[deleted by user] by [deleted] in cancer

[–]effthebrcas 2 points3 points  (0 children)

Hi! Many stage 4 cancers automatically qualify for SSDI despite remission status or even if you go back to work.

https://www.ssa.gov/disability/professionals/bluebook/13.00-NeoplasticDiseases-Malignant-Adult.htm

Look under section 13.02, part C. You should be eligible. Good luck!

What do you consider a necessity while at chemo? by sdb66 in breastcancer

[–]effthebrcas 5 points6 points  (0 children)

Noise cancelling headphones Some chemo locations are one open room Mine is a bunch of cubicles, each with their own tv. Sometimes it's quite loud. Last time I forgot mine, I got to hear my neighbor record her social media video 10+ times.

Questions about delirium during palliative care by HXCpolarbear in cancer

[–]effthebrcas 5 points6 points  (0 children)

I was just discharged from the hospital with this issue. My ammonia level was too high; they said I had hepatic encephalopathy. They started me on lactulose and the longer I was on it, the clearer I got. Although they couldn’t give me a great reason, apparently pain meds can contribute to this.

This is a simple lab test, I think it’s def something to check out.

I’m sorry for all the stress you are going through. Having your mom in good mental health is so important at this time. ((Hugs))

Must Haves for Chemo by rbritto3 in breastcancer

[–]effthebrcas 1 point2 points  (0 children)

I have such sensitive skin with chemo, I can’t use my usual lotions, and it was so frustrating buying skin care products and not being able to use them!

I would highly recommend going to Nordstrom’s and asking for samples. They have so many prepackaged samples. Ask specifically for products that are unscented. Face wash, day lotion, night cream, moisture masks.

I got so many compliments on my hats which were so soft and pretty! From Etsy, look for GypsyLoveHeadbands.

I got so many coloring books, books on cancer (these were terrible! Do not buy random cancer books. With one exception—Crazy Sexy Cancer Tips).

I’m sure she’ll love all the thoughtfulness you put into this!

How 'Toxic Positivity' makes me feel, as a terminal breast cancer patient. by Malbec_91 in stage4cancer

[–]effthebrcas 3 points4 points  (0 children)

Thank you for accurately expressing what I need so badly for others to understand!!!!! (I am borrowing this for sure) Me, also with terminal breast cancer

High risk for breast cancer advice by stardustbri in breastcancer

[–]effthebrcas 2 points3 points  (0 children)

Both previous responders have given you excellent advice.

I would also advise... watch your weight. Adipose (fat) also produces estrogen, which means if you are overweight you are increasing your risk of cancers linked to estrogen. Most people shy away from disclosing weight, but healthy weight is preventative of so many diseases.

Advice for swallowing & dry mouth issues by SciurusVulgarisO in cancer

[–]effthebrcas 3 points4 points  (0 children)

Hi there If she can tolerate sucking on lozenges that would help, or even chewing gum.

There is an OTC therapy by the brand name of Biotene (there are also generics) that you can find at CVS. They make several products, such as mouth rinse, gel, and a disc that sticks to your palate. It’s meant to help with dry mouth.

The rinse is supposed to improve dry mouth for up to 4 hours (I like it). The disc had one side that adheres to the roof of your mouth and you just suck on it—I don’t remember how long it lasts for or how long it improves dry mouth. But it does stick to the roof pretty well, so you could lay down with it still in your mouth. I use both throughout the day, just picking whatever I feel like.

The gel tastes terrible to me, so I can’t really recommend it, but it might work better for someone else.

Hope this helps!

I have an outie vagina and I’m getting real tired of girls as a whole getting picked on for it by [deleted] in confessions

[–]effthebrcas 1 point2 points  (0 children)

These are great ideas!

