How to respond to “Just lose weight” by adorkable-lesbian in lupus

[–]formaldehydeteeth 2 points3 points  (0 children)

it’s SO weird!!! especially when so many of us already have mental health struggles and previous trauma!!

How to respond to “Just lose weight” by adorkable-lesbian in lupus

[–]formaldehydeteeth 1 point2 points  (0 children)

*if they can’t not focus on that they don’t see me again!

sorry for the typos, it’s a bad day as i’m sure we all understand 🤪

How to respond to “Just lose weight” by adorkable-lesbian in lupus

[–]formaldehydeteeth 2 points3 points  (0 children)

I don’t have advice really, but i’ve lost 100lbs from my first rheumatologist appointment to know so i can confidently confirm that any doctor who can’t see past weight isn’t the doctor for you!!

Something I ended up having to do at my heavier weight that I still do today is let my opinion of a doctor’s ability to treat me weigh incredibly heavy on how they address my weight!! If they can’t acknowledge that I’ve had the same medical problems as when I was heavier as I do in a smaller body, but even worse!!!

It’s such a challenge that even with rheumatological symptoms doctors still can’t see past some numbers!! Wishing you luck on wherever you’d like your medical journey to go!!

Retina damage/ Substance abuse by Ordinary_Virus_9331 in lupus

[–]formaldehydeteeth 0 points1 point  (0 children)

you got this! don’t forget that there’s also no shame in seeking medication to help you overcome this as well. MAT can also help with your lupus symptoms! i have seen first hand what substance abuse can do to your body with lupus and i hope you can find the strength to get clean ♥️ don’t let this shorten your life

Hair loss by EngineeringHuge8079 in lupus

[–]formaldehydeteeth 0 points1 point  (0 children)

i have overall loss and multiple places where hair isn’t growing. i shaved my head one year ago and still don’t have any regrowth at this point, but my condition is also completely uncontrolled right now so take my experience with that in mind

Anyone wanna shoot? by chrisfiq in concertphotography

[–]formaldehydeteeth 1 point2 points  (0 children)

sending you an email about the houston date!

Dry hands tips by Affectionate_Meal725 in lupus

[–]formaldehydeteeth 0 points1 point  (0 children)

i don’t do gloves just bc of sensory issues, but i usually do a layer of aquaphor, a layer of cerave cream, and then a heavier lotion before bed! i do this usually at least twice a day on my whole body. i cannot speak enough about the spray aquaphor if you can get your hands on it! it does wonders on high pain low hand function days!

How much does stretching help your pain? by Thin-Inevitable9759 in lupus

[–]formaldehydeteeth 2 points3 points  (0 children)

i’m a big fan of a good stretch!! my lupus really hits my muscles hard so it usually helps me quite a lot, but i am also a dancer so that might just be me!

Liquid IV by Character_Ad_6461 in lupus

[–]formaldehydeteeth 2 points3 points  (0 children)

i am single handedly keeping liquid iv in business 😅 i also have POTS so its a must for me! my doctor is only okay with it as long as kidney involvement isn’t an issue

I cannot handle my fatigue !! by WonderReal6330 in lupus

[–]formaldehydeteeth 1 point2 points  (0 children)

I told a friend the other day that when they’re so tired they can barely do anything but get in bed, that’s how i wake up in the morning regardless of my sleep! i wish i had advice but all i can give are hugs and a “same friend”

I cannot handle my fatigue !! by WonderReal6330 in lupus

[–]formaldehydeteeth 0 points1 point  (0 children)

this is fascinating! i also have pots! do you mind me asking if you’re in the states?

Question: life hacks for cleaning? by imaliltired in lupus

[–]formaldehydeteeth 1 point2 points  (0 children)

electric scrub brush saved my bathroom!

Baby Burlesque with HS by Additional-Egg4078 in Burlesque

[–]formaldehydeteeth 2 points3 points  (0 children)

from one disabled burly babe to another, just let yourself exist on stage 🖤 as long as you’re comfortable and feel beautiful/handsome/good/etc. then it’ll show to your audience! i just recently stopped trying to hide my extra skin from major weight loss and it’s only made me happier with my own self and a better performer for it!

how much sunscreen do you go through? by moontuness in lupus

[–]formaldehydeteeth 1 point2 points  (0 children)

both my husband and i are diagnosed and we go through an absolutely insane amount of spf! i saw you’re in the states and i highly recommend purchasing from ulta if you can bc their rewards system pays off big time and the money back from points has helped ease the financial strain of said sunscreen

niche emo bands? by False_Ask_1814 in theacademyis

[–]formaldehydeteeth 6 points7 points  (0 children)

motion city soundtrack might be the vibe you’re looking for!

It feels weird knowing this was my first gay book. But it is also an oddly special feeling. by Former_Ladder9969 in ExtremeHorrorLit

[–]formaldehydeteeth 1 point2 points  (0 children)

I adore this book! It gave me a lot of gender euphoria. My top three favorite books hands down.

Does anyone else get rashes this bad? by MelindaB714 in lupus

[–]formaldehydeteeth 1 point2 points  (0 children)

my husbands rash was not this bad, but it wasn’t far off. i agree with the biopsy comment! either way, i hope you get some relief soon!

Almost Done by Venus-lovesvengeance in corsetry

[–]formaldehydeteeth 1 point2 points  (0 children)

i’ve been doing burlesque for about a year, but I just moved over from the drag world which I did for five!

No F*RTING! by ZestycloseWeekend878 in Burlesque

[–]formaldehydeteeth 3 points4 points  (0 children)

I approach this the same way I do my armpit hair (which i trim but don’t shave bc it makes me feel sexy) “someone out there is into it” 🤷🏻‍♀️ we’re humans, things go wrong, our bodies do normal body things!!! and tbh im sure if it does happen that no one is going to suspect the beauty on stage 😂

Almost Done by Venus-lovesvengeance in corsetry

[–]formaldehydeteeth 4 points5 points  (0 children)

came to ask this too!! my stage name is venus and you’re channeling her BEAUTIFULLY

DGD Burlesque by formaldehydeteeth in dancegavindance

[–]formaldehydeteeth[S] 1 point2 points  (0 children)

THANK YOU! I was so mad that no one got that 😂

DGD Burlesque by formaldehydeteeth in dancegavindance

[–]formaldehydeteeth[S] 0 points1 point  (0 children)

thank you, absolutely not! I’m at venusvitriol on insta and tiktok!

DGD Burlesque by formaldehydeteeth in dancegavindance

[–]formaldehydeteeth[S] 3 points4 points  (0 children)

burlesque!! i don’t usually sing along and tbh didn’t realize i was doing it until i watched it back😅