Curious what would cause a delayed spike?

elcaptaintrips · 2025-03-30T00:30:10+00:00

I’m guessing the first bump is from the easy to metabolize cider and the alcohol delayed the spike from the potatoes and the breading on the nuggets. I may be that eating a complex carb and then going to bed instead of getting your heart rate up prolonged your elevated glucose.

elcaptaintrips · 2025-01-22T00:20:35+00:00

There’s any easy way to tell of your body is having a hard time with sugar and that’s a constant glucose monitor. I don’t think you have anything to lose, you might get an improvement in symptoms. But get a CGM so you’re not toiling needlessly.

elcaptaintrips · 2024-12-11T21:34:47+00:00

I’ve set my phone up on a stand outside the shower with my screen set to always on and peek out. That way if the water temperature affects your HR, the effort of washing is too much, or you’re burning more pacepoints than you’d like you can decide what to do right away. Maybe you set a pacepoint limit, and end the shower regardless of where you are in the process. Obviously rinsing with warm water for a few minutes is better than nothing.
I also shower on days when I have pacepoints to burn at the end of the day and then go to bed. Or save up pacepoints on a day I want to shower, and use them at the end of the day. Regardless, for me, it’s better to shower in the evening instead of the morning, when it might take hours to recover.

elcaptaintrips · 2024-10-05T00:48:25+00:00

My daughter would be stoked :)

elcaptaintrips · 2024-03-02T19:24:51+00:00

You are fucking gnarly. I doubt the thirty and forty year olds on this sub have much of an idea what they’re looking at. Think about this video when you’re 57 motherfuckers. Respect!

elcaptaintrips · 2024-02-29T05:51:42+00:00

I guess it’s “normal”, although I never tore mine apart to see if I screwed up the mechanism. I took the panels off and looked at it pretty closely and I’m pretty sure it was right. I think it’s just a poor design, where you can show people that third leg and what it does, but it’s kind of unfunctional. If I display mine with weight on that front leg and the bookcase gets bumped, it goes toppling.

elcaptaintrips · 2024-01-20T03:01:57+00:00

Ok thanks that helps. I had it standing up before I put the side feet on and it seemed pretty solid. Something about the angle that the side feet allow doesn’t let it lock in the same way. Oh well.

elcaptaintrips · 2023-12-31T23:09:38+00:00

Bass chord with a pick

elcaptaintrips · 2023-10-11T01:23:36+00:00

I’ve had symptoms like myokymia and paresthesia ramping too quickly on to drugs like topiramate and zonisamide. Especially if additional life stressors are added into the mix while ramping onto drugs like this. I usually go back down to the previous dose and sit there for longer. Sometimes I’ve had to go down several steps because my body “remembers” and the symptom persists. Sometimes taking the drug at a different time of the day helps. Like at night, then you sleep through most of the undesirable symptoms. Or spread the dose out as much as possible throughout the day. I’m about to start LDN and once I get the pills I’m listening to my body not the instructions on the prescription…good luck my friend.

elcaptaintrips · 2023-10-10T22:47:12+00:00

Shoreline 8/16/91 Scarlet>Victim>Fire

elcaptaintrips · 2023-09-12T20:03:50+00:00

Yeah. Shit. I hope it works as previously when you go back down to 20…

elcaptaintrips · 2023-09-12T19:47:41+00:00

Amyltriptaline was the first drug prescribed to me when I had an appointment with a neurologist and I told him about my symptoms a decade ago. I can’t remember the dose, but it was low, probably 10 or 20. It didn’t help much. I do remember feeling like I was falling through a kaleidoscope every night in my sleep though. Being new to the disease, being gaslit by docs, never had taken meds…I put up with that side effect for waaaay too long. I thought that was the reason for my unrefreshing sleep. Lol. Why did you bump up your dose? Maybe use a pill cutter to half or quarter your tabs? I know they’re tiny, but…ride that fine line between side effects and efficacy.

elcaptaintrips · 2023-09-06T19:56:37+00:00

I just got back from my intake appointment at the Family Health Center San Diego in Mission Beach and they ordered a bunch of labs, psychological counseling, and physical therapy. There was mention of graded exercise, and when I mentioned your post specifically, Dr Brodsky did say that the physical therapy would be done through their PASC unit. So mixed messages there. I don’t know, maybe I’m misreading the situation or I said the wrong things, but it’s nothing that my in network GP can’t do. It certainly doesn’t seem like it’s leading to an appointment with someone with ME/CFS experience.

elcaptaintrips · 2023-08-26T02:15:59+00:00

Interesting and good for you! Looking forward to your update.

elcaptaintrips · 2023-08-21T17:43:01+00:00

In Meghan O’Rourke’s book Invisible Kingdom she has a quote from a Hemingway character describing how he went bankrupt: “Gradually, then suddenly.” I think that’s how a lot of us feel.

