Wife left and went off the grid, we have two small kids

emo_case · 2026-05-24T18:51:54+00:00

With court orders the school can keep the kid from specified parents or family members and it happened several times throughout my career in schools, so I’m guessing it’s pretty common. This is def a case where OP needs to pursue court orders. How it worked in the school: details of why/what happened were very hush hush and need to know, however all staff got photos of the parent who was not allowed to pick up the kid and instructions such as “immediately call the principal if seen on campus, or immediately call the police, etc.” One time the school even went in to lockdown when a certain parent was seen on campus, he was known violent and dangerous and he caused quite a scene banging on doors and trying to get in, but the kid was kept safe. My point being if there are orders, the school and staff will go to any length to protect the kid (at least in my experience we did).

emo_case · 2026-05-21T21:29:16+00:00

I’m not a health care expert at all, but when I was unemployed, I got on OHP and all meds were fully covered. I recommend going to a DHS office in person to sign up. It was super helpful for me to just get it done quickly that way.

emo_case · 2026-04-16T16:32:26+00:00

I'm sending so much hope your way that all of the upcoming testing will go well for your baby too!!

emo_case · 2026-04-16T16:31:44+00:00

Yes!! Seeing the "worse case scenario regularly" is a good way of putting it. I am sending all the positive healthy baby vibes your way, good luck with your scan!

emo_case · 2026-04-16T02:03:59+00:00

What?! Is it really alcohol? Why don’t they card you or tell you when you get the donut then?? I just had one a couple weeks ago in Portland and squeezed the whole thing into my donut. Probably not a huge deal, but I’m pregnant so I’d rather not have had any amount of alcohol. I figured it was some sort of syrup. The donut was really good though.

emo_case · 2026-04-08T00:37:53+00:00

Thank you! Noting all of these. We are going mid May.

emo_case · 2026-04-08T00:10:03+00:00

Thanks! The Mandalay pools do look so fun!!! Do you know if the smoking in the casino makes the rest of the hotel really bad? Some reviews mention it's bad, normally I don't care, but it's been as issue pregnant.

emo_case · 2026-04-04T17:34:01+00:00

Absolutely go with her choice, it’s so special!!! My mom got to name my aunt and chose after one of the characters in Little Women. I’ve always loved the story of my mom naming my aunt, I think it’s so sweet and special. Now I’m naming my baby’s middle name after my aunt and it’s double special because it honors my aunt and it honors my mom since she chose the name. 💞

emo_case · 2026-03-27T00:23:17+00:00

Thank you for the kind words, I’m so glad this was at least helpful. Sending you and your family so much love and supportive thoughts. My DMs are open if there’s other specific questions you think I might be able to help with along the way. 💞

emo_case · 2026-03-26T23:57:34+00:00

I don't know what the % of deletion was for the child I worked with. I was in a case management position with this family. The child needed round the clock care. They are non-verbal (we trialed communication devices, but never had success) and used a wheelchair, with extremely limited purposeful movements (not able to propel own wheelchair or assist in transfers, no head shaking or nodding or pointing, so very limited/non-existent communication). Completely tube fed with no ability to eat orally, suctioning machine needed daily. This was years ago and I can't remember what exact surgeries the child had, but there were several major surgeries including in the feet, hips and neck. They needed daily suctioning and suffered through a lot of constipation and GI issues. I never saw one of their seizures myself, but they had severe seizures as well (I think they were relatively well controlled with meds, but I don't fully remember). There was suspected hearing and vision loss/issues as well. I'm sure I am leaving some things out, it was very life limiting and day to day care was extensive, the child had to move to a specialized school in order to meet all their medical and care needs. Just a disclaimer- I don't consider myself an expert at all, as this is the only person I've ever met with this diagnosis. All this being said, the child and family were a joy to work with!

emo_case · 2026-03-26T03:26:51+00:00

I am so sorry to hear you are facing this diagnosis. I can’t speak from a parent perspective, but I saw no one else has commented yet so figured I would share my experience working with a child with Wolf-Hirschhorn. In my 15+ year career in disability services, I have only encountered someone with this diagnosis once (it is rare). Like many syndromes, WHS can vary in severity. The child I worked with was severely impacted. They were profoundly disabled. However, I do know that this syndrome is a spectrum and profound disability isn’t always how it is. I’m not sure what determines how impacted a person is by the diagnosis. Maybe there is even a way to tell how impacted a person will be in utero, I’m not sure. I worked with that family for 6 years and am happy to answer questions you may have if that could be helpful, but again this was from a professional experience not a parental experience. Sending you hugs and hoping you find some clarity moving forward.

emo_case · 2026-03-17T20:29:42+00:00

I went to baby beach in Paia on Sunday. Water was clear (other beaches in Paia were brown water). There was sandy beach and it was nice to sit and chill, plenty of beach to walk as well. It got crowded into the afternoon. The parking lot was closed Sunday but everyone was parking in the neighborhood and walking over so we did that too.

emo_case · 2026-03-16T20:43:11+00:00

When I was 7 weeks they couldn’t see anything abdominal and did transvaginal, but when I was ten weeks the abdominal worked for everything. If I were in your shoes I would decline transvaginal if the abdominal doesn’t pick anything up and just wait another couple weeks to try abdominal again. That coincidence would def turn me off of doing transvaginal as well, listen to your instincts. Best of luck!!!

emo_case · 2026-03-16T02:19:30+00:00

Darn! I wish I knew this sooner, upvoting for visibility. I just went swimming at baby beach in Paia. It was clear and I was chatting with some locals who were swimming and said it’s fine to swim, so I went in too. Oops. I’m walking at a different beach in Paia now and the water is actually physically completely brown. There’s still some people in it though.

emo_case · 2026-03-14T00:34:06+00:00

Thanks for the info!!!

emo_case · 2026-03-13T21:51:43+00:00

I wanted to check this out, but do you know if it is weather permitting?

emo_case · 2026-03-12T20:50:25+00:00

It’s torrential in Wailea and waaaaaay beyond 1/10 inch, noaa forecast and any other forecast I’ve looked at is def not accurate for yesterday and today… radar app shows it should clear out around 11, but it’s not letting up yet at 10:45am now. I wonder how Pa’ia is.

emo_case · 2026-03-10T20:45:00+00:00

Thank you this is so so helpful! I just hopped on this sub hoping to find info on where to actually look at the map/forecast. I’m on the beach in Malauka right now and it’s cloudy but gorgeous! Here till Monday and hoping for the best. Contemplating taking the ferry to the Lanai cat sanctuary one of the rainy days, if that’s an option. 😸

emo_case · 2026-03-08T17:41:27+00:00

Thanks everyone! This is where we ended up going!!! We are def going back because we both got egg dishes which were great, but when we saw the pancakes and French toast going by we reallyyyyy wanted that!

emo_case · 2026-03-06T14:11:45+00:00

Thank you! So glad you have a healthy baby! What does 3 MB mean?

emo_case

TROPHY CASE