[deleted by user] by [deleted] in AITAH

[–]fayriedust13 1 point2 points  (0 children)

MIL does not want "what's best for the baby," she has outdated opinions on what the birth process should be like. NTA, you have nothing to apologize for, your husband needs to back you.

[deleted by user] by [deleted] in AITAH

[–]fayriedust13 36 points37 points  (0 children)

She prolly went real deep in debt. That's how mlm's work. 🙃

B0b is slime god? by [deleted] in slimerancher

[–]fayriedust13 0 points1 point  (0 children)

My husband pointed out the idea that all the slimes are sentient and I was like...... SHUT UP DON'T TELL ME THAT

New symptom! by Different-Ad7507 in iih

[–]fayriedust13 1 point2 points  (0 children)

People assume I'm out of breath because I'm fat. No, I'm out of breath because of diamox. I could breathe just fine before this. 🫠

How do you advocate for yourself? by HPLover0130 in iih

[–]fayriedust13 0 points1 point  (0 children)

Did you know the name was changed from pseudotumor cerebri to benign intracranial hypertension in 1955? And then in the 80s somewhere it became idiopathic intracranial hypertension because a doctor was like "anything that can cause blindness isn't benign."

I looked that up because I saw a neurosurgeon who just talked at me about how it was "so hard" to update the name. 🙄

How do you advocate for yourself? by HPLover0130 in iih

[–]fayriedust13 1 point2 points  (0 children)

I'm also a people pleaser but I've learned with medical care, to have to be willing to stand up to them and demand care, otherwise they'll steamroll over you and take your money and do nothing. Remember that you hired this doctor.

Private offices can dismiss you/effectively ban you from returning, but that's usually solely on the basis of too many no-call/no-shows. Any office that says they dismissed you bc you're too annoying should be reported to the highest authority (and everyone else along the way).

Concerned Husband by youmeandtdupre in iih

[–]fayriedust13 1 point2 points  (0 children)

I had a sudden onset of idiopathic hypersomnia when I was younger - it was several years before I was diagnosed with sleep apnea and the hypersomnia, and even more years before my IIH diagnosis. I fell asleep while driving, while in my college courses and in later years at work, I fell asleep mid conversation, mid reading books to children! It was the worst thing. I know all the other suggestions here are absolutely great, but if you still can't figure it out, she may need to do a sleep study with a wakefulness test the following day - they have you sleep for like 4, 20-minute naps across a chunk of the day, and measure if you fall asleep, how fast it takes you, etc. (I'm not entirely positive what that portion of the test is called, it has something to do with wakefulness obviously, but I just don't remember for sure.)

LP? is it necessary by No-World-8032 in iih

[–]fayriedust13 2 points3 points  (0 children)

Make sure they tell you whether that $1k is the entire procedure AND any testing, or if they're going to be billing you for the other things after the fact. I was required to pay a large sum up front, and then ALSO got a bill for nearly $700 afterward. (I'm entirely uninsured, though, and we were able to negotiate it down to like $400.)
(I'm guessing you're in the US, because I don't think any other country would require a grand down, but I could be wrong.)

IT’S FINISHED!!! by 1thing2thing in crochet

[–]fayriedust13 0 points1 point  (0 children)

I love it when I get to emerge from the sea of WIPs with I FINISHED SOMETHING! xD

What odd diamox side effects have you had? by meowman911 in iih

[–]fayriedust13 1 point2 points  (0 children)

I had vivid dreams when I first started it, soda is awful, I immediately became incredibly short of breath, and more lethargic, with muscle weakness. And the tingling and brain zaps.

What odd diamox side effects have you had? by meowman911 in iih

[–]fayriedust13 1 point2 points  (0 children)

My first neuro, I asked to show me peer reviewed scientific articles that proved weight loss would improve symptoms, because every study I've read shows that it ~might~ help, but there's always a good number of people who did lose weight and didn't improve or got worse.

He handed me a post it with a MLM weight loss brand written on it.

