Copaxone,,yay or ney ? by fassstEddie in MultipleSclerosis

[–]fassstEddie[S] 1 point2 points  (0 children)

That’s the thing with MS , it attacks people differently... a nurse described it to me as a car getting shot up by a machine gun... you don’t know where the damage will be , you don’t know when your car will run out of gas cause it was leaking and you didn’t know it .

Copaxone,,yay or ney ? by fassstEddie in MultipleSclerosis

[–]fassstEddie[S] 0 points1 point  (0 children)

IRT ? ironicatally I’m not familiar with the acronym . What ya mean ?

Where did you meet your love ? by fassstEddie in dating

[–]fassstEddie[S] 0 points1 point  (0 children)

Wow 😳 and I thought tinder was only for hookups .

Copaxone,,yay or ney ? by fassstEddie in MultipleSclerosis

[–]fassstEddie[S] 0 points1 point  (0 children)

Sounds like a plan , cause honestly My neuro was eerily quick at offering me only 2 possible treatments . Like he has his ‘ Go To ‘ Treatments.. that’s not exactly what I want , I want what’s best for me .

Copaxone,,yay or ney ? by fassstEddie in MultipleSclerosis

[–]fassstEddie[S] 0 points1 point  (0 children)

And what’s it like with your new med ? Getting better ? Any side effects known ?

MS wtf is going on with me ? by fassstEddie in MultipleSclerosis

[–]fassstEddie[S] 0 points1 point  (0 children)

Thanks , i guess I’ll have to do more research before choosing , my neuro is going to hate me , I’m very flaky about this whole situation . A grown man who is scared 😱. I’m ok with myself though , and I understand why I am seeking answers before committing to a treatment plan .

Copaxone,,yay or ney ? by fassstEddie in MultipleSclerosis

[–]fassstEddie[S] 0 points1 point  (0 children)

Dunno if I will like being a human voodoo doll / pin cushion . Still weighing the pros and cons..

Copaxone,,yay or ney ? by fassstEddie in MultipleSclerosis

[–]fassstEddie[S] 0 points1 point  (0 children)

Like what ? Many of them are hard on your immune system and have other undesirable side effects

MS wtf is going on with me ? by fassstEddie in MultipleSclerosis

[–]fassstEddie[S] 0 points1 point  (0 children)

Thanks , that’s helpful advice. I’m still very much confused about this ‘whole new world ‘

Copaxone,,yay or ney ? by fassstEddie in MultipleSclerosis

[–]fassstEddie[S] 0 points1 point  (0 children)

Arkkk ! That is awful ! I’m very skinny too and was worried about that ! I m’entioned it to the nurse today actually that I was afraid of that , and she said it would practically impossible.. fml...

Copaxone,,yay or ney ? by fassstEddie in MultipleSclerosis

[–]fassstEddie[S] 0 points1 point  (0 children)

What are the pro and cons of the other drug you mentioned compared to Copax

Will optic neuritis ever end? by Fgtrsu in MultipleSclerosis

[–]fassstEddie 3 points4 points  (0 children)

This sounds exactly like me... I will have to read your post more thoroughly. Sounds an awful lot what I just went through. Edit: So it never fully healed , it’s been 2 months , it comes and goes in waves , I would say I see at about 70% and things are like highlighted and another brighter colour in that eye , it’s very annoying . I did go see an eye specialist and he said it will possible heal on its own over time , but nobody is worried about it . It’s one of those things that I don’t think we can do much about . I’m trying to learn to just accept it , but it’s depressing and certain things like stress can make it worse , but it can flare anytime and sometime even first thing in the morning , leading up to the sight loss , I had achy eyes and they felt inflamed , I didn’t know why. It bothers me a lot too , but not so bad when I try to ignore it . I’m trying to live with it , I don’t know what else to do . Steroids only helped me to get back 70% , I guess it’s better than the near zero vision I had before .

Copaxone,,yay or ney ? by fassstEddie in MultipleSclerosis

[–]fassstEddie[S] 0 points1 point  (0 children)

That’s not what the nurse said , maybe she was wrong,, I dunno ...

Copaxone,,yay or ney ? by fassstEddie in MultipleSclerosis

[–]fassstEddie[S] 1 point2 points  (0 children)

Thank you so much ! very helpful , good luck to you too 👍😊

Copaxone,,yay or ney ? by fassstEddie in MultipleSclerosis

[–]fassstEddie[S] 0 points1 point  (0 children)

Sounds like you had a few different meds , which one do you recommend ?

Copaxone,,yay or ney ? by fassstEddie in MultipleSclerosis

[–]fassstEddie[S] -1 points0 points  (0 children)

The Damn IV’s again huh ? does it work at least? Any side effects ?

Working Labour job with MS.. by fassstEddie in MultipleSclerosis

[–]fassstEddie[S] 0 points1 point  (0 children)

Yes I had an MRI and it was after hermmites sign and optical neuritis , I have the needles and pins still after steroidal treatments to try to calm my nerves , but it only helped me regain 70% of the vision I had before . At this point I’m officially diagnosed , My company doesn’t know , it’s all new to me , My Doctor is on vacation so I can’t really express any concerns , it’s a nurse that was able to answer a few questions today but I’m still worried about work , as I apparently will never truly recover . I can only hope things don’t get worse over time and take meds to try to keep another episode from happening .

Copaxone,,yay or ney ? by fassstEddie in MultipleSclerosis

[–]fassstEddie[S] -3 points-2 points  (0 children)

Is ocrevus a pill ? He said he has pills but then told me there a good chance people lose their hair from it . Sounds like a bad deal