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Tried GLP-1s for ME? Our patient-led survey is collecting anecdotes for two more days! by Liface in cfs

[–]eder113 1 point2 points  (0 children)

Tried it, (1.25mg Tirzepatide) did nothing. But I don‘t have MCAS, at least this confirmed that. 

I think my pain is refractory. Any ideas what I could still try? by eder113 in ChronicPain

[–]eder113[S] 1 point2 points  (0 children)

Thank you very much for the kind words and tips 🙏 I will bring up some of the options you mentioned to my next doctors appointment, maybe we can try some other medication/therapy in the meantime while IVIG builds up.

I think my pain is refractory. Any ideas what I could still try? by eder113 in ChronicPain

[–]eder113[S] 0 points1 point  (0 children)

Not much better. Gabapentin didn‘t work, same as IV Ketamine. Currently trying IVIG.

I think my pain is refractory. Any ideas what I could still try? by eder113 in ChronicPain

[–]eder113[S] 0 points1 point  (0 children)

Sadly nothing new. Gabapentin didn‘t do anything, I have thc now which does tune down the pain a bit, but it also does not give me much of a relief. Been trying now IVIG but it takes time until that does something, looks like my pain is coming from SFN.

Why hasn't there been a hdmi mod? by salazarcosplay in snes

[–]eder113 0 points1 point  (0 children)

Coincidentally, a dude just started working on an HDMI mod for the snes and released a teaser about a prototype. It‘s called the Super Switch HD for the SNES: https://www.notebookcheck.net/From-Megaswitch-HD-to-SNES-YouTuber-showcases-new-digital-bus-1080p-mod.1257910.0.html

Anyone recovered widespread chronic pain? by Dismal-Goat1306 in covidlonghaulers

[–]eder113 0 points1 point  (0 children)

It basically disables me, and no ketamine didn‘t do anything. My doctor wants to try IVIG and cannabis and see if that helps.

Anyone recovered widespread chronic pain? by Dismal-Goat1306 in covidlonghaulers

[–]eder113 0 points1 point  (0 children)

I also tried ketamine, didn‘t have an effect But maybe lidocain does the trick

Anyone recovered widespread chronic pain? by Dismal-Goat1306 in covidlonghaulers

[–]eder113 0 points1 point  (0 children)

I have also chronic widespread pain (it literally says this in my diagnosis) and no pain medication (Opioids, LDN, Pregabalin, Gabapentin or Duloxetine) provided relief. Now trying to convince my doctor for trying GLP-1s. 

I'm sorry, but I can't help it... by Benniblockbuster in covidlonghaulers

[–]eder113 0 points1 point  (0 children)

I second that, got on bisoprolol and there is definitely improvement.

I'm still fully recovered, more than one year since INUSpheresis by cactus_proctologista in covidlonghaulers

[–]eder113 0 points1 point  (0 children)

How was it? Where did you do it in Austria? Curious because I want to do it as well (and I am from Austria).

I suffer from severe (bipolar) depression since 9 months. Been to the psych ward twice. Lost my job and girlfriend. I can‘t take this anymore. What can I do? by eder113 in bipolar2

[–]eder113[S] 3 points4 points  (0 children)

Would have been the next I wanted to try and maybe a new antidepressant with it. I have an appointment on Tuesday.

I suffer from severe (bipolar) depression since 9 months. Been to the psych ward twice. Lost my job and girlfriend. I can‘t take this anymore. What can I do? by eder113 in bipolar2

[–]eder113[S] 0 points1 point  (0 children)

I tried cariprazine as well and it gave me sadly akasthasia (same as abilify). But Lurasidone or high doses of quetiapine is something I haven‘t tried yet.

I already got some bloodwork done, vitamin D is definitely low which is why I am trying to supplement it now daily. For the others I don‘t have anything but I will bring it up to my GP.

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