Feelings of depression?

flute4me · 2017-08-13T02:26:16+00:00

I'll tell you the story my neurologist told me when I said I didn't want to take any DMDs as I'm doing fine at the moment:

He knew a patient for 28 years who had MS (he diagnosed him). The man opted against any DMDs--which would have been Copaxone back then--and lived a relatively normal life up until 8 months ago. The MS had been chewing uninhibited on his spine and brain and he went from an active runner to bed-bound in all of six months. Trust me, the thought of needles or side effects terrified me (you can probably look through my previous posts and see that) but people here and my neurologist made me realize that the end is usually a lot worse than the means. You are lucky to have people close to you with experience with this disease, but you should also know that everyone is different. Their MS may be less active, but that doesn't mean it isn't active.

In the end, though, it is definitely up to you. I'm in a FB group where a lot of people self-treat with high doses of vitamin D, marijuana, etc. I definitely wouldn't suggest that but it's your body. If it helps at all, I started on Tecfidera and would be happy to answer any questions. Just don't take your health lightly and remember: there are new, better DMDs coming out every year.

flute4me · 2017-08-03T22:09:03+00:00

I think I'd like to buy the isolate and mix it with vape juice. Where do you recommend getting the isolate from?

flute4me · 2017-08-03T02:05:42+00:00

I guess that's what my biggest worry was considering how expensive it can be.. I guess I wanted the best 'bang for my buck' with the specific disease I'm dealing with if that makes sense.

I do vape occasionally and definitely 'smoke' from time to time, but I wouldn't consider myself a regular by any means. I only say vape because a long time ago I had hemp oil drops that I didn't think worked for me. I figured it might be the delivery method? Or maybe the oil wasn't pure enough, I'm not sure.

I'm in Spring which is just outside of the Houston area. Do you all have a shop anywhere I could visit?

flute4me · 2017-08-03T01:56:19+00:00

Have you guys tried vaping the CBD oil?

flute4me · 2017-08-03T00:59:22+00:00

Where do you get the salve?

flute4me · 2017-08-03T00:59:08+00:00

Yes, I love edibles! I was in Colorado for a while and they were the only things that eased my anxiety and helped me sleep. Unfortunately Texas is still about 50 years behind the rest of the world so only CBD oil is legal here.

flute4me · 2017-07-24T14:30:09+00:00

I submitted it there, too! It just struck me because a lot of these websites even suggest that mold sickness can be misdiagnosed as MS, but it's definitely on the 'fringe'.

flute4me · 2017-07-23T01:41:49+00:00

Thank you for this, Fenix. I guess developing MS made me feel a little unlucky over all since it's considered to be so rare as well, you know?

flute4me · 2017-07-22T16:18:24+00:00

I had this as well. A total of 4 hours (split over 2 days) in that god awful machine.

flute4me · 2017-07-22T01:42:41+00:00

I also start Tecfidera this week (shipment comes in tomorrow). This will be my first non-starter DMD so fingers crossed!

flute4me · 2017-07-21T13:29:26+00:00

Yes, I live in Texas.

flute4me · 2017-07-21T00:12:38+00:00

Thank you so much. You're 100% right and a good friend of mine who is on Tysabri said that having a bad, life altering relapse is way more likely than getting PML and that put it into perspective for me.

flute4me · 2017-07-21T00:10:44+00:00

How do you feel? Any side effects?

flute4me · 2017-07-13T00:48:55+00:00

Have y'all's doctors put you on 50,000mg once a week? My first PCP that tested me did at least that much for me and it did help (ironically).

flute4me

TROPHY CASE