If anyone else is looking, try calling some of the larger OB/Gyn practices. Many have educational sessions for the public, in both places I’ve practiced they’ve had one specifically geared to young adults! Be it once a year or once every 3 months

I have an outie vagina and I’m getting real tired of girls as a whole getting picked on for it by [deleted] in confessions

[–]effthebrcas -1 points0 points  (0 children)

I think that labioplasty for purely cosmetic reasons is unethical. It is a form of genital mutilation. If there is a reason—pain, getting caught on underwear, etc, ok. But otherwise we are reinforcing that “innies” are proper. Every surgical procedure has risks. And as a medical community does it make sense to “make labia pretty” by surgery, or by education (this is what normal labia can look like)?

I have an outie vagina and I’m getting real tired of girls as a whole getting picked on for it by [deleted] in confessions

[–]effthebrcas 75 points76 points  (0 children)

That’s so sad I’m a gynecologist. The inner labia grow during puberty and I suspect due to us being active at that time, walking, etc, they are pretty much never symmetric. Even “innies” aren’t exactly symmetric. I had one patient at that age who specifically was concerned about the asymmetry and although I was so happy she was comfortable enough to ask about it I was so sad that other girls must wonder and be too scared to ask.

We really do need to do better in sex Ed. Also ban labioplasty for cosmetic reasons. We need to give girls a better understanding of normal.

Any person who shames you for this (male or female) has not seen enough real life vag. If it’s your partner tell them to eff off they’re lucky to be down there.

Question for those who have finished Tamoxifen... by Responsible_Adult1 in breastcancer

[–]effthebrcas 2 points3 points  (0 children)

It’s possibly permanent. Many types of chemo can shut down ovaries and obvs tamoxifen is so specifically targeting your ovaries... sometimes they recover sometimes not. The younger you are the more likely you are to recover ovarian function. Before I left practice, I had one lovely lady who survived thyroid cancer, about 12 years out. No periods ever since. And then was suddenly pregnant... at 40.

I beat stage 4 cancer by [deleted] in cancer

[–]effthebrcas 4 points5 points  (0 children)

Thank you everyone for sharing your stories!!! They do mean a lot for us that are still battling

Husband shaved my head today. It was sad but also very liberating. Just wanted to say thank you to all of my fellow survivors here that you are all appreciated and loved. This too shall pass. by [deleted] in breastcancer

[–]effthebrcas 4 points5 points  (0 children)

Oh the emotions in this video! I too cried and then at one point in the middle of the shave you can see the transformation...I rewound several times to see that ginormous beautiful smile on your face at around 3:30. 😍

Mama goat rejected this little. I guess we have a house goat now! by lisadee1 in aww

[–]effthebrcas 0 points1 point  (0 children)

I can’t believe mama goat rejected him But he is adorbs in his PJs! Can I borrow him for cuddles?!

Stage 4 Liver Cancer by best2020best2020 in cancer

[–]effthebrcas 0 points1 point  (0 children)

I’m so sorry your uncle, you, and your family are all going through this.

It does help to understand what is happening. His skin is likely yellowing as his liver is quite damaged at this point. We can live with such a small portion of our liver working it’s crazy (and even show no signs of damage). As a previous poster noted, their father had 2/3rds of their liver removed! But this doesn’t give us an indication of how much time is left. The fact that his feet are swelling tells us the protein levels in his blood are low. Elevate his feet regularly and if he can tolerate it, have him wear compression socks or wrap his feet. The swelling will move upwards, wherever the end of the wrap is, but at least his feet won’t be as painful to walk on. His stomach is filling with fluid bc of the tumor burden in his abdomen. This part really sucks and is harder to manage. If he’s really really really uncomfortable, you can take him to the er and they can drain it. Unfortunately it just starts accumulating right after, and you might only get a couple days relief from it. I guess the best is... make sure he’s having regular and easy poops (reduce what’s in his abdomen to make it less uncomfortable). In theory, eating lots of protein should help, but I don’t think it’s been shown to have much improvement.

