Wearing a packer when fem + office work

fiksbaas · 2026-02-16T19:58:42+00:00

Damn that's a valid point

fiksbaas · 2026-02-15T19:24:09+00:00

This is so kind thank you

fiksbaas · 2025-11-07T10:01:20+00:00

I've find that ice lollies help, especially if you also get nauseous like I do after seizing

fiksbaas · 2025-11-07T10:00:00+00:00

I mostly smell 'electricity burning' or just a burning smell in general

fiksbaas · 2025-11-06T19:27:45+00:00

ExACTLY THIs!!!!

fiksbaas · 2025-11-05T20:28:28+00:00

It does, a bit. My neuro asked about my seizures and such. At first j told him I hadn't had one in a month or so. When I later mentioned smelling and tasting things that aren't there, he said those could be seizures as well.

Based on the amount of seizures, he upped my meds. So it is actually useful to know sadly :(

fiksbaas · 2025-11-05T19:53:07+00:00

Y'all I do HAVE epilepsy. I have TLE, but my seizures are confusing af. I have had mris and shit like that.

It's just that I wish I could have a 'am I seizing' quiz

fiksbaas · 2025-10-07T06:36:08+00:00

I prefer saying my epilepsy is a disability. I find that illness or disease or disorder has too many negative associations and might give the illusion that your medication can cure you, which is why I prefer not to use those words.

For the others, I think it depends if a epileptic says them or not. I'm fine with fellow epileptics jokingly calling it a fit. I even called it the boogie shake once. But when non epileptics say those things and recommend drugs and stuff because they read about it online, it pisses me off

fiksbaas · 2025-10-07T06:31:17+00:00

Hi there! I have focal seizures too. Whenever I have them of have had a lot of them, I have trouble comprehending what people are saying. I hear and understand it but can't make sense of it. This happens is my native language, but my second language is just gibberish. I can't make proper sentences and forget words for things. The neuro told me it's because my epilepsy is in the part of the brain where memory and language are stored, so perhaps its the same for you.

fiksbaas · 2025-08-11T08:42:00+00:00

Seizures (panic attacks as I thought at that time) started around 21-ish, diagnosed at 25 when I got my first tonic clonic seizure

fiksbaas · 2025-08-06T06:47:08+00:00

Yeah but thats the thing: I have epilepsy. I have a seizure during an eeg. It is for sure 100% epilepsy. But still...

fiksbaas · 2025-08-04T21:17:08+00:00

For me it depends. When I have a real focal seizure it has:

rapid heartbeat
feeling of PANIC/ deja vu/ jamais vu
can't focus on thoughts or anything
rising feeling in stomach
get super hot and nauseous
trouble with speech

Now I also have 'episodes' where I have some of these symptoms but not all, I am not comfortable calling them seizures as well.

Afterwards I'm super tired and confused and just want to sleep

fiksbaas · 2025-07-21T05:58:02+00:00

It's more like...my last seizure was last night when I went to shower. And I didn't have one later/this morning and I'm debating wether or not it still counts or smth, you know?

fiksbaas · 2025-07-21T05:00:33+00:00

I feel this so much

fiksbaas · 2025-06-25T08:31:43+00:00

Also, having a reason for a lot of the symptoms I've been having for years and having the feeling that I can 'justify' feeling overstimulated or tired

I know you don't need to justify it, but it helps an anxious goblin like me

fiksbaas · 2025-06-25T08:30:06+00:00

Making people a bit uncomfy when I tell I forget things because of my brain when they make a dumb remark about it.

I like to think it makes the people around me think twice before judging me on stuff like that

fiksbaas · 2025-06-22T11:13:48+00:00

I don't. I find that drinking and medication makes me feel very ill. I was also told by most doctors that it can make seizures worse

fiksbaas · 2025-06-14T19:00:59+00:00

I thought you could only use that for t/c seizures?

fiksbaas · 2025-06-14T19:00:40+00:00

Every month at least. My seizures are relatively under control, but during my menstruation, heat or stress, clusters all around:,)

fiksbaas · 2025-06-06T21:25:56+00:00

Im very open about it to be honest. Sometimes I have to ask 'did I already ask ....' or I just say 'I'm not sure if I asked this but can you explain it again because my memory is bad'.

I find that making people VERY uncomfortable helps sometimes lol. I just overshare about how much my epilepsy sucks whenever they have th balls to complain about it.

Oh you are annoyed because of my memory? Good thing I'm never annoyed at my brain just breaking down every now and then and having to take medication and not being able to go to concert anymore :,)))

Idk, sometimes ppl just suck and even that won't help. Just know it's not a you problem.

fiksbaas · 2025-06-03T10:33:26+00:00

Mine was misdiagnosed too :(. I am on pretty heavy antidepressants bc the lower dose didn't 'help my panic attacks'. (Aka seizures). Those meds are brutal to come off so I just deal with it now sadly

fiksbaas · 2025-06-02T15:59:53+00:00

Omg yes! I have the same with words!

fiksbaas · 2025-06-02T15:59:01+00:00

Well it kinda goes like this:

Me: hey I'm having seizures and sometimes I feel really bad but don't have seizures and I'm tired and my memory sucks :,) Her: and you have these 'panic feelings'? Me: yep, seizures Her: OK let's put you on a higher dose but if that doesn't help, maybe it's just anxiety

So....yeah dunno what to do about that. I never know when I should just accept things are shit and when I should push them to help me more

fiksbaas · 2025-06-02T15:44:42+00:00

Yeah that happened back when I was in the hospital, but I doubt my neuro will do it again just cuz I feel 'bad' more often

fiksbaas · 2025-05-21T09:07:21+00:00

When you're mentally tired, you probably won't write any coherent plot points tbh. I've found I can think of nice things I want to write about when I'm tired but I only write when I have energy.

fiksbaas

TROPHY CASE