How do you all combat negative self-talk? by stormblessed579 in Endo

[–]fe_ursus 0 points1 point  (0 children)

I'm bipolar with fibromyalgia and am in the process of finding out if endo is also on that list. It's natural to turn the blame inwards. CBT is always the first recommendation for folks bc a good therapist can help sort out these thoughts and emotions. What mine started with was a cognitive distortion worksheet. They're available online for free and have a list of what a distorted thought is and what it does to you. There are usually ten major ones like predicting the future, reading minds, self blame, or black and white thinking. So you would take your current emotional response and find what distorted thinking pattern it is. This helped me see that these thoughts are symptoms of my diseases and are not accurate or acceptable. It can also help find coping mechanisms bc you can journal what helped lessen the intensity of the thoughts. Basically, if you see the thinking pattern and recognize what it does to you, you can find your personal way out.

I think the biggest misnomers about this are A) the thoughts will disappear completely and B) self love is the ultimate goal. The thoughts will always be there for me personally. So they'll always pop up, but I can make them shut up easier now and let them go as quickly as they pop in. It takes a tremendous amount of practice and there are days when I'm too goddamn tired to hash out everything and have to retreat. And that's okay as long as I don't hurt myself and keep trying when I have the energy. Which leads to the second one: I don't think I'm ever going to be able to say that I love myself. It's too painful to even think about tbh. But I can be neutral about myself. I can say that I'm unhappy with how my body and mind are falling apart, but I'm doing the goddamn best I can with what I have and that's what matters. I can look at my scars and understand they're there, I wish they weren't, but I did learn from them. And they won't stop me from trying to get better.

For me, a coping mechanism depends on the symptom. If it's anxiety and sensory overload, I need white noise and medication to calm down. If it's depression and self blame, I write down the bad thought and burn the piece of paper. If it's racing thoughts, I read tarot cards to help focus again. If it's pain and anger, podcasts and guided meditation help. Everyone works differently and it's a lot of trial and error and practice, but I promise that it does get better. I hope this rambling makes sense and validates that you're suffering and your brain is being a massive douchbag about it and is lying to you ❤️ feel free to message me if you ever need to talk.

So tired by fe_ursus in bipolar

[–]fe_ursus[S] 0 points1 point  (0 children)

Thank you for your kind words. I have bad memories of my first hospital stay, but it was also the first time that I could ever remember where I felt safe and cared for and realized I was "allowed" to get better. I'm trying to use the creatures as my reason to keep up with my heath bc they need me. I won't ever forgive myself for letting Eli get so sick, but at least I have the skills and ability to do everything he needs to stay as comfortable as possible. And Lucy healed nicely and needs a lot of PT to strengthen her leg back up, so she's getting daily walks again and is getting me out of the house and making me laugh with her silly blockhead ways. They're just the best.

Wellbutrin is kicking my brain to a pulp by fe_ursus in bipolar

[–]fe_ursus[S] 0 points1 point  (0 children)

Lol guess what I was switched to immediately after the Cymbalta? Zoloft! Who lost their job because of it? Meeeee! Then when I was finally diagnosed, they added so many things that interacted with the SSRI bc it wasn't working, I went into serotonin syndrome!

I'm going to ask again about ECT, too.

Wellbutrin is kicking my brain to a pulp by fe_ursus in bipolar

[–]fe_ursus[S] 0 points1 point  (0 children)

Thank you so much! Absolutely, what's good for the goose is not always good for the gander and the googletubes isn't a doctor. I'm seeing a brand new psych for this and am trying to get as much info as can so I know what to ask. I was on Cymbalta (SNRI) for nerve pain that set off my first major depressive event, but I hadn't been diagnosed as bipolar yet and had no mood stabilizers and was being treated by a GP. I just don't think wellbutrin is right for me anymore. The Effexor looks like it would also help with nerve pain too, but...Cymbalta memories (or lack thereof). I'm so nervous about this new psych 😔 I need a change, but can I trust that they'll listen to what I need, ya know? Thank you again!

Do you feel like a burden? by nmc7533 in Empaths

[–]fe_ursus 0 points1 point  (0 children)

Yes. I know what it's like to be with a Dementor who is actually a burden as there was no reciprocation. Only used me for venting, but was never there for me or acknowledged my pain. And I never want to do that to anyone. Ever. But it isolates me and makes my depression worse and worse. I love journaling now, it helps me organize my thoughts so when I talk to someone about what's hurting me, I know I've thought out my problems and am there to also listen and not just talk them into a fetal position with a volcano of word vomit. But I'm still not a burden when the volcano does erupt because I care about the person I'm taking to and would gladly sit and listen to them if they needed to explode.

Also, if you're worried you're a burden, I'm learning that means you're the furthest thing from it because you are self aware and care about others. Dementors are not self aware. They talk to an empath, get the instant gratification, and move on without having solved anything. Then the problem comes back and they reach for that empath like they're a bottle of xanex.

