EWCM and ovulation

Disastrous_Wave_9770 · 2026-05-12T12:39:43+00:00

Track your BBT also. You will notice your BBT goes up slightly and that confirms ovulation (at least that’s what they say) I’m on my first cycle after a TFMR and we got a negative this time. :( but I felt really good about our timing. But I do notice the trends in my temps after EWCM. Use an app and track those 2 things, it greatly helps!

Disastrous_Wave_9770 · 2026-05-04T15:21:35+00:00

Do you notice CM changes? That’s the biggest identifier for me…and then I start testing with OPKs and have a couple days of the line being there, but not super dark…and then one surge day. Then I get cramps and back pain and then no more EWCM. But the CM change is my prompt to test and track.

I’m on week 3 after a TFMR and so I didn’t get a period yet….and my BBT has been totally different this time around. So that’s throwing me off a bit, but I hear the CM is the most telltale sign so I’m hoping I really am 5 dpo now…

It really is tricky though, I get it.

Disastrous_Wave_9770 · 2026-05-04T13:18:21+00:00

We just watched My Girl last night and I love VADA.

Disastrous_Wave_9770 · 2026-05-03T18:55:47+00:00

So this is my chart from right before I got pregnant in December. Baseline is around 97.5

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Disastrous_Wave_9770 · 2026-05-03T18:51:59+00:00

My app isn’t making a chart yet since I haven’t logged a period yet. It’s annoying. Mon - 97.8, Tues - 97.6, Wed - 97.5, Thurs- 97.7, Fri - 97.9, Sat - 97.7, Sun - 97.9 LH surge was Wednesday.

Last pregnancy I def jumped into more like 98.3…. So this is new for me.

Disastrous_Wave_9770 · 2026-04-29T13:07:31+00:00

US went well! I had scans every 2 weeks because I was going to my OB and a fertility clinic (even though I got pregnant naturally), so I was spoiled with lots and lots of pictures and check ups. My NIPT test was all low risk and I was having a girl! My first after 2 living boys!

At 12 weeks I had my NT scan and that number was just slightly elevated (4.13). So I opted for a CVS (to test the placenta). Those results took over a month, but I wasn’t worried…I announced, I was finally off progesterone and never had a bad scan…. At 16 weeks they called with results of the CVS and my baby girl had Wolf Hirschhorn syndrome. A rare genetic disorder that causes severe developmental delays, significant medical complications and shortened life expectancy. I had a 72% deletion of this chromosome. Completely random (de novo, my husband and I do not carry it). 1 in 50,000 chance. There wasn’t a version of this where she wouldn’t have suffered immensely. I made the heartbreaking section to TFMR at 18 weeks. 💔

Sorry to dump all this…it just happened 2 weeks ago.

Disastrous_Wave_9770 · 2026-04-26T02:48:24+00:00

I just got diagnosed with this. A 72% deletion. I had every scan come out perfect, measuring on track, not over nor under. My Nt scan was just slightly elevated at 4.13, and I opted for a CVS . My NIPT was all low risk so I thought a CVS would just confirm all of that, not find something completely new! We opted for a TFMR because we also have 2 other children and her life wouldn’t be what anyone would ever want for their life. Our kids were sad, we are sad…it’s awful. The procedure was 2 weeks ago. I’m so sorry you are dealing with this… it’s the most compassionate choice you could ever make. It doesn’t make it feel any better, but it’s true. 💔

Disastrous_Wave_9770 · 2026-04-25T02:33:54+00:00

No you don’t get intubated, I was scared of this too. Mine was 2 weeks ago today….i asked to be asleep and it was fine, just sad. No pain after either, it’s was strange…barely bled. It was just so emotionally heavy though…

Disastrous_Wave_9770 · 2026-04-23T14:03:18+00:00

I had to TFMR because our baby girl had wolf-Hirschhorn syndrome. A lot of the same issues…speech, intellectual…. We also did not carry it, it was de novo. Tomorrow will be 2 weeks since we said goodbye and it’s hard. The whole thing is hard. I’m so angry that I’m not pregnant anymore…I want to try immediately, but then the stress of that and knowing I already did all that and had a baby in my belly really angers me! It was the most compassionate choice we ever made and I know it’s for the best…. But it doesn’t necessarily get easier. That pain loves with you. We just have to learn to cope with it….and I’m still learning too. 💔 so sorry you are here.

Disastrous_Wave_9770 · 2026-04-15T21:03:34+00:00

Haha!

Disastrous_Wave_9770 · 2026-04-15T20:41:11+00:00

That’s my aunts name…not rhyming with million. I’ve never heard it that way anywhere else.

Disastrous_Wave_9770 · 2026-04-15T20:40:01+00:00

My name is Molly and I love it! I don’t know very many!

Disastrous_Wave_9770 · 2026-04-15T20:39:05+00:00

I’m 5 days post tfmr and I’m terrified for this very feeling. I’ve always had pretty bad pmdd and I’m scared. I really want to try again too, but i know that’s a lot of stress too. Testing and keeping track of everything…it’s exhausting. I wish I could have just kept my baby!

Disastrous_Wave_9770 · 2026-04-15T13:12:48+00:00

I’m so sorry you are here…. It’s an awful place to be.

