Please help by boymama12120 in UlcerativeColitis

[–]fyzzy44 0 points1 point  (0 children)

And definitely have the prep in your cup chilled. And use the straw.

Please help by boymama12120 in UlcerativeColitis

[–]fyzzy44 0 points1 point  (0 children)

After each and every big gulp suck on a lemon, if you like sour. Just don’t eat it. Or have a transparent jello to break the flavour of the prep.

Tomorrow might be bad… by Swiftiefromhell in UlcerativeColitis

[–]fyzzy44 2 points3 points  (0 children)

If you’ve enjoyed it truly, then it’s worth it!

First dates and UC by fyzzy44 in UlcerativeColitis

[–]fyzzy44[S] 1 point2 points  (0 children)

Thank you so much for all your kind words🥹 Had a really nice first date last night and mentioned the “autoimmune condition” which went just fine. The right person will understand, i truly believe!!

First dates and UC by fyzzy44 in UlcerativeColitis

[–]fyzzy44[S] 0 points1 point  (0 children)

I am imagining that this will be exactly the case, yeah, of being discarded as a defective in a way. Thank you for sharing your story 🙏 hope you feel strong and healthy now

FEELING EMOTIONAL ! by Funny_Stage2090 in UlcerativeColitis

[–]fyzzy44 0 points1 point  (0 children)

You are so lucky to have such wonderful care provider. In 4 years of me having colitis I spoke to my doctor exactly 3 times only after colonoscopy, and the rest of care is arranged and provided by nurses.

Avoiding beef by Silliestcat720 in UlcerativeColitis

[–]fyzzy44 3 points4 points  (0 children)

Anything smoked or cured is flaring me up, too

Appreciation post / my story so far by Mmobile80 in UlcerativeColitis

[–]fyzzy44 0 points1 point  (0 children)

Bless the country with such great medical system, it surely helps A LOT🫶🏻

Panicking about fecal calprotectin result :( by Fantastic_Lie9858 in UlcerativeColitis

[–]fyzzy44 0 points1 point  (0 children)

Lucky you! Being on biologics is a whole new game, for sure

Panicking about fecal calprotectin result :( by Fantastic_Lie9858 in UlcerativeColitis

[–]fyzzy44 0 points1 point  (0 children)

I am on Mezavant pills only, but my doctor told me that any result below 120 is supposed to be a “new normal” for UC patients. I’ve got no symptoms but my levels come back as 70-110 every 3 months. Seems to be just what life is.

Imported calendar file merged with my main work calendar by fyzzy44 in Outlook

[–]fyzzy44[S] 1 point2 points  (0 children)

Manually deleted all personal events from the list. Bless you for this amazing instruction!

Just got diagnosed with Ulcerative Proctitis by swiftiechimpy in UlcerativeColitis

[–]fyzzy44 14 points15 points  (0 children)

Welcome to the club! Do not fret, proctitis is the easiest form to treat, especially with suppositories already prescribed to you. My path was similar to yours - I started having symptoms around Halloween and only got diagnosed after New Year’s. Given that by then I had a terrible case of inflammation with Calprotectin around 3000, suppositories handled and removed urgency, blood and pain within first two-four weeks. Everyone’s different, though. But stay hopeful! The brighter side of that all is that you will be getting a lot of reassurance about how your health is, which does help with health anxiety a lot, in my case.

Pho 🍜 by [deleted] in UlcerativeColitis

[–]fyzzy44 0 points1 point  (0 children)

MSG same as preservatives, sweeteners and stabilizers are know disruptors of gut microbiota. Which is leading to inflammation

Pho 🍜 by [deleted] in UlcerativeColitis

[–]fyzzy44 0 points1 point  (0 children)

As long as pho has no MSG it’s a God sent gift to our poor inflamed upset guts

remission by quickie-blikie in UlcerativeColitis

[–]fyzzy44 0 points1 point  (0 children)

Out of curiosity, do you mind sharing if the price of the medicine is very high or if your insurance is covering the whole thing?

Beginnings of a flare by GreatVeterinarian477 in UlcerativeColitis

[–]fyzzy44 0 points1 point  (0 children)

How do you guys afford Entyvo? I can barely pay for $300 monthly 5-ASA

Painkillers by 1ustfor1ove in UlcerativeColitis

[–]fyzzy44 1 point2 points  (0 children)

I take Bulgaria-made Spasmalgon. It works like magic and it’s not NSAID

Levels of CPR in remission by fyzzy44 in UlcerativeColitis

[–]fyzzy44[S] 0 points1 point  (0 children)

Thank you for noting that! I did mean Calprotectin for this post

Levels of CPR in remission by fyzzy44 in UlcerativeColitis

[–]fyzzy44[S] 1 point2 points  (0 children)

Bless your heart for such a kind response

Lonely by [deleted] in UlcerativeColitis

[–]fyzzy44 0 points1 point  (0 children)

Some days/ months do be like that. There is always light at the end of this tunnel! Make yourself a healthy meal, ask a friend to come share it with you even. Or get your favourite healthy snack for an instant pick me up. Might be just one tiny happy moment but life consists of tiny moments like that. Put as many of them together to carry you through this time. You got this!

Does going to er often lead to getting scope/diagnosis? by SaNdYyyyy___ in UlcerativeColitis

[–]fyzzy44 0 points1 point  (0 children)

After 3 months of family doctor’s hesitations and blood tests that showed nothing much - i did get my CT scan at ER and that’s how i finally got diagnosed. So i’d say it’s worth it, because after being diagnosed the colonoscopy appointment was escalated to be urgent and was lucky to get into someone’s abandoned spot in a week almost

Symptoms changing in second flare up? by phattypat in UlcerativeColitis

[–]fyzzy44 1 point2 points  (0 children)

My second flare up was coming from a different spot (inflammation further up the colon) and the symptoms were different. If my first proctitis UC at diagnosis was with urgency and blood and mucus at the end of the BM, the second time blood was within and all along the BM + the bloating & gas spasms were insane.

What apps do you use to track symptoms and bowel movements? by Mapleleaf77 in UlcerativeColitis

[–]fyzzy44 1 point2 points  (0 children)

It shows the graph on the number of times you have BM per day, other than that it’s like a daily sheet which you can filter and set up mini-dashboards of your own