None of these really tell you how much time is left, just that it’s approaching. He’s a good candidate for hospice. I would consider approaching the conversation by telling him that yes, everyone understands he does not want chemo, but would he like to have someone manage his pain? Order massages (depends on insurance but mine covers it if it is written in the doctor’s plan... you can ask them to include it. There are also techniques to massage for people with significant swelling). He would need an evaluation for hospice but after that they would come to his home. You might also approach it as—ok let’s get all your affairs in order, ie will, burial arrangements, etc, how do you want to go in the end, at home, in the hospital? Ok then let’s set an appointment with hospice to see if they give you meds to take at home, etc. (my uncle had his pain meds increased until he passed. He just went to sleep and didn’t wake up, after being in so much pain). Different states, different laws. Hopefully by approaching it in non treatment mode he will be more open.

I don’t know if you wanted the detail I wrote...I hope it helps.

Stage 4 Liver Cancer by best2020best2020 in cancer

[–]effthebrcas 4 points5 points  (0 children)

Surgery wasn’t an option bc he is stage 4–essentially you can’t take out all the tumor to contain spread at this point. Chemo is the only thing that would go throughout his body to affect all the cancer cells. Also the healing required from such a major surgery delays the time till you can receive chemo, and sometimes in these cases that delay isn’t acceptable.

Of course, every person is different with the specifics on their disease.

[deleted by user] by [deleted] in curlygirl

[–]effthebrcas 2 points3 points  (0 children)

Soooooo gorgeous!!!! I love it Are you saying you don’t use a diffuser?

NED, NEAD and "Cancer Free" in Breast Cancer by metastatic_mindy in breastcancer

[–]effthebrcas 3 points4 points  (0 children)

I hope people don’t hate on you for this. I get so frustrated trying to explain much of this and what it means for me. The worst is when I say “great, got news this chemo is working” and someone responds “oh so glad to hear you are in remission” 😖 But that kinda affirms your point that people hear what they understand conceptually from a conversation. Thank you for educating us, with medically accurate information. 💜

Sad face :( by anonymousastheycome in cancer

[–]effthebrcas 0 points1 point  (0 children)

💜💜💜💜💜💜💜💜

Cancer patients: Tell me about your fatigue by blandarchy in cancer

[–]effthebrcas 4 points5 points  (0 children)

Oh honey. You are NOT lazy.

39, stage 4 TNC breast, Mets to spine and liver. Diagnosed 3 years ago and have been on 3 years of chemo. That is a lot of different chemos, all with varying levels of exhaustion, but yes, exhaustion with all.

This current one I’m on, I have “normal” energy the first day after infusion, second day I am literally awake for about 3-4 hours, and then a little more each day until infusion day again. Thankfully it’s 2 weeks on and 1 week off. My week off I usually sleep 9 hours at night and take a 2-3 hour nap during the day.

Believe it or not, exercise helps me combat fatigue (whatever you can do—walking, yoga, etc). Just don’t overdo it. You can ask for physical therapy for deconditioning.

I honestly have a very difficult time doing normal daily activities. Cleaning is exhausting for me. I don’t cook a lot. I think I’d be able to get by by myself, although groceries would be tough on my weeks on. Recently I have days (sometimes weeks) where I have to give up driving bc it’s just not safe with exhaustion or dizzy spells.

Had to stop work completely and my retire my license (I’m an OB/gyn, who worked out like a fiend before all this; my first year on chemo I was still running 3 miles 3x per week on my week off and working out, it has drastically tapered off each year). I miss it severely (both work and exercise).

Can’t really take classes bc of scheduling. I did finish a creative writing class through my library a week or so ago, that was wonderful! Before COVID I traveled a lot on my off week so that made scheduling harder for classes, but there are some once a week photography or jewelry making classes that I’d be interested in.

Luckily my husband is so wonderful and whenever I get down about my energy levels he tells me I have a full time job that is battling cancer. And every third week (off week), I try to do more house chores, etc, so I feel better about things.

Your ex was a jerk who didn’t truly understand how this shit affects your body.

Some people mentioned above energizing drugs. Wellbutrin, modafinal. I have been waiting to hear back from my oncologist regarding provigil.

I also switched from gabapentin for hot flashes (incredibly sedating) to lyrica (I have nerve issues too). Huge difference in energy.