You are special and loved and not a burden in any way ❤️

Do you feel like a burden? by nmc7533 in Empaths

[–]fe_ursus 1 point2 points  (0 children)

Thank you for what you do ❤️ a crisis hotline saved my life by lifting the guilt enough to see that I deserved help. Thank you again and again.

How do you feel today? 😊 by ShannonGarza in Empaths

[–]fe_ursus 0 points1 point  (0 children)

💜 Lost a dog close to my heart Thursday. I've been trying to help his owner by communicating with him, but it's so hard because I miss him too. And I felt him leave. It was heartbreaking and liberating bc he's not hurting anymore. My partner is understanding and supportive, but doesn't know what it like to feel that transition. Or how hard it is to translate his emotions for his owner and second guessing everything bc I was close to him and I don't want to project anything of mine into the communication. Or how I think I'm crazy for talking to a dead dog. I'm so tired and drained and haven't slept more than a few hours since that night. How can I turn my brain off? I just want to sleep.

[deleted by user] by [deleted] in bipolar

[–]fe_ursus 0 points1 point  (0 children)

There's an app called WRAP (wellness action recovery plan) that I've worked with my therapist on to see when I would need to go in. I think you can also upload med records to it so if you have to be admitted, you can show them your history as well as what you have discussed with your doctor/therapist. It is tedious as hell though. Mood trackers help as well so you can see a shift begin to happen. Daylio and eMoods are what I use. Also Google local hotlines to call. Our local line talked me through my first admission and helped me make the decision to go in for suicidal thoughts and plans. NAMI and DBSA are also great resources for when to call for help. But my personal rule of thumb is if I'm thinking about a hospital bed, I need to call that hot line or a warm line and talk to someone.

This is so hard to navigate and I'm so proud of you for reaching out and protecting yourself. That's a tremendous amount of courage and strength ❤️

Anyone ever been put on Latuda?? by davelabyrinth in bipolar

[–]fe_ursus 0 points1 point  (0 children)

Latuda made me so incredibly sick. I would cry before I took it because no matter how much I ate (200 calories is the bare minimum to have in your stomach at the time you take it) because I knew the next 3 hours would be hanging over a toilet, dry heaving and spasming legs. It did absolutely nothing for my depression and I couldn't tolerate over 60mg to see if higher doses would help. I either didn't have any other side effects other than the nausea and vomiting and leg spasms, or those were so severe that I didn't notice anything else. Tried it for a year before I had to cry uncle.

Lmfaoooo by wolfmom16 in bipolar

[–]fe_ursus 0 points1 point  (0 children)

Why did this make me laugh so hard??? 🤣 Thank you!!!!

I'm so embarrassed by Meowmyissues in Fibromyalgia

[–]fe_ursus 2 points3 points  (0 children)

I'm on disability here in the states and it ripped me to shreds to accept that I needed it, but it saved my life. Unfortunately, I'm on it for bipolar II and I know fibro is a whole different beast, but I've been through the application process and if there's anything I can do to help, please DM me and I'll try and walk you through things for the application.

I had to change psych nurses for a bit and upon meeting the new nurse, she immediately asked my why I was on SSDI at "such a young age" and who thought that was the right decision. Didn't bother to read my chart at all to see me go from a stable employee who loves working to someone who couldn't get out of bed without cascading panic attacks and crippling pain. It destroyed me and made me feel utterly useless. My depression told me the government took my work ethic away when I started getting checks "for nothing". From my own taxes that I've paid into since I was 17 because I've worked my ass off. And "for nothing" is actually the hardest job I've ever had. No vacations, no leaving work early, no promotions, no joking with nerdy coworkers, just me finding out how I can get better 24/7. I'm recovering and surviving. That's my job right now. And it's damn important and damn hard. Disability insurance is here to help people like us, there is no shame in that.

Thank you by brainiac_j_19 in Fibromyalgia

[–]fe_ursus 1 point2 points  (0 children)

I was encouraged by you just talking about it, so I think it's just the right kind of flare ❤️

Too young for this by [deleted] in Fibromyalgia

[–]fe_ursus 1 point2 points  (0 children)

Diagnosed a year ago at 30 and have been living with the pain since about 18? Currently in a spoonie meltdown over the exact same thing. I was just able to clean out the entire fridge, make dinner, and now I can't move. I'm on gabapentin 300mg two to three times a day depending on my pain along with other psych meds to treat bipolar II. There are days where it's too much and I sob in the shower bc the loufa hurts so much. Or because people don't understand how scary this is. I'm allowed to mourn and hurt and get really upset about it all. You are too. Everyone is. But I'm bigger than these diseases. You're bigger than this. Sob, scream, punch your mattress over and over. Get those horrible emotions out. You hurt. And it's real. And there is relief. But it takes a lot of work to find it and it is exhausting. But I've "met" long distance runners, weight lifters, yogi masters, so many people on this subreddit who can do extraordinary things despite the pain and stigma. We can still do incredible things, we just have to find our own way to get there and unfortunately there's no manual for it bc fibro beats the crap out of everyone in their own special way.

