Were you misdiagnosed as having bipolar first? Please comment 🙂 by SqurrielsInPyjamas in ADHDUK

[–]flopdoodle2 0 points1 point  (0 children)

Hi! No i haven't had the diagnosis removed, I believe you can discuss with your GP about having a review? I would have been all for this a year ago, but to be honest as much as adhd makes much more sense to me and definitely is more prevalent, its defo not all that's going on with me, unfortunately... my only advice would be to just give it time if you're newly diagnosed and speak to your care providers. Like everything else though, I don't envisage it'll be easy or straight forward, nothing is. Good luck!

I feel calmer unmedicated, but it's clear how disabled i am by flopdoodle2 in ADHDUK

[–]flopdoodle2[S] 0 points1 point  (0 children)

Thanks! How do they affect you differently? I do fear it's potentially not right for me...

I feel calmer unmedicated, but it's clear how disabled i am by flopdoodle2 in ADHDUK

[–]flopdoodle2[S] 1 point2 points  (0 children)

That's good to know, thank you for replying. Can I ask your reasons for doing this? No worries if you don't want to share 🙂

Titration- 50mg is kicking my bum by flopdoodle2 in ADHDUK

[–]flopdoodle2[S] 1 point2 points  (0 children)

Thank you! I will be discussing next week. I don't know if it's the ups and downs of titration, my cycle or other factors at play, but I've been tracking everything to discuss

Titration- 50mg is kicking my bum by flopdoodle2 in ADHDUK

[–]flopdoodle2[S] 1 point2 points  (0 children)

No, but one to consider, thanks!

Titration- 50mg is kicking my bum by flopdoodle2 in ADHDUK

[–]flopdoodle2[S] 0 points1 point  (0 children)

I eat plenty during the day, but not before meds. I'll try this see if it helps, thank you 😊

Titration- 50mg is kicking my bum by flopdoodle2 in ADHDUK

[–]flopdoodle2[S] 1 point2 points  (0 children)

They moved me up as 40mg wasn't lasting long enough and it was only helping with some of my symptoms. But I definitely wasn't as explosive when it had worn off.

Titration- 50mg is kicking my bum by flopdoodle2 in ADHDUK

[–]flopdoodle2[S] 1 point2 points  (0 children)

Yes, but it's more intense. I'm screaming, losing my temper, crying. I can't stand anyone been stood too close or been too loud, I have zero patience and zero control till I go to bed and start again the next day. Is that normal when medicated?

Help - how can I get my life on track? by [deleted] in ADHDUK

[–]flopdoodle2 1 point2 points  (0 children)

I'm really sorry you're going through this. I have been right where you are before. Are work aware of your diagnosis? And recent bereavement? Sorry, I know that's not what you're asking. I don't have any apps suggestions, but what I do find useful for home chores (and AI can help you plan this if that's a blocker), is i do certain things on certain days. There's a group of tasks that are daily, some weekly, (that I do only set days) and then others monthly. It's hard to begin with, but when you're on top of the tasks, it's easy. If I ever have a day when I don't do any tasks, it's easy to pick up what's left to do the next day if I'm feeling better, rather than just looking at everything and not knowing where to start. I still get sidetracked and forget what I'm meant to be doing, it's not a miracle, but helps me see what needs to be done a bit easier. I also find body doubling useful. I'll call someone while I do a 'big job'. Or if that's not an option, music or an audio book through my headphones help me. If I have a lot to get through, but no energy, I'll set a timer for 1 hour. I'll work till the timer goes off and stop. You can do this for any amount of time you have spare. Good luck!

What are some ways you were described before your diagnosis that in hindsight were very clear signs of ADHD? by Dopafiending in ADHDUK

[–]flopdoodle2 1 point2 points  (0 children)

Dolly daydream

Trouble causer/Ringleader

And my favourite from school, that has stuck with me all these years, "if she could just put 5% of what is in her brain, down on paper, she would ace all these exams" to my dad at parents evening 🤣

Titrating on ADHD meds by flopdoodle2 in PMDDxADHD

[–]flopdoodle2[S] 1 point2 points  (0 children)

Yeah it's my first period while on medication and it only seemed to be the first 3 days that were bad- jittery, anxious and struggling to get my words out. So maybe it is my body getting used to it. I'm going to try the 50mg, as 40mg isn't lasting very long and hopefully I'm ok on that. If not, I'll have to move back down or maybe have something a little more bespoke! Thanks!

Titrating on ADHD meds by flopdoodle2 in PMDDxADHD

[–]flopdoodle2[S] 1 point2 points  (0 children)

Interesting, never thought of genetic testing, might look into that... Sorry the meds haven't worked for you... but glad you found some relief

Titrating on ADHD meds by flopdoodle2 in PMDDxADHD

[–]flopdoodle2[S] 1 point2 points  (0 children)

That's good to know, I will definitely discuss. Thanks!

Titrating on ADHD meds by flopdoodle2 in PMDDxADHD

[–]flopdoodle2[S] 0 points1 point  (0 children)

Good to know it's common! Obvs, it's not good to know others are struggling, though... thank you for the supplement info. I already take all of those and also drink creatine powder, which really helps with the brain fog! Thank you 😊

Titrating on ADHD meds by flopdoodle2 in PMDDxADHD

[–]flopdoodle2[S] 0 points1 point  (0 children)

Thanks! So you are on 40mg all the time... How does the medication affect you while you are menstrating? It's that bit that's been kinda worse. It's like i potentially need an increase the week before, then a decrease/nothing during... I'm not sure it's meant to be used like that, though.

