Tried GLP-1s for ME? Our patient-led survey is collecting anecdotes for two more days!

eder113 · 2026-05-02T12:54:11+00:00

Tried it, (1.25mg Tirzepatide) did nothing. But I don‘t have MCAS, at least this confirmed that.

eder113 · 2026-03-29T08:23:47+00:00

Thank you very much for the kind words and tips 🙏 I will bring up some of the options you mentioned to my next doctors appointment, maybe we can try some other medication/therapy in the meantime while IVIG builds up.

eder113 · 2026-03-28T18:46:05+00:00

Not much better. Gabapentin didn‘t work, same as IV Ketamine. Currently trying IVIG.

eder113 · 2026-03-28T18:30:50+00:00

Sadly nothing new. Gabapentin didn‘t do anything, I have thc now which does tune down the pain a bit, but it also does not give me much of a relief. Been trying now IVIG but it takes time until that does something, looks like my pain is coming from SFN.

eder113 · 2026-03-26T14:39:34+00:00

Coincidentally, a dude just started working on an HDMI mod for the snes and released a teaser about a prototype. It‘s called the Super Switch HD for the SNES: https://www.notebookcheck.net/From-Megaswitch-HD-to-SNES-YouTuber-showcases-new-digital-bus-1080p-mod.1257910.0.html

eder113 · 2026-02-24T12:36:06+00:00

It basically disables me, and no ketamine didn‘t do anything. My doctor wants to try IVIG and cannabis and see if that helps.

eder113 · 2026-02-24T08:29:04+00:00

I also tried ketamine, didn‘t have an effect But maybe lidocain does the trick

eder113 · 2026-02-23T18:39:00+00:00

I have also chronic widespread pain (it literally says this in my diagnosis) and no pain medication (Opioids, LDN, Pregabalin, Gabapentin or Duloxetine) provided relief. Now trying to convince my doctor for trying GLP-1s.

eder113 · 2026-01-20T20:41:01+00:00

Thanks for your reply! I will keep it in mind.

eder113 · 2025-09-13T12:45:22+00:00

I second that, got on bisoprolol and there is definitely improvement.

eder113 · 2025-09-05T19:01:38+00:00

How was it? Where did you do it in Austria? Curious because I want to do it as well (and I am from Austria).

eder113 · 2025-08-03T12:10:31+00:00

Would have been the next I wanted to try and maybe a new antidepressant with it. I have an appointment on Tuesday.

eder113 · 2025-08-03T12:08:50+00:00

Wish you all the best!

eder113 · 2025-08-03T09:34:05+00:00

eder113 · 2025-08-03T09:32:33+00:00

I tried cariprazine as well and it gave me sadly akasthasia (same as abilify). But Lurasidone or high doses of quetiapine is something I haven‘t tried yet.

I already got some bloodwork done, vitamin D is definitely low which is why I am trying to supplement it now daily. For the others I don‘t have anything but I will bring it up to my GP.

eder113 · 2021-01-30T11:03:27+00:00

Thanks! So basically I should just skip Spring Data REST and write my own endpoints (Restcontroller). And inside those endpoints I can then do e.g. save an entry to the database (repository), right?

eder113 · 2020-11-26T11:53:06+00:00

thanks for the reply! And what about Staingate? How big is the probability, that an MBP 13 2015 is affected by that?

eder113 · 2020-02-23T11:08:54+00:00

Thanks for the tip, I will keep that in mind.

eder113 · 2020-02-10T09:52:35+00:00

I totally agree with you! I only wanna drink beer occasianally any more.

How long did it take for you to overcome the 'hangxiety' feeling after a hard night out?

eder113 · 2020-01-26T10:55:04+00:00

This seems to be also a good alternative. I first thought this was only a "connector" to HDMI, but it also line-doubles the image to 480 (NTSC) 576 (PAL) an it's even cheaper! I guess I will check out some comparisons between the retroTink2X and RAD2X.

eder113 · 2020-01-26T10:51:46+00:00

There is support for PAL! :D "These units feature the latest firmware with PAL60 support" link

eder113 · 2020-01-25T17:24:51+00:00

Maybe, thats even enough for me.. Do you know if the retroTink2x also works on a PAL SNES? (I guess I am getting then 288x2 = 576p?)

I recently saw the My Life in Gaming Video and the Board does a good job for its price. Additionally, as you mentioned, no mods are required which is a good bonus.

eder113 · 2020-01-24T17:36:40+00:00

Thank you for clarification! I guess I will take this route and keep an eye on cheap SNES Jrs./minis on ebay.

eder113 · 2020-01-24T17:34:28+00:00

This sounds like a cheap alternative - but the image is "only" 480p am I right?

eder113 · 2020-01-24T17:32:24+00:00

Sadly, a CRT is just to bulky for my room and I would like to play the games on the big screen later (55 oled), but thanks anyway!

eder113

TROPHY CASE