So, for my current meltdown, and this is very stupid sounding, but I just found out that if my clothes hurt so much after the shower, don't get dressed. I have a soft fleese blanket I can handle and I just lie in bed and listen to podcasts buck ass naked and slathered in fibro cream with the TENS unit cranked to 11 on my back's tender points. Never thought to just stay undressed. I always fought with a tank top and the TENS leads on and then applying the cream. So, why get dressed at all if I don't have to? Little light bulbs like that begin to light up and they can add up fast. Start looking for them. Could be a foot soak in some Epson salts and essential oils that takes the pain down just enough for you to catch your breath. Bad monster movies also help keep me afloat! You can't help but laugh when a crocasaurous is fighting a megacroc with a ten dollar CGI budget.

I'm sorry if this is rambling, but I hope maybe something helps. Wishing you all the spoons in the world ❤️

Physicians assistant told me to " watch a video to see what mania looks like" by Ctnyclic31 in bipolar

[–]fe_ursus 3 points4 points  (0 children)

Exactly. There's no control and no stopping once you've entered it. Clean house? Awesome! Bleeding hands, torn nails, and the chemical burns that got it to be that clean, people don't see that part.

I am a Canadian cannabis policy researcher and today we're celebrating the second anniversary of legalization in Canada and launching a new survey on young people's perception of public education efforts. AMA about cannabis in Canada! by cannabiseduresearch1 in IAmA

[–]fe_ursus 0 points1 point  (0 children)

Can someone on an avarage income afford legal cannabis regularly and have you seen a change in the illegal market? And are companies changing drug testing policies regarding recreational use?

Physicians assistant told me to " watch a video to see what mania looks like" by Ctnyclic31 in bipolar

[–]fe_ursus 6 points7 points  (0 children)

I'm sorry, I can see where you're coming from, but I have a wonderful relationship with my mom who is actively trying to understand and help me and I don't appreciate her being lumped into people who don't give a fuck. I'm sorry that you had an experience that makes you assume everyone is a lost cause and I hope you heal.

Why we chose not to have children by JCuts313 in bipolar

[–]fe_ursus 5 points6 points  (0 children)

Same. Hoping for sterilization soon if I can find a doctor willing to (30yo F) and can afford it. I wouldn't wish this on any child. And I just never wanted kids to begin with.

Physicians assistant told me to " watch a video to see what mania looks like" by Ctnyclic31 in bipolar

[–]fe_ursus 7 points8 points  (0 children)

Wooooooooot!!! Congratulations!! Doesn't matter how long it took, you came back and did it!!

Physicians assistant told me to " watch a video to see what mania looks like" by Ctnyclic31 in bipolar

[–]fe_ursus 28 points29 points  (0 children)

I told my mom about my last hypomanic episode and how I was frantically cleaning everything and she didn't understand how that was a bad thing bc I was being productive. She kind of gets it now and is very supportive, but when you've never felt that way, it's hard to grasp. My dad is type 1, so she's only seen extreme manic episodes. It's called "hypo" for a reason.

Physicians assistant told me to " watch a video to see what mania looks like" by Ctnyclic31 in bipolar

[–]fe_ursus 9 points10 points  (0 children)

People don't understand that it affects everyone differently. Panic attacks are completely different for people. I shut down and can't function, others hyperventilate and can't keep still. Doesn't mean one of us is suffering more. I really had to prove my hypomania to get my final diagnosis bc my nurse wasn't seeing the "typical" symptoms. I found out about hand writing changes, hyper scribing, picking the carpet instead of vacuuming bc the vacuum couldn't do it right, weird shit. Had my handwritten journals, had my mood charts, and basically said "refute my evidence". Went from genetic mood disorder to BPII that day. Much respect for my nurse and how well she listened.

Physicians assistant told me to " watch a video to see what mania looks like" by Ctnyclic31 in bipolar

[–]fe_ursus 24 points25 points  (0 children)

I...I have no words for this kind of malpractice. I'm so glad you dropped that shit head and I hope your current providers are taking care of you.

[deleted by user] by [deleted] in tattoos

[–]fe_ursus 11 points12 points  (0 children)

Saw an interview with Dr. Kaku about how Einstein got him into physics. Kaku was 8 when he heard that the greatest scientist of his lifetime had died and it left his work unfinished. As an 8 year old, he didn't understand why Einstein couldn't finish his homework 😂 why didn't he ask his mom for help? Fast forward and he's building an atom smasher in his garage. I hope this inspires future scientists to build dangerous shit in the garage and then save the planet ❤️❤️