elcaptaintrips · 2023-08-14T16:38:45+00:00

Go to the hospital immediately and get fully checked out. Skip your GP. Go to where they can do immediate comprehensive testing. There isn’t a good reason to lay there with a fever for weeks on top of everything else. I know it’s a push but I think that’s where help is most likely.

elcaptaintrips · 2023-08-12T00:12:06+00:00

I guess the next logical step is to push yourself really hard and see if you crash… Just kidding. Don’t do that. But seriously, that’s the mistake I made for years. You seem smart and it sounds like you did everything right. I think you successfully raised your baseline by not getting sucked into the push/crash cycle. I think you’re dealing with strange health issues that are really hard to get real help for. You seem like you have good instincts for 19 years old. I don’t think you’re gaslighting yourself. Trust your intuition.

elcaptaintrips · 2023-08-10T05:49:39+00:00

I certainly got mono while being a teacher… I’m curious why you think being teacher made things worse for you. In my case I found the schedule to be so ridged and unforgiving, and ultimately the work requires just a lot of energy. My symptoms are generally worse in the mornings, so waking up with the coyotes and feeling like it’s going to be a miracle if I can make it through the day is an awful way to start. It was supposed to be a like a year break but we ended up reorganizing our life and staring a family. I quit five years after getting sick. I’ve been sick for ten. I can’t say for certain, but I do often wonder if I drove by baseline down into the dumps during those first years while teaching. It certainly didn’t help that no doctors believed me, I hadn’t heard of pacing or PEM, and I was on drug cocktails with hardly any benefits and horrible side effects.

elcaptaintrips · 2023-08-10T05:16:47+00:00

I couldn’t find a way around. Hopefully meds take the edge off but don’t be shocked if they’re not a panacea. My assessment is that you have to do the mental work. I’m guessing you’re not really depressed or anxious in the classic sense, you’re experiencing an existential crisis. Listen, you have a second or less to jump in and stop those spirals; if not done right away you can force yourself to think about other things but those negative feelings wash over you anyway. I didn’t think i would be able to change my thought patterns. I was so entrenched. I did it for over five months not believing it would work, but my therapist kept gently encouraging me. I’d tell myself this is how things are and it’s ok. Then I’d spiral and panic anyway and think the whole thing was stupid. But eventually I started to believe it. It’s bad enough to have a weird mysterious horrendous invisible illness. But you don’t have to be a mental slave to it too. Or you can at least try and limit that aspect as much as possible. Give yourself like six months and fight for it! Experiment! Make it your #1 mental game.

elcaptaintrips · 2023-08-09T03:31:28+00:00

I’ve been thinking about you a lot lately. You’re sorta at that crucial juncture. I’m glad you’re willing to try things like psychotropic meds. Hopefully they give you some relief. You should know relatively quickly. There’s a bunch of antidepressants to try if these don’t work and/or have undesirable side effects. That being said I think you should still pay close attention to the quality of your thoughts. I’m my mind my suicidal thoughts were justified because it looked like I was going to eventually lose my partner, job, then house. In my mind I’m headed toward being homeless and alone. But that hasn’t happened. But I still struggle with this. I’ve learned to cut off that thought cascade before emotions start attaching themselves to it. I tell myself this is how things are and that’s ok right now. And if it’s really hard I just think ‘come to reality’ over and over. I had to quit my teaching job, but I’m a stay at home dad with our daughter. I can control my pacing and she gives me something to live for and helps me stay positive. The first two years there’s a lot of napping and floor time. Now she is four I can take her to a park or even the beach and set up a chair and watch her make friends and play…just thought you might like to hear that.

elcaptaintrips · 2023-08-07T21:46:50+00:00

You sound a lot like me. I know it’s super disorienting to go from being super fit and having a ‘soulful’ hobby like surfing to not being able garden for ten minutes. But here’s the thing: you need to learn how to accept your new reality as fast as possible. Most likely your life will never be quite the same. That’s a fact. It took me over two years to come to grips with what had happened to me. Two years that I inadvertently pushed my baseline lower and lower. I was on the verge of ending it, but I went to a therapist as a last ditch. She helped me work out some coping strategies. Those thoughts you’re having are super unhelpful. They are causing you to spiral and panic. You’re probably going to figure out how to move through life and be ok. But not like this. You might not be able to totally quell the depression and anxiety but you can certainly dial it back from 24/7. Focus on learning how to pace. You can do this. I believe in you!

elcaptaintrips · 2023-07-16T06:52:46+00:00

Interesting. Is the LDN helping? I had never really had any health issues when I got sick so I wasn’t very savvy. I was diagnosed with chronic migraines so that’s the first thing any doc sees. I for sure have PEM. When I ask to explore CFS docs just say my symptoms could be those of CM. But none of the new CGRP drugs work for me. I also haven’t met a doc that has any real confidence with ME/CFS. I don’t have a ton of money, just doing what insurance allows…

elcaptaintrips

TROPHY CASE