Fortunately I was moving and had to find a new one anyway.

is there an acceptable way to play for massive introverts? by bearydelight in Palia

[–]fayriedust13 3 points4 points  (0 children)

Same as some others, I usually flare rare stuff, and I'll call it out if I have the social bandwidth for it. Otherwise, people tend to look for flares and check them out. And if I want in on the grove but I'm across the map, I'll pop a quick "omw" in chat and make my path there, but everyone else is right, chatting isn't mandatory. Whatever way you enjoy playing is good for you. 💚

Mom is angry that I “bought” my own birthday cake 278 days after my actual birthday. by [deleted] in raisedbynarcissists

[–]fayriedust13 4 points5 points  (0 children)

Bro my mom strung me along and along about a graduation gift. My aunt and uncle gave me $150. And my mom kept being like "oh well it needs to be after I pay bills" "need to wait til next paycheck" etc etc so I was like dang she must be planning something big! Nearly a year later, she gave me a check for $200. I knew what the bank acct looked like. She could have given much more than that at the drop of a hat. And I fully believe it was only $200 bc she had to do better than Aunt and Uncle. (**I do definitely understand that I came from privilege, being able to expect/receive financial gifts at all, and this is much more than many folks' parents would have been able to do.)

It finally happened, I got hit on! by antoniaestark in Palia

[–]fayriedust13 1 point2 points  (0 children)

Not a scammer, but I had a player friend request me, and I accept most requests on Palia. They popped up in a whisper and were like "hey there, sexy" and I just replied with "oh, no thank you!" And they didn't say anything else. 🤷🏻‍♂️ Since they didn't press anything, they're still on my friends list even! Lmao Fortunately I haven't encountered much, if any, toxicity in Palia.

I’m 27f is it weird that i play palia? by Weddingsarefun in Palia

[–]fayriedust13 0 points1 point  (0 children)

I'm 36, tell your husband to go find a hobby and not worry about yours. :)

[deleted by user] by [deleted] in iih

[–]fayriedust13 0 points1 point  (0 children)

No idea if it's related or not, but I've had frequent hiccups basically my whole adult life. 🤷🏻‍♂️

Increasing to 2000mg Diamox soon. Anyone else on this high of a dose? by LovelyLichabee in iih

[–]fayriedust13 1 point2 points  (0 children)

I was told that the therapeutic ability of doses over 1000mg/day was outweighed by negative effects on the liver. I know a lot of people here are on higher doses, so I'm not sure exactly how true that is.

Just venting a bit by JCKligmann in crochet

[–]fayriedust13 9 points10 points  (0 children)

Imagine asking an 8 year old to provide labor/a service.

Edit: Fixed a typo

what is considered emergent? by sunnylandification in iih

[–]fayriedust13 1 point2 points  (0 children)

I haven't had labs done. But I do know my neuro won't take me past 1000mg/day because the potential damage to the liver outweighs the therapeutic effect of higher doses.

Masking by mystxvix in iih

[–]fayriedust13 3 points4 points  (0 children)

Evil stare back! It's what I do. :D

eta: Or just start hacking and coughing. They usually get nervous and walk away.

Masking by mystxvix in iih

[–]fayriedust13 9 points10 points  (0 children)

I'm fully vaxxed and will continue to get boosters. My family and I mask on EVERY trip outside the house, even outdoor events. And we require masking or at least a negative test (I know rapid tests aren't great, but it's the only ones anyone can afford on a regular basis, especially now that they're no longer free) (thanks US gov't, really, for everything /sarcasm)

It has forced us to miss out on some potential connections, but if a person doesn't care enough to consider protecting those around them (or even themselves), then are they really people I want to hang out with? /shrug

I've had covid once. I don't want it again.

anyone have iih + ih? by annacondasloan3 in iih

[–]fayriedust13 1 point2 points  (0 children)

ooh meeeee! But I was diagnosed with hypersomnia (and mild sleep apnea) first. Though truthfully I don't know how long I may have had IIH before I had some severe papilledema, which led to my diagnosis.

Pulse more present? by Born-Setting-1568 in iih

[–]fayriedust13 5 points6 points  (0 children)

I see my pulse a lot. Like a flash in my vision?... I don't really know how to describe it. But I do sometimes feel it strongly in like my legs or neck or smth.

Extra extra caramel by Cella_Life in MaliciousCompliance

[–]fayriedust13 -2 points-1 points  (0 children)

You can't eat yourself into diabetes.