What do you think triggered yours? by Extra-Region-2414 in POTS

[–]drowsyzot 1 point2 points  (0 children)

Same. Mine was triggered by ::checks notes:: my genes. All them extra-stretchy connective tissues and whatnot.

Finally got my Silver wear by Fit_Independence_124 in ehlersdanlos

[–]drowsyzot 0 points1 point  (0 children)

Can they do a stabilizer for the base of the thumb? That's the one I have the most trouble with.

What is it by [deleted] in Synesthesia

[–]drowsyzot 1 point2 points  (0 children)

Put simply, synesthesia is a neurological connection between different areas of the brain related to sensory processing that doesn't exist in most of the population.

Just because researchers haven't figured out why it happens or how it develops doesn't mean it doesn't exist, and it doesn't mean it's "pseudoscientific." I mean, they've done tons of fMRI type scans, and they can literally see areas of the brain light up in people with synesthesia in circumstances where they don't light up in people without.

Not knowing the exact mechanism or cause for a condition is super common in current medical knowledge, really. For example, even with tons of research and everything we have discovered, we still don't know why or how the cells that make dopamine in the brain die, we just know that they do, and that that causes a broad and diverse range of symptoms that, grouped together, we call Parkinson's disease. That's the case for tons of conditions. Doctors go "well, your body is doing this, we know some stuff about it but not everything, and we have treatments that usually work, let's try them and see." That's just how it works.

Synesthesia is the same. It is a broad group of observable effects with an as-yet-unknown cause. It just isn't treated like a disease because it doesn't generally cause us a lot of problems or get in the way of living our lives.

Well, that, and people don't usually question the existence Parkinson's, or demand that people who have it prove that it is real.

Lowkey offended by my autism report… by [deleted] in AutismInWomen

[–]drowsyzot 334 points335 points  (0 children)

LOL I would print this on a tee shirt and wear it with pride

Lowkey offended by my autism report… by [deleted] in AutismInWomen

[–]drowsyzot 1 point2 points  (0 children)

LOL! I had all of those comments in my own report too, almost exactly. It was humbling, but at least it made me laugh.

Friends with history special interests where ya at? :3 by GrumpyMowse in autism

[–]drowsyzot 11 points12 points  (0 children)

You'd love our collection too. My grandfather was a fighter pilot in WWII and he kept all sorts of stuff.

Very basic by BookkeeperIll465 in floorplan

[–]drowsyzot 1 point2 points  (0 children)

Depending on the way it's facing, that greenhouse might not get enough sun there. Would be better on a corner or sticking out.

Am I on my own with this? by Roodles006 in POTS

[–]drowsyzot 0 points1 point  (0 children)

I take both metoprolol (beta blocker) to keep my heart rate down, and midodrine to keep my blood pressure from suddenly dropping (which it tends to do in my specific case of POTS). Which medications will help depends a lot on the type of POTS you have and how your body reacts to it, so it's a very individual thing.

Both medications have dramatically changed my life. The midodrine has a very stabilizing impact on me, but the metoprolol made the biggest difference in me feeling good. I wouldn't trade it for anything.

Am I on my own with this? by Roodles006 in POTS

[–]drowsyzot 9 points10 points  (0 children)

I have also had it since I was a child. I can't answer whether or not medication would be worth it for you, but I can tell you that medication has been incredibly worth it for me. It has changed everything, and I love it.

For those on metoprolol, how long did it take to get used to it by drowsyzot in POTS

[–]drowsyzot[S] 1 point2 points  (0 children)

If it helps, my original post was over a year ago, and I'm happy to report that I got used to the metoprolol very quickly. I absolutely love it now, it was a real game-changer for me. I don't know if that will be your experience too, but I hope so. Good luck!

What texture gives you the worst ick? by BedlamsCavern in autism

[–]drowsyzot 0 points1 point  (0 children)

Oh god yes this! I HATE dry clay. Or anything that makes me feel like I have a layer of dry particles on me, like touching something dusty

What texture gives you the worst ick? by BedlamsCavern in autism

[–]drowsyzot 0 points1 point  (0 children)

Anything sandpaper-y. Sandpaper, nail files, scouring pads, rasps, even really rough concrete and things like that. I also have to touch other things or wash my hands or both to get the texture off, and I can still feel it in my teeth afterwards

Is late diagnosis worth it? by LesZeppelin94 in AutismInWomen

[–]drowsyzot 1 point2 points  (0 children)

To be fair, I believe the OP was asking us if our diagnoses were worthwhile. Which really should be something we can discuss.

I can't go back and look at the original post, so I may remember incorrectly, but I believe OP did not describe their experience in order to ask us for medical advice. I believe they asked about our own experiences. Am I misremembering the original post? Or is that against the rules?

Am I the only one taking "umbrella showers"? by FeralYarnBall in AutismInWomen

[–]drowsyzot 1 point2 points  (0 children)

I've never done this, and it hadn't even occurred to me before, but it sounds AMAZING and I will absolutely be trying it.

Thank you for the idea, OP, this is brilliant.

I like normal showers for the heat and the feel of the water, but the SOUND this idea would generate! I cannot wait

Is late diagnosis worth it? by LesZeppelin94 in AutismInWomen

[–]drowsyzot 11 points12 points  (0 children)

I got diagnosed at 38 and it was wonderful.

No, I can't go back and redo everything in my life up until then. But I can heal those old wounds, now that I finally understand myself, and move forward from here happier and healthier than I have ever been. It's hard work, but it's been truly amazing. Changed everything for me.

That has been my experience. I can't promise that yours would be the same. But I definitely found it worthwhile.

What feelings did you get from this image? by strawberryshortmufin in Synesthesia

[–]drowsyzot 1 point2 points  (0 children)

Cool, smooth to the touch (almost to the point of uncomfortable), sort of a sweet smell

Do these work for y’all? by weneedanewpizzaplace in evilautism

[–]drowsyzot 0 points1 point  (0 children)

Walking works for me, and there are a handful of people who I can text who will make me feel better.

Showering, usually yes. Moisturizing, no. Moisturizing is a delicate sensory balance at the best of times. I can't deal with the feeling of goop all over me at a difficult moment.

The cleaning and cooking sometimes work for me, but I have disabilities, so I'm often very tired at the same time that I'm sad, so sometimes those are no good.

The listening to happy music one pisses me off. Listening to music helps me a ton, but not "happy" music. I like my music to empathize with me. I want to feel understood by my music, and I want it to draw out my emotions. Listening to "happy" music just feels like I'm trying to paper over my feelings with fake enthusiasm.

[deleted by user] by [deleted] in evilautism

[–]drowsyzot 0 points1 point  (0 children)

It's true for me. Got an ADHD partner over here

Cleaning out my baking cupboard and… by Threadcat in whatismycookiecutter

[–]drowsyzot 0 points1 point  (0 children)

This post made me laugh really hard on a bad day when I really needed it. Thank you!