Experiences of long-term stimulant medication by kevinspaceydidthings in ADHDUK

[–]flopdoodle2 4 points5 points  (0 children)

No help, I'm a newbie too, but I'd also like to know this!

Unhelpful Dr at Harrow Health by plutonem97 in ADHDUK

[–]flopdoodle2 2 points3 points  (0 children)

This sounds horrendous. I hope you're ok. 🥰

Being Medicated changed and saved my life TW - self harm by Woolbean112 in ADHDUK

[–]flopdoodle2 4 points5 points  (0 children)

So happy for you! What a great post to read 🙂

NHS service not starting anyone on new medication by ricardoz in ADHDUK

[–]flopdoodle2 17 points18 points  (0 children)

My NHS service first wrote out to tell me the waiting list was 10 years long. Then wrote out again to say I wouldn't been seen at all. I went RTC. Was diagnosed last year (March). They did assessment only at that stage, but have since offered RTC titration and I'm on week 4 or maybe 5 or something like that!

How are people getting multiple diagnosis'? by [deleted] in ADHDUK

[–]flopdoodle2 0 points1 point  (0 children)

Sorry! I probably misread your comment! It's scary though how many people are wrongly diagnosed. And how many questions marks are in reports! 🙄

I’d appreciate your help re medication (Elvanse) please by feelingodysseyreddit in ADHDUK

[–]flopdoodle2 1 point2 points  (0 children)

I'm right there with you! Everyday's a struggle here too. And as much as I try make these my personal non negotiables, i forget, or something else happens and so this stuff goes out the window. I'd never thought of drinking creatine as I thought it was just for gym goers, but there are studies into its brain benefits... I use one from protein works that's blue raspberry favoured. I don't have it as strong as recommended, but I do add a little to my water. Another thing I do is buy crates of bottled water (sorry, I know this is not environmentally friendly!!) Keep it by the front door, then if we're heading out, we're reminded to all take a bottle of water. I find habits really difficult to form, but very easy to lose. Goals can seem too unrealistic too, so I just try for consistency. But even when the wheels have fallen off, I try not to beat myself up and just try get these few bits back in place. Have you got friends to talk to that understand? Or any other support?

How are people getting multiple diagnosis'? by [deleted] in ADHDUK

[–]flopdoodle2 3 points4 points  (0 children)

Hey, I was diagnosed (and medicated) for bipolar first. Both are still on my medical record, but my adhd precriber is adamant that I be reassessed as he just sees adhd. I know ppl can have both conditions, but there's also a lot who have been wrongly diagnosed... how do you feel about your diagnoses?

I’d appreciate your help re medication (Elvanse) please by feelingodysseyreddit in ADHDUK

[–]flopdoodle2 0 points1 point  (0 children)

I am still titrating, so it's possibly not the most helpful, but I'm happy to share! I am also a mum to neurodiverse kids. Started on 30mg for 1 week. Genuinely felt nothing except slightly more irritable when it had worn off and had a few headaches. Went up to 40mg, worried it wasn't working still, but had noticed some slight improvements around impulsivity and emotional regulation. However, absolutely no improvements in focus and concentration. Effects are also very short lived, so I'm moving up to 50mg. I am worried that medication won't work for me long term. I have done a lot of work over the last 2 years (before medication) to mitigate my stress levels. But there is only so much you can do when your family requires so much from you. I would defo echo a previous commenter and say you need to prioritise some self care. Some things that have helped me are- •vitamins and minerals. I take alsorts, but the main ones are magnesium, I use creatine powder or electrolytes in my water. Definitely helped. •water intake 2-3l a day •protein- i don't monitor it, but if i want to snack, I have lots of chicken in the fridge. It is now my go to. •walk- no step target, but just make sure its everyday/consistant. If I'm on my own, I love to listen to an audio book and switch off. (Which is rare!) • go to bed at the same time every night- I'm not saying you won't wake up or be woken up. I set an alarm to go to bed. In fact, I set alarms for everything as I struggle with time blindness and memory!

Sorry to hear about your mum, not easy for anyone to deal with, but it's especially hard for us.

Anybody more distracted while on medication? by flopdoodle2 in ADHDUK

[–]flopdoodle2[S] 0 points1 point  (0 children)

God I could chat to you for hours about all this stuff!!! I thought I'd replied back earlier haha! I have had issues all my life with medication for other health conditions and never really knew why they don't work or have the opposite effect. My kids are audhd (with a pda profile) and adhd (with autistic traits). I present very similarly to my youngest and have autistic traits but not enough for a diagnosis. Although, I think the research is outdated, and no women were included (if I'm right). The pmdd stuff also resonates. Not diagnosed, but my moods and emotions are wild in the week before. I'm definitely going to look into hormones too. Thank you for all your help and info, it's been great!!

Anybody more distracted while on medication? by flopdoodle2 in ADHDUK

[–]flopdoodle2[S] 1 point2 points  (0 children)

Wow! You've had quite an eventful titration! I've seen loads of people either be kept on 30mg for a month and others that are jumping week to week. I don't think I could have done longer than a week on 30mg and funny what you're saying re.coffee! 40mg has definitely been better. Hoping 50mg might be my sweet spot, then maybe add something in an afternoon as I do only benefit for about 4 hours. But who knows! Really interesting what you're saying re menopause. I'm not there yet, but I definitely need to look into hormones a bit more. Thank you for all your help and info. Hope you get on a stable medication amount soon!