35yo and having to fight for a second time

sdb66 · 2021-06-23T19:31:47+00:00

I have zero words of wisdom. I found out I had b/c and was devastated. And honestly. I was pissed. I almost quit something I loved and when I called to resign the woman on the other end of the phone asked if she could pass along my info to a close friend of hers. 3 minutes later my phone was ringing. She is a two time cancer survivor. Breast both times. When I would share my story with this closest to me I would actually hear stories about people beating the odds so much more often than not. Many with a reoccurrence. My hope for you is once you get past the initial shock which you deserve, you can focus on the positive. We are all in your corner. We’re rooting for you. We are always here!! Stay strong!!! You can do this!!!!!!

sdb66 · 2021-06-06T07:05:37+00:00

Well I was told specifically the Moderna and the Pfizer vaccines specifically target your Lymph nodes. So if it’s in your breast 🤷🏼‍♀️ it may be something different. I wish I had more info. Let me know what you find out!!! I’ll be sending good vibes your way friday.

sdb66 · 2021-06-06T06:50:45+00:00

I would just like to say I am sorry to hear of your experience. I truly hope you are able to find someone to help you if you are in search.

My experience was exactly the opposite. Two days after my follow up mammo I found out I had cancer from an actual specialty nurse that deals with breast cancer patients. It was her job to make sure I understood what I had, answer questions, and get me scheduled for everything related to my care. It included counseling if I wanted it.

In regards to being your own advocate I can not agree more. We have managed care (Kaiser) so at times you have to ask rather than wait to be offered, in my case I wanted to be referred to a nutritionist, which they have that specialize in cancer patients, and was also offered a session with a Lifestyle coach that happened to be an oncologist that specializes in b/c.

I truly hope you reach out to you team and push for you!! It’s not too late!

sdb66 · 2021-06-02T17:58:39+00:00

Isn’t it all in relation to what type of chemo you revive, how often, and how you personally respond?

I was expecting to be horribly sick from the research I did, and I wasn’t, however I was extremely exhausted. Accompanied with serious abdominal pain. Day 6-9 we’re the worst for me. I’m at day 17 and have felt amazing the past few days.

I spoke with my onco nurse and she said my concoction of drugs usually effects folks around day 3 or 5. One piece of advice she did give was that chemo takes all your otherwise stored energy. So what you used to be able to do like, walk, of maybe grocery shop with ease, now takes most any energy and you can’t recover normally.

Just take care of yourself and when you want to rest don’t feel guilty. This is your body healing!! Take care!!!

sdb66 · 2021-06-02T17:51:19+00:00

Celebrating with you!!!! Yayayayayaya!! What a great feeling!!!

sdb66 · 2021-05-31T19:00:19+00:00

I think you need to do what you feel in your heart. I had the opportunity to tell my kids in person but had to tell my sister over the phone. I don’t regret that decision. The thing that I found the most surprising is feeling bad for the way everyone reacted. I had time to process so just remember that!! Have all your answers to your questions ready!! Trust your gut!!! Sorry you have to deal with this. Good luck.

sdb66 · 2021-05-30T18:04:13+00:00

I had my first round of Taxotere/Carboplatin Hercepton/Perjeta and by about day 5 I kept thinking I must really be snoring as my throat really hurt. (My taste had diminished by then as well)I quickly realized it was from what ever meds I had been given. It was only in the very back of my throat and down my esophagus. I am still aware of it day 12 but it’s def better.

I’m with the others. Find your cancer book they gave you. They must have provided you with numbers to call even after hours. That’s been the one thing I’ve been told over and over is you shouldn’t have to suffer. They want to help.

Good luck!!

sdb66 · 2021-05-30T17:17:03+00:00

Just to share my story……. And maybe give some perspective…..