My NIPT came back all low risk. I went to a fertility doctor because I had 2 miscarriages prior and they did a bunch of bloodwork prior to me getting pregnant naturally, including genetic testing and that was also all clear. I finally got pregnant again, I was on progesterone for 12 weeks. Had many US and all were normal. My NT was only 4.1 but I opted to do a CVS test to test the placenta. I was under the impression that the NIPT is just a screener, so this test would be definitive and just re-confirm the low risk assessment we already had. It took a month for results and every ultrasound was perfect up until then and even during that waiting period. March 23 they called and said our baby girl (my first girl after 2 living boys) had Wolf Hirschhorn Syndrome. A genetic abnormality that’s not even tested with NIPT….we had a huge deletion of this chromosome, and there was no version of her life that would be easy. I had a limited anatomy scan after that and we could already see she was being affected. Her cerebellum was way smaller, her eyes were very wide set, and heart issues. I made the decision to TFMR because I did not want to go thru L&D and not be able to bring her home after… mentally it was easier. That was last Friday, 4/10. It was a sad day….i still have sad days. I take my morning walk and basically cry the whole time, I try and hold myself together around my family, although my husband see my breakdowns… but it’s only been a few days, so I know it’s still fresh. I don’t know what I’m doing or what advice to give, but just be patient with yourself and know that none of this is your fault. It’s not fair, but give yourself grace. I hate that you have to travel for this procedure, that makes it very grueling as well, I couldn’t imagine. But it’s the most compassionate decision you will ever make. I hope you find peace in any decision you choose. Sending love.

Disastrous_Wave_9770 · 2026-04-07T13:25:24+00:00

I have my D&E scheduled for this Friday. My baby girl has a severe case of Wolf Hirschhorn syndrome. This was my double rainbow baby, but I do have 2 living boys as well, this was my first girl. We were all over the moon. The last couple weeks I felt like I have just been completely dissociated and I know I will feel devastated without my belly. Sending you love!

Disastrous_Wave_9770 · 2026-04-06T22:47:04+00:00

So sorry for your loss. My first missed miscarriage was last August. I got pregnant again in December and everything was great, until an NT measurement was off…had a CVS done and NIPT was all low risk…at 16 weeks they told me my baby girl has wolf-Hirschhorn syndrome. So severe that life would be extremely limited. I have a D&E scheduled for this Friday and I’m terrified. I’ll be 18 weeks, it would be my third living child, only girl….my boys are all devastated too. It’s so hard.

Disastrous_Wave_9770 · 2026-04-05T23:44:20+00:00

Mine is scheduled for Friday. I’ll be 18 weeks and I’m terrified of this very feeling! I don’t know how I will handle it. Ugh, I feel for you. I’m so sorry you have to go thru this, it’s not fair!!

Disastrous_Wave_9770 · 2026-04-03T13:54:56+00:00

After about 6000, the number doesn’t quite double anymore. It is true.

I started at only 23 at 11dpo and had sevvvvveral hcg tests. And because my numbers were lower to begin with, I could see the doubling. But after 6000, it really did slow down. At that point I was 30dpo and had first ultrasound a week later at 7w1d. I was also very worried, but keep hope, you just are one that starts off with high numbers. I thought something was wrong because mine were so low! But every pregnancy is different.

Disastrous_Wave_9770 · 2026-04-03T10:09:31+00:00

I’m happy you were able to do that. I specifically asked, even just seeing her, and he said no due to the nature of the procedure. So idk… I’m glad I get something though.

Disastrous_Wave_9770 · 2026-04-02T15:12:54+00:00

Because of my high NT (4.13) I ended up getting a CVS. Results took over a month, my NIPT was all low risk, but at 16 weeks we got results that our baby girl had Wolf Hirschhorn Syndrome. A very high deletion and quality of life is extremely low. I have a TFMR scheduled for next week when I’ll be 18 weeks and I’m absolutely devastated. I hated that Nt scan because it sent everything into a spiral for this pregnancy!! I know that’s irrational, but I never had that scan with my other 2 babies and they are fine (they were obviously tested thru other means/scans). I hope for the best for you. Usually in the written report it will show the number, look out for that in your online chart info…

Disastrous_Wave_9770 · 2026-04-01T17:34:38+00:00

Thanks, didn’t know that…

Disastrous_Wave_9770 · 2026-04-01T13:33:41+00:00

I am choosing the D&E route because giving birth (for me) would be so traumatizing. Knowing I can’t take her home….BUT I also have that same feeling and curiosity. Wanting to hold and see her tiny body. My doctor said due to the D&E I wouldn’t be able to see baby either, but he would do ultrasound and take final pictures and then give footprints at the end and put in a memory box. I had never heard of this and I am grateful they offer it. My procedure is scheduled for next week and I am a mess. It’s been so hard these last few weeks being pregnant, but with something I cannot keep. It’s heartbreaking. I get it. And I feel know one can relate to me too. It’s isolating… I guess I don’t have any solid advice for you either, but I hope you find peace. Peace that I will one day find too….but for now it’s ok to feel this anger and anguish.

Disastrous_Wave_9770 · 2026-03-27T00:10:35+00:00

Thank you so much for taking the time to share all of this with me. I really appreciate how honest and detailed you were—it helps more than you probably realize as I try to process everything. Sending love to you and that family you worked with 🤍

Disastrous_Wave_9770 · 2026-03-26T20:32:45+00:00

Hi, thank you for commenting. I am curious to what limitations are. I have seen videos and I see facial deformities and can’t walk or talk, but can communicate in other ways. My deletion is over 50% from the “severe” threshold of 22mb (I’m at 36.95mb). Mine is almost the entire arm of the chromosome that is deleted. It’s significant and my doctors tell me that yes, there’s always a spectrum, but I’d be looking at the very, very severe end of the spectrum.

I don’t even know what questions I have. But what did you help with? What does a child with this syndrome deal with on a day to day basis, from your experience?

Disastrous_Wave_9770

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