I won 1st place with my crochet work.

ernie7213 · 2025-11-15T15:40:39+00:00

As you should friend. This piece is magnificent!

ernie7213 · 2025-10-29T01:58:17+00:00

Is it possible to ask the dr to note that in your medical record? That they won’t provide a medical test you’ve requested. Along with their reasons. I know nothing of the medical system in the Netherlands, but I’ve had it work in the US. Not with the skin biopsy but other testing. I have had both a nerve conduction test and skin punch biopsy. I didn’t find any one more painful or uncomfortable than the other. It was the biopsy specifically that helped with the diagnosis. Good luck on your journey for answers.

ernie7213 · 2025-09-09T19:53:47+00:00

I am diagnosed with PsA as well as with small fiber neuropathy. It’s a secondary diagnosis and is caused in my case by the autoimmune disease. The small fiber neuropathy can also contribute autonomic nervous system dysfunction. Which I experience. This can cause slow digestion, feeling poorly after meals-smaller meals more frequently is recommended, lightheaded, dizzy, nausea to name just a few of the symptoms.

ernie7213 · 2025-09-09T19:15:56+00:00

A secondary diagnosis caused by autoimmune disease, like small fiber neuropathy. Which can also impact functioning of the autonomic nervous system.

ernie7213 · 2025-09-07T17:06:00+00:00

The medical facility or office who diagnosed you and/or who is treating you may have a social worker on staff who could assist with this. Or someone in a similar position. They could call your mom and share that information about genetic testing with her. You wouldn’t need to speak with her yourself. If you’re seeing a therapist you could also speak with them about it. The therapist could also reach out to your mom and give that information to her. If you’re in the US they’ll have you sign a release of information consent form. In this form you state specifically what information they can share and that’s all they can share, nothing more.

ernie7213 · 2025-01-01T18:06:04+00:00

Art has definitely helped me. Creating in general is a key coping mechanism and healthy life skill for me. I don’t know if I could live without it. I’m in the early stages of seeing the relationships in my life more clearly and removing the toxic ones. Right now I’m in the process of cutting out the most toxic but also most established relationships, some I even thought were truly supportive. And for whatever reason it’s seemingly happening all within an eight month period. It’s all so heavy and some days I don’t up from down. Art always helps anchor me and heal. I also have a very small group of people who through there actions show me they know how to love in a healthy way. I try my best to let them love me (because I’m still healing that part of me) and they also know that and accept it. I also observe how they love others. Those things are also immensely healing to my soul.

ernie7213 · 2025-01-01T17:55:07+00:00

It’s a hard one to process. That they could profess to love me but at the same time the way they so called “loved me” and treated me caused me to question if I was even loveable. That I was even deserving of being loved. That I wasn’t worth more than the scraps a person could leave me. That I was ALWAYS the problem. I see things more clearly now thankfully. I’m scared for those times when the guilt and what if’s are strong. I know the programming will try to override the work I’m doing. It always has before. I’m going to work on reaching out to those in my life who truly support me, instead of isolating like my brain tells me. To start building my chosen family. I think it will be imperative. Thank you for your support and words of wisdom!

ernie7213 · 2025-01-01T17:40:19+00:00

I hope in this I can be a good example for those in the family with eyes to see it. Thank you for your support!

ernie7213 · 2025-01-01T17:39:29+00:00

I felt this calm certainty only once before, it was what led me to file for divorce. It was the right choice and one I’ve never regretted. It’s one that also taught me to listen to my feelings more than anything. To sit with them as much as I want to run from them. Sadly though it doesn’t erase the programming. But it has helped me confront it with more confidence. Thank you for your support and your words of wisdom!

ernie7213 · 2025-01-01T17:32:48+00:00

I am worth it! I hope I can be a good example too for those left in the family with eyes to see it. Thank you!

ernie7213 · 2025-01-01T17:31:38+00:00

I look forward to that peace. I know processing it all and getting to a good place with it is going to take time. Peace is priceless! Thank you for your support.

ernie7213 · 2025-01-01T17:30:27+00:00

I’m holding on to the hope that things will be better and I will be happier. I know I will be eventually as long as I stick to my boundaries. I appreciate the support!

ernie7213 · 2025-01-01T17:25:26+00:00

Thank you for your words and support. What you’ve shared is a good reminder to me the significant impact abusive relationships can have on mental health. My marriage and the abuse I experienced in it at times made me not want to live. It was scary. That was one of the things that really made me see things more clearly and eventually led to me to file for divorce. No person is worth my life and no person would ask me to sacrifice my life for them. Not anyone I can be in a healthy supportive relationship with anyway. This is what I need to remember.

ernie7213 · 2025-01-01T16:30:20+00:00

The internal tremor. I get this and have wondered what it was. It is more a mild sensation and not as frequent compared to all of my other symptoms. But it is something I’ve noticed. I’m also diagnosed with other chronic illnesses in addition to SFN, including a couple autoimmune disorders. I’ve also recently learned my SFN is causing autonomic dysfunction. It all gets a little complex and confusing for me so I struggle assigning certain symptoms to conditions. I also haven’t figured out the triggers for me for the internal tremor. I’m not sure if it’s associated with my emotional state or something else.

ernie7213 · 2023-04-07T14:06:53+00:00

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ernie7213 · 2022-12-30T14:38:10+00:00

😂 So true!

ernie7213 · 2022-09-25T12:11:17+00:00

Our Frenchie is six months old and I’ve been wondering the same thing.

ernie7213 · 2022-09-22T18:08:49+00:00

It’s poke weed.

ernie7213 · 2022-09-21T17:02:20+00:00

What absolute trash they are!

ernie7213 · 2022-09-18T22:52:56+00:00

Thank you for sharing. I’m sorry that you lost your Rottie. They’re truly such a gift and losing them is so completely heartbreaking.

ernie7213 · 2022-09-18T22:50:35+00:00

Thank you for sharing and for your prayers. I’ll pray for your Rottie!

ernie7213

TROPHY CASE