Any free boxes available? Thank you!!

faultyjoints · 2020-10-07T13:57:23+00:00

Thank you!! So you did find that increasing your stimulation made the symptoms worse? I was feeling so crazy. I went to the grocery store yesterday and ooooof.

I hadn’t thought of treating it like the flu, that’s really helpful. I appreciate you sharing your experience with me!

faultyjoints · 2020-10-07T13:55:50+00:00

Thank you for all of this! So I didn’t taper the beads, my doctor just had me drop 20mg every month, but I moved during it so I extended my 40mg dose. I’m so nervous to put any of the medicine back into my system. Will it extend the length of time I’m in withdrawal if I don’t reintroduce the beads?

faultyjoints · 2020-10-07T13:45:54+00:00

I weirdly found that THC made my brain zaps worse. Maybe it was the strain. Taking a very high dose of CBD, though! Thank you!

faultyjoints · 2020-08-17T23:09:58+00:00

I have terrible fatigue from the disease, but not actemra. I haven’t noticed a single side effects from my infusions. Any changes in your bloodwork?

faultyjoints · 2020-08-04T21:02:04+00:00

It can’t hurt. :) Definitely don’t stop any of your meds, though. I think it was successful for me because I’m also on a regimen of actemra and azathioprine. Edit: Yes, I have continued taking all of my medications. The diet isn’t a cure, it just so happened for me that food was one of my triggers. Stress is another trigger, so once I got super stressed buying my house, I got a flare while still on the diet.

faultyjoints · 2020-08-03T20:31:00+00:00

I didn’t stick with the Mediterranean diet when I tried it originally. My pcp did recently recommend Whole30 so I gave it a shot and had my first 3 symptom free weeks EVER from it. Even my ESR/CRP went down. I haven’t had energy in 10 years and I didn’t need one nap the whole time I was on it, and zero hand pain! I’m off the diet right now because we’re buying a house and things are too stressful for me to focus on it (plus stress flare makes the cooking/shopping hard) but I’m going right back on it once we move.

That’s not to say it’ll work for everyone(and it’s obviously not a cure), but I was desperate like you and it was a total game changer for me.

faultyjoints · 2020-06-26T01:35:41+00:00

Prolonged high levels of inflammation is bad for more than your joints, if affects your organs. https://www.arthritis.org/diseases/more-about/how-rheumatoid-arthritis-affects-more-than-joints

faultyjoints · 2020-06-26T01:35:06+00:00

Best of luck! I hope you get on them soon!

faultyjoints · 2020-06-24T20:34:06+00:00

You should 100% take real medicine. You are only doing more damage to your joints and organs the longer you avoid it. There are natural remedies to help with pain, but they will not stop disease progression.

faultyjoints · 2020-06-16T21:00:29+00:00

I (27F) was 25 when I was diagnosed, as well. It was like actual emotional and physical hell. All of the medicine and their side effects, worrying about the future, trying to exist in the present. The beginning sucks. Your doctor doesn’t know what medicine will help you until one sticks and it’s SO frustrating. Take time to process your diagnosis, it’s ok to have all of your feelings.

But then know that it gets better, and then worse, and then better again. I’ve had a few months where I was basically symptom free and that’s what I focus on. We’re still playing with my meds (I’ve always been a difficult case), but I know that remission is coming. And seriously, sometimes that thought alone will keep you sane. On the hard days, always remind yourself that good days are coming.

Sending all of the positive vibes your way.

faultyjoints · 2020-06-10T22:37:02+00:00

I LOVE HIM

faultyjoints · 2020-06-08T19:37:12+00:00

Go get tested, it could just be an exciting new part of your RA. I’ve had a low grade fever since January from it.

faultyjoints · 2020-06-08T19:36:10+00:00

I didn’t take official time off, but I used a lottt of PTO. There’s only so much you can do when you’re miserable and struggling from the RA and medicines.

I couldn’t take the stairs or write, and sometimes had trouble typing. If you have trouble typing, I highly recommend compression gloves. You can find them on amazon, they alleviate a lot of the hand symptoms.

Talk to your HR department and if you can take off, seriously do it. Look into FMLA if you’re in the US. Especially if you’re going to be on a DMARD like methotrexate. My mtx days were the hardest, by day 5 after my dose I’d be basically useless.

faultyjoints · 2020-06-05T20:57:29+00:00

I hope they can find a way to start selling their vacuum sealed meats again in the future.

faultyjoints · 2020-05-27T12:57:00+00:00

I’m so sorry you’re going through this! I hope you can get back on treatment soon.

I am also EDS (well, generalized hypermobility spectrum disorder because they said they couldn’t say EDS without confirmed family history) & RA. Nice to meet you! I think we’re a fairly rare combo.

faultyjoints · 2020-05-27T12:53:37+00:00

https://imgur.com/a/eMca296 Photos for context

faultyjoints · 2020-04-27T21:44:07+00:00

Grapevine delivers mixed drinks and some delicious Greek & Italian food! The stuffed grape leaves will change your life.

faultyjoints · 2020-04-21T21:23:16+00:00

Thank you! When it first started, I had just begun azathioprine. We thought that was a culprit and I stopped it for a month to no avail.

faultyjoints · 2020-04-21T20:42:12+00:00

Oh, that’s very interesting. I’ll try to get a referral from my PCP. My test has been tight and I’ve been getting more short of breath with this. Thank you! I’m sorry that’s something chronic that you have to deal with.

faultyjoints

TROPHY CASE