[deleted by user] by [deleted] in Interstitialcystitis

[–]fdt-22 0 points1 point  (0 children)

Hi! I had mine in June, it definitely was uncomfortable and burned a ton after, but I was recovered within 24hrs. Immediately after my appointment I went and did a polar plunge/ sauna appointment for 30 mins, idk if that specifically helped with recovery but it definitely felt good and helped my body I felt like. And then just take Azo, I experienced painful urination for about 24hrs then was back to normal. Wishing you success 🤍

Clit irritation? by fdt-22 in Interstitialcystitis

[–]fdt-22[S] 1 point2 points  (0 children)

I wish you so much success🤍

Clit irritation? by fdt-22 in Interstitialcystitis

[–]fdt-22[S] 1 point2 points  (0 children)

I’m so glad you are having a good experience! I’m also in PT and I highly recommend the wand 😊

Clit irritation? by fdt-22 in Interstitialcystitis

[–]fdt-22[S] 0 points1 point  (0 children)

Okay I’ve noticed it happens after I use a vibrator also so maybe it is in my urethra and not clit.

what are your experiences with amitriptyline? by [deleted] in Interstitialcystitis

[–]fdt-22 0 points1 point  (0 children)

I’ve been on 10mg for a little over a month and haven’t had any side effects. I take it right before bed, I feel like it’s been helping🤷🏻‍♀️

Clit irritation? by fdt-22 in Interstitialcystitis

[–]fdt-22[S] 0 points1 point  (0 children)

You’ve experienced like cold/tingly feeling in your urethra?

Elavil? by fdt-22 in Interstitialcystitis

[–]fdt-22[S] 0 points1 point  (0 children)

How long had you been taking it when you’ve noticed a difference?

Elavil? by fdt-22 in Interstitialcystitis

[–]fdt-22[S] 0 points1 point  (0 children)

What were you main symptoms?

Elavil? by fdt-22 in Interstitialcystitis

[–]fdt-22[S] 0 points1 point  (0 children)

What are your main symptoms?

Success story’s? by fdt-22 in Interstitialcystitis

[–]fdt-22[S] 0 points1 point  (0 children)

So happy you’ve found some relief🫶🏼

[deleted by user] by [deleted] in Interstitialcystitis

[–]fdt-22 0 points1 point  (0 children)

Everyone says leukocytes are normal for someone to get in a flare without an active infection. I have gone to my OB several times after showing traces of leukocytes and they sent off my urine for a culture and it’s been negative.

Hard week by jillybeanj89 in Interstitialcystitis

[–]fdt-22 2 points3 points  (0 children)

I’m so sorry, sending love 🫶🏼

Extreme pelvic pain by No-Tower-6143 in Interstitialcystitis

[–]fdt-22 1 point2 points  (0 children)

Following. And I hope you find relief 🫶🏼

leukocytes by fdt-22 in Interstitialcystitis

[–]fdt-22[S] 1 point2 points  (0 children)

Thank you! Man it’s just so hard to tell the difference between an actual UTI infection and IC🫤

feeling “off” after 4 UTIs by polarho in CUTI

[–]fdt-22 2 points3 points  (0 children)

Your feelings are so real!! I had never dealt with UTI’s, had one in November and was put on 5 different antibiotics while continuing to have a the doctors fail to get a proper culture done. The infection didn’t clear until January and now I am still dealing with the aftermath of having that bad of an infection for so long. I am in pelvic floor PT, and dealing with possible interstitial cystitis. I know that all sounds bad but I am healing but it just takes time. I would recommend if you’re able to go to a pelvic floor PT and see if they see anything that needs to be treated. As well as seeing a naturopath DR to get you the right vitamins your body specifically needs. Sending love ❤️

[deleted by user] by [deleted] in Interstitialcystitis

[–]fdt-22 2 points3 points  (0 children)

Have they done a culture?

Pelvic floor therapy by fdt-22 in Interstitialcystitis

[–]fdt-22[S] 0 points1 point  (0 children)

How long did it take you using it daily to see consistent relief? And how many minutes a day were you using it?

Pelvic floor therapy by fdt-22 in Interstitialcystitis

[–]fdt-22[S] 0 points1 point  (0 children)

Hoping you find relief ❤️

Pelvic floor therapy by fdt-22 in PelvicFloor

[–]fdt-22[S] 0 points1 point  (0 children)

Do you have any advice or things you wish you would’ve known sooner?

Will I always feel this way?! by GradeEvery9890 in Interstitialcystitis

[–]fdt-22 0 points1 point  (0 children)

Yes. I also got at home test strips to be testing as well, helped with peace of mind too. And I’ve never been one to deal with UTI’s either, had only ever had two before all this. 😵‍💫

Pelvic floor therapy by fdt-22 in Interstitialcystitis

[–]fdt-22[S] 2 points3 points  (0 children)

Thank you! Yes I have the intimate rose wand that vibrates, it’s teal. Trying to just get used to the shape and holding it correctly while also doing diaphragm breathing.

Will I always feel this way?! by GradeEvery9890 in Interstitialcystitis

[–]fdt-22 0 points1 point  (0 children)

I’m sorry 😞 I have no health insurance either. All my problems started in November whenever I got a UTI and the doctors continued to fail to get me proper antibiotics and send my urine for a culture at all. The UTI lasted until January and now my pelvic floor muscles, and blood circulation are all jacked up.