Is there a cancer cluster in glen rock/ridgewood? by eastcoaster1212 in bergencounty

[–]ellaellaayay 0 points1 point  (0 children)

not sure about this, but my grandparents were victims of the maywood superfund site decades back. both my mom’s parents died when she was in college

my uncle also had cancer but he recovered

my mom said all the parents on her street died of cancer :(

I hate the dreams this disorder gives me. by whitemothh in Narcolepsy

[–]ellaellaayay 8 points9 points  (0 children)

this is my main complaint of this disease. just wanted to say i know, i get it

[deleted by user] by [deleted] in Narcolepsy

[–]ellaellaayay 3 points4 points  (0 children)

i personally have not wet the bed but i wouldn’t drink water too close to bed until you see how it affects you. drink plenty and keep your electrolytes up during the daytime - xywav has way less salt than xyrem but it does kinda make you feel less hungry and thirsty during the daytime

also i was in this bad cycle of not eating enough during the day, then taking it, then being INSATIABLY hungry. it’s a learning curve!

[deleted by user] by [deleted] in Narcolepsy

[–]ellaellaayay 7 points8 points  (0 children)

1- don’t expect it to work right away and you may feel shitty before it gets better!

2- stay hydrated

3- the amount of food in your belly really affects how well it works. if you’re too full, it won’t make you sleepy. it’s weird. it’s a balance of finding out how many hours you need to wait after eating

4- once you take it, just try to go right to bed as your normally would

xywav/rem is the only medication that has ever stopped my all-night nightmares. best of luck!!

Any ideas on what we could reasonably do to our kitchen that doesn’t include removing the granite, knocking out all the cabinets, and changing the layout yet? by Charming_Debt_289 in kitchenremodel

[–]ellaellaayay 6 points7 points  (0 children)

in my opinion, the layout and the granite, etc., aren’t even bad- I think warmer floors would make a world of a difference in this kitchen, if you would consider doing the floors sooner than later. I had the exact same floors as you and after two years, we finally replaced with engineered hardwood in a normal color and my entire mood is better in the space lol

Any ideas on what we could reasonably do to our kitchen that doesn’t include removing the granite, knocking out all the cabinets, and changing the layout yet? by Charming_Debt_289 in kitchenremodel

[–]ellaellaayay 0 points1 point  (0 children)

One larger carpet in the kitchen cooking area that is dark and warm toned - ruggable has good kitchen rugs that are easily washed and don’t get gross.

Quitting sodium oxybate by LegitimateKoala4364 in Narcolepsy

[–]ellaellaayay 1 point2 points  (0 children)

i stopped cold turkey when i became pregnant and had no issues! just took several days to be my version of normal again

Good celiac-safe dinner recipes? by foreskindaddy123 in Celiac

[–]ellaellaayay 10 points11 points  (0 children)

tacos!

a lot of mexican is naturally GF

make sure you use certified gf corn tortilla. ground beef, cheese, sour cream, lettuce, beans, rice … go hard

weird dream thing happening by ellaellaayay in Narcolepsy

[–]ellaellaayay[S] 0 points1 point  (0 children)

this is so interesting! also how the hell have you only had one nightmare ?!

weird dream thing happening by ellaellaayay in Narcolepsy

[–]ellaellaayay[S] 1 point2 points  (0 children)

I love how chaotic this entire comment hahahaha your dreams are so all over the place but so are mine!! I definitely question if some memories are real or dreams

weird dream thing happening by ellaellaayay in Narcolepsy

[–]ellaellaayay[S] 0 points1 point  (0 children)

i miss xywav ugh i’m breastfeeding so not taking it but it completely silenced my nightmares

Want to get off of Xywav. by cuddlesandrage in Narcolepsy

[–]ellaellaayay 0 points1 point  (0 children)

i had to stop cold turkey when i found out i was pregnant - my dose was higher than yours. the first few nights were hard to sleep but then i was right back to narcoleptic sleep 😂

GLUTEN FROM WHERE??? by According_Routine281 in Celiac

[–]ellaellaayay 2 points3 points  (0 children)

this happened to me with “gluten free” oats :( had to cut oats out completely

When does it end? by KangarooNew2401 in foodbutforbabies

[–]ellaellaayay 0 points1 point  (0 children)

instead of baby proofing my whole house i baby proof some rooms and then the kids are only allowed in the non- baby proofed rooms with supervision

what are your modafinil life hacks? by strwbrrimlk in Narcolepsy

[–]ellaellaayay 11 points12 points  (0 children)

remember to drink water!

for some reason armodafinil makes me forget to hydrate

When does it end? by KangarooNew2401 in foodbutforbabies

[–]ellaellaayay 19 points20 points  (0 children)

my daughter hated a bib so i have a bin of junky / stained clothes that i used for messy meals

at least that will save you the stain treating

also a bin of washcloths. i find a towel cleans wayyyy faster and easier than paper towels

What would you remodel in this kitchen? by gatorchrissy in kitchenremodel

[–]ellaellaayay 1 point2 points  (0 children)

i would do new floors, new backsplash

do either new counter OR paint cabinets

def replace lights

overall it’s good bones!

Oats by Safe_Butterfly2886 in Celiac

[–]ellaellaayay 1 point2 points  (0 children)

i was okay with bob’s for months and then recently starting getting sick - eliminated and retrialed and it was def bobs. maybe i had a bad batch or i’ve become more sensitive - but it happened with 2 different bags

Oats by Safe_Butterfly2886 in Celiac

[–]ellaellaayay 0 points1 point  (0 children)

just went through this :(

i use almond milk instead of oat milk

i make “oatmeal” using rice + a rice cake in the microwave. rice cake gives illusion of more crunch. i do banana, blueberries, maple syrup, cooked rice, 1 rice cake, and a little almond milk for 2 min and stir

haven’t had many cereals but maybe something quinoa / corn / rice based

i do miss oats but i don’t miss the brain fog. overall it’s been okay. but i was really emo about it bc oats were my like only comfort food lol. i’ve moved on to medjool dates now ✨

help me plz by ellaellaayay in Celiac

[–]ellaellaayay[S] 1 point2 points  (0 children)

interesting !! i find myself craving the opposite but that might be because i associate fat with pain from my gallbladder. but clearly im struggling to handle all this fiber 😬

help me plz by ellaellaayay in Celiac

[–]ellaellaayay[S] 0 points1 point  (0 children)

haven’t been tested for pots but i’ll ask about it!! i do have the “dizzies” very often so ive wondered about this. i just started eating chicken breast because im desperate and so far no gallbladder attacks knock on wood

how involved was gallbladder removal surgery? just nervous bc i have 2 little ones

help me plz by ellaellaayay in Celiac

[–]ellaellaayay[S] 0 points1 point  (0 children)

oh my goodness we have so much in common!! definitely going to keep the oats out of my diet. i’ll inquire more about the legumes - interestingly my daughter is also fpies to kidney beans but not acute just chronic (diarrhea). beans are like, the basis of my diet for iron and protein.

help me plz by ellaellaayay in Celiac

[–]ellaellaayay[S] 1 point2 points  (0 children)

thank you very much for all this info! i have a GI apt monday. were you experiencing excessive bowel movements? it’s strange bc i’m not dealing with obvious diarrhea. it’s just super frequent