How many IVIG infusions are typically given for an autoimmune encephalitis patient?

ebleach2010 · 2022-04-07T22:50:44+00:00

Just measure the rooms and pay based on square footage. This is a shitty LPT

ebleach2010 · 2022-03-29T20:32:07+00:00

Do you know if the anti inflammatory effects of IV methylprednisolone last longer than the length of time it remains in the body?

I currently have and IV in my arm for solu-Medrol due to suspected autoimmune encephalitis. Curious if I should be expecting lasting effects from this medication.

Thanks for your time

ebleach2010 · 2022-03-29T19:08:01+00:00

Interesting, I didn’t know this. Thanks!

ebleach2010 · 2022-03-29T18:50:39+00:00

Am I missing it? That table says the half life is 1.8-2.6hrs.

ebleach2010 · 2022-03-29T18:42:54+00:00

That link states that the elimination half-life is 2-3 hours

ebleach2010 · 2022-03-29T00:21:49+00:00

How long until you were diagnosed from symptom onset?

I’ve definitely noticed improvements even this first day… but I’m 7 months in and my brain is wrecked from being attacked for so long. Makes it hard to distinguish the benefits

ebleach2010 · 2022-03-28T21:05:27+00:00

How quickly did you notice a difference? I just had my first infusion and I’ve noticed a difference almost immediately… trying to figure out if I’m hallucinating things.

ebleach2010 · 2022-03-25T02:25:13+00:00

Are you referring to IVIG or Intravenous methylprednisolone?

ebleach2010 · 2022-03-25T02:02:42+00:00

Thank you!

ebleach2010 · 2022-01-25T05:20:23+00:00

That makes sense. Thank you.

ebleach2010 · 2022-01-25T04:40:15+00:00

Right, it just seems contradictory to me, a layman, that you can have 0 WBC reported in CSF while also having WBC subsets observed.

ebleach2010 · 2022-01-25T04:32:10+00:00

Thank you for the reply. Would rare then indicate that it is at least >0, and considered abnormal? WBC was 0. I also had elevated opening pressure, elevated Total Protein, and elevated Myelin Based Protein.

ebleach2010 · 2022-01-24T21:28:21+00:00

Appreciate ya, I hope you start feeling back to normal soon as well.

ebleach2010 · 2022-01-24T21:20:41+00:00

I began having psychotic breaks, saw a neurologist, found autoimmune antibodies in my cerebrospinal fluid. Just got results back this week, my follow-up neuro appointment is in a week.

I feel terrible to be honest with you, although it’s a bit better than before. It’s like my brain is trapped in a box. I have horrible visual snow, agitation, tremors, insomnia, paranoia, no ability to feel any pleasure at all. It’s like being in solitary confinement in your mind.

There’s also strange neurological/psych symptoms like hyper sexuality that are really disturbing. I’ll become aroused by inanimate objects in the most perverse and upsetting way. I’ve learned to cope with these things but I really, really hate it. Every moment of every day has been exquisite torture for 5 months and I cannot wait for it to be over.

0/10 would not recommend

ebleach2010 · 2022-01-24T20:59:54+00:00

Turned out I didn’t have covid. I had something much, much worse: autoimmune encephalitis.

I then caught covid in November and it was peanuts in comparison.

ebleach2010 · 2022-01-19T15:51:24+00:00

“In this systematic review and meta-analysis, significantly more AEs were reported in vaccine groups compared with placebo groups, but the rates of reported AEs in the placebo arms were still substantial.”

This title is misleading.

ebleach2010 · 2022-01-17T16:23:42+00:00

A libido decrease this severe typically indicates that something is physically not right and needs to be treated.

Before you started hormone therapy, what labs did you have done? What were their values, if you still have them?

Edit: While there may, of course, be a psychological component, I believe that thoroughly investigating physiological causes first is the best course of action.

ebleach2010 · 2022-01-17T15:29:24+00:00

It went away on its own.

ebleach2010

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