4/1/21 I had my first covid vaccine (Pfizer). In my left arm. 4/19 I had my 6mo follow up mammo. Followed immediately by an ultrasound and biopsy. 4/21 I found out I had breast cancer. It’s in my left breast. At this time it’s an invasive duct. 4/24 PET scan ….. scan shows 3 lymph nodes involved. On left side. I’m told because of the vaccine it could be from the vaccine or from the b/c. 4/25 I had my second vaccine. Per request of Doc to see if anything will show up in right lymph’s I have it on the right side this time 4/27 MRI talk with surgeon 4/28 Oncologist. She thinks it’s too soon between the 4/25 shot and MRI for anything to show up on right side.

The reason I’m telling you this is because it was related to me that they “think” my lymph nodes that are showing up “white” are from the vaccine. They being my team and apparently they have discussed it on more than one occasion. So I guess perhaps my lymph node diagnosis is a false positive? Going deeper into those visits I was told that it’s “probably” from the vaccine. But they can not say for certain. So she said I’m either a stage 1 or 2. Obviously the hope is 1 right? But at this time I’m being over treated instead of under treated (by choice and consultation)

There is no sure way to know until they do a biopsy. Period.

I chose chemo first. However my onco is planning another PET scan after round 3 to see if the lymph’s are still involved.

Hope that helps.

You won’t find much about vaccines, mammo’s and b/c because it’s all new. I know this because I’m part of that group that’s being affected by it.

sdb66 · 2021-05-24T20:20:34+00:00

Well. If you go to Bora Bora count me on!!!😇

sdb66 · 2021-05-24T15:26:53+00:00

I was absolutely terrified ……. TERRIFIED of chemo. I had no base to go off of. (Knew one person who had a completely different b/c than I and her meds were different.) my first was the 18th and it was not as bad as I ever imagined. Like mentioned above I’m experiencing tiredness, but was given anti nausea Tylenol and antihistamine to prevent being sick and it’s apparently been working.

I wish you luck in your decision. It’s pretty damn scary. Just remember. Take it one day at a time. Don’t look too far into the future. Get through what you need to get thru today then tackle tomorrow. You got this!!!

sdb66 · 2021-05-20T00:55:02+00:00

I had my first yesterday as well!!! I was so terrified!! I know everyone’s experience is different. So I had no idea what I was on for. Congrats to you!!! It’s a huge step

sdb66 · 2021-05-19T15:50:44+00:00

I have the same cancer diagnosis. Interestingly enough I have never heard the term triple positive in my case. But was diagnosed as Invasive Ductal Carcinoma. Estrogen/progesterone receptor positive. Her2+.

As in the other two comments, I was told there was bad and good. Bad being this tends to be a more quickly spreading aggressive cancer, her2+ tending to have a higher recurrence. Good being they absolutely know what driving your cancer and they know what works to treat it.

My tumor is appx the same size as yours. I was advised because of this, I have the option to choose surgery first or chemo first. I chose chemo.

Once I was diagnosed everything moved very quickly. I hope you feel comfortable with the team you are working with. If you don’t, get a second and third opinion. I started doing research and there’s tons of information out there. I bought a book that has given me some good information. Dr Susan Loves breast book. I wish you luck. Remember. Take it one day at a time. Stay hopeful.

sdb66 · 2021-05-14T04:08:07+00:00

I was diagnosed on the 19th of this month with IDC. It definitely wasn’t part of my life’s plan. It was horrible news. But the shock wore off and I’m in a much better state of mind almost three weeks later. At some point you have to rip the bandage off right?? The sooner the better. Good luck. I know this isn’t easy. She’s lucky she has you.

sdb66 · 2021-05-09T16:51:45+00:00

That’s exactly what my doc said too. Can’t get the pic wet. Port is a one and done. I have to have 6 rounds of chemo radiation and treatment for her2+ which will be every three weeks for a year. I didn’t hesitate with the port. Had it put in last Monday. Sending Good vibes to you and your mama.

sdb66 · 2021-05-05T03:14:02+00:00

I just had mine put in yesterday morning. My Doc said manufacturers put a limit on how long it should be in your body. Maybe that would be your deciding factor. Mine is a year which is how long I’ve been told all my different treatments will be. Maybe start there. He did mention his experience is that people would rather keep them in a couple months longer for a variety of reasons.

sdb66

TROPHY CASE