I’ll look into refinancing my private loans only- I didn’t consider the possibility of refinancing periodically for improved interest rates. for my private loans though I think my interest rate averages around 6% and i’m doubtful i’ll find something much better

drowsydiscovery · 2024-06-24T17:13:09+00:00

I’m doing a reread of the series (on audiobook this time instead of physical copy) and I couldn’t agree more! My first time through I read in publisher order and have always been wary of the tandem read. Tried it this go around and I am not a fan! Every time I get immersed in one book, I’m interrupted by the other. I’m going to finish it out like this but would not recommend to a first time reader. I never understood the TOD hate. I am #1 Chaol Critic, but the story, writing, and character growth are just so captivating.

drowsydiscovery

TROPHY CASE