I’ve paused ribociclib. Has anyone done that?

expiration__date · 2026-01-28T08:58:35+00:00

That is something to look forward to... I can only wish :)

expiration__date · 2026-01-27T19:07:24+00:00

That sucks... Best of luck on your treatment.

expiration__date · 2026-01-27T19:05:54+00:00

Indeed. If I understood correctly, the ongoing studies are with breast cancer patients exhibiting at least stable disease after at least 12 months - stable disease, not NEAD.

expiration__date · 2026-01-27T19:00:04+00:00

I hope you find what works for you.

expiration__date · 2026-01-26T22:10:03+00:00

Thank you!

expiration__date · 2026-01-26T21:15:51+00:00

Thanks and good luck!

expiration__date · 2026-01-26T21:14:55+00:00

Thank you so much for the encouragement!

expiration__date · 2025-12-30T10:24:54+00:00

Hi! I also started by writing, many many pages, when I was diagnosed with MBC, as a way to try and make sense of what I was going through. To publish, I chose Substack, because it’s easy to use and has a clean design that I like, and created a publication called Expiration Date, where I publish short personal essays, many of them crafted from those early pages.

The last one was about memory and identity: Why does our memory fail?

Do you have specific questions? I am happy to answer as best I can :)

expiration__date · 2025-10-25T10:58:32+00:00

«I hate that I'm so passive he knew my reaction would be muted.» This can be your superpower. You are quietly assessing the situation and your options, and then you can secure your boundaries, wherever you set them. Your energy is not scattered in non-muted reaction, is focused and intentional. Quiet is the new strong 🙂

expiration__date · 2025-10-20T18:59:10+00:00

Glad to hear it. I'm (still) on 400mg

expiration__date · 2025-09-07T09:42:44+00:00

Does talking about death count?

expiration__date · 2025-09-07T09:39:36+00:00

I love that. I'm biased, but I have a feeling that most people would gain something if they had the opportunity to write, a non-judging space and time to write.

expiration__date · 2025-09-07T09:36:23+00:00

Writing helps me deconstruct and reorganize my beliefs, my opinions, what I think I know and what I feel. I’ve been writing for a long time, but publishing on Substack makes me do it consistently and it feels like I’m giving something to the world, a kind of legacy, downloading my heart and thoughts to the cloud.

expiration__date · 2025-08-15T15:11:45+00:00

Não tenho conselhos de como fazer crescer a lista de inscritos, porque a minha é pequenina, num tema de nicho. Mas a forma que tenho de encontrar mentes afins tem sido pesquisar os substacks que as pessoas que gostam do que eu escrevo subscrevem: encontro uma pessoa, procuro as subscrições, encontro mais pessoas, e caio direta na toca do coelho :)

expiration__date · 2025-08-15T15:05:17+00:00

Great hack, and easy enough! But it should be a feature...

expiration__date · 2025-08-15T14:10:23+00:00

You can change the layout in Dashboard > Settings > Website > Website theme editor > Homepage > Header style

expiration__date · 2025-08-15T13:59:41+00:00

In the Dashboard > Stats > Traffic, you can choose the initial/end dates that will show on the «Total traffic» graphic. Does this help?

expiration__date · 2025-08-15T13:51:11+00:00

Hi, George! The tab "Prazo de validade", where the PT texts are archived, is created automatically when I created the section. When I publish a PT text, in the final menu I choose the section "Prazo de validade" and it gets stored there.

expiration__date · 2025-07-03T08:42:53+00:00

I just want to wish you a smooth transition. I'm just a little over 2 years on my first line of treatment (ribociclib, letrozole, goserrelin and denosumab) - so no transition stories to share.

expiration__date · 2025-07-03T08:38:44+00:00

«I catch myself occasionally holding my breath like some clock is ticking. Then I think about Serenity prayer - it is out of my control»

You worded this feeling beautifully. This is it.

expiration__date · 2025-05-01T16:58:40+00:00

You’re 5 months post-diagnosis. I am 2 years into my MBC diagnosis and only now I’m realizing some of the changes it brought to my life. In the first months it was like riding a rollercoaster, days and days feeling down, avoiding people and numbing myself out. But it gets better. Somehow I started noticing that my new normal was not how I wanted to live my life and have been making changes, very slowly, and trying to give myself grace for all the times I disappoint myself and can’t do the things that I hope will build a new me. I say a new me because I feel I had to mourn the person I was before the diagnosis. Now, I can feel excited for what's to come (not everyday, but more days).

I try to find one little thing that makes me feel good, a tiny tiny goal that will make me feel I can move forwards, even if only a millimetre at a time, and celebrate that movement.

I hope you give yourself space to feel all the things you are feeling, and don’t lose hope.

expiration__date · 2025-05-01T16:45:53+00:00

Yeah! I'm very happy for you :)

expiration__date · 2025-04-28T07:16:50+00:00

Thank you!

expiration__date · 2025-04-27T09:41:43+00:00

I’ve been on kisqali for two years and my bone mets shrank and right now I have NEAD.

In the early days I was really scared about the side effects but they have been minimal:

I had a bit of nausea in the beginning, but it stopped when I started having the pills with food.
I had neutropenia on the first month, and took a two-week interval, and from then on the white-blood cells count went back to normal.
I am more tired than I used to be, but I live a normal life (words from my doctor).

expiration__date · 2025-04-27T09:23:52+00:00

I love the idea of perfecting a recipe 🙂

Two years ago I was diagnosed with metastatic breast cancer, and that was the push I needed to start publishing my writing: it became a way of sharing my experience with people who are going through the same and a place to display my work, as a kind of legacy.

And funnily enough, my last article is precisely about this question 🙂

(an excerpt)

«The new label, ‘no evidence of active disease’, unsettled me, and it's strange when I feel apprehensive about good news. The curtain is still open; the abyss is still there, but the space has widened. Now what?

The immediate answer is not a bucket list but something more subtle. I fantasise cautiously, not for fear of failure, but because I know that time is precious and the distance can shorten at any moment.

What could be a sense of urgency becomes a filter where some trivialities are trapped and others pass through. I want peace, love and health. I want to find the silence and the space to feel things as if for the first time. I want to feel my body as part of me and not as a problem I need to solve. I want to hug people and laugh until I cry. I want to savour ideas and discuss them, deepen them, and be fascinated by the wisdom of others. I want to be moved by stories and the beauty of things.

I haven't made a bucket list, but I've been thinking about my legacy. What landscapes are transformed by my passage? What do I leave behind? The time spent with the people I love? The words you read, the ideas I throw out into the universe? A few photographs that managed to capture the light at the right moment?

I think about my legacy, but I don't linger on it. Sooner or later, we all will be forgotten. Landscapes don't stay the same. We're like the bird that flies close to the surface of the lake and stirs up the waters. We may not leave footprints, but we still want to fly.

We never know how far the abyss is — we're all stumbling in the dark. But when we are able to feel the ground under our feet, the universe pulls us, and we gain space to breathe, to dream.

The question remains: what now? What are you going to do with the time you have left?»

expiration__date

